Author Topic: The End-Game  (Read 2588 times)

Doc

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The End-Game
« on: July 09, 2010, 09:11:45 am »
 ;D That's right, the Doctor is definitely on the mend. I just returned from a visit with the Radiation Oncologist. A review of last weeks MRI brought great news. What's left of my AN is little more than a small gray mass, compared to the nearly 5cm in diameter monster it used to be. I was complimented on my much improved appearance since we last met and Dr. McLaughlin continues to encourage me to push hard and stay positive.

My Brain Stem has nearly fully recovered its straight posture and the Brain has decompressed, filling in the space once occupied by Tumor. I do have some lingering issues like continuing poor balance and a bum left eye but like they say, its certainly better than the alternative.

CyberKnife Treatment after Translab De-Bulking Surgery appears to have worked for me. July 30th is the one year anniversary of my surgery...there will be a party that night...it's a Friday too, no school the next day!

Take Care!
  ;)
Doc
Left-Translab July '09. Cyberknife Jan 2010. In Apr 2017, four more tumors found; three in the brain and one, 7cm long, on my spinal cord; it was surgically removed. It was cancerous, and so are the others. I've been receiving Chemo since June '18, and I'm still in treatment.

cin605

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Re: The End-Game
« Reply #1 on: July 09, 2010, 09:26:06 am »
Congrats!!!!!  ;D
2cm removed retrosig 6/26/08
DartmouthHitchcock medical center lebanon,N.H.
43yrs old

Adrienne

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Re: The End-Game
« Reply #2 on: July 09, 2010, 10:13:48 am »
What awesome news!  Great follow up appt.  Have a blast at your celebration at the end of the month!

Adrienne
3.0 x 3.0 x 2.5 cm AN, left side.  Diagnosed Feb. 19th,2009
Retro Sig surgery with Dr. Akagami and Dr. Westerberg on May 26/09 at Vancouver General Hospital
SUCCESS! Completely removed tumor, preserved facial nerve, and retained a lot of hearing. Colour me HAPPY!

CHD63

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Re: The End-Game
« Reply #3 on: July 09, 2010, 11:55:38 am »
Terrific report, Doc!  Keep it up.  Have fun celebrating!

Clarice
Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

Jim Scott

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Re: The End-Game
« Reply #4 on: July 09, 2010, 12:18:10 pm »
Doc ~

Great news!  Thanks for the update and the embedded lesson that most AN surgery/radiation problems do resolve, in time.   Have a fabulous celebration - you've earned it!

Jim
4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

stevecms

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Re: The End-Game
« Reply #5 on: July 09, 2010, 02:46:58 pm »
 :)doc,super news on the mri report,the first beers on me,nice 1 buddy.steve :)
4 cm acc neuroma 99.9% removed queen elizabeth hospital 6 sept 09 by dr walsh.thought it was trigeminal neuralga,lots of facial pain for 18mths,now deaf on rh side little taste and ear pressure.13 hour surgery.

Tod

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Re: The End-Game
« Reply #6 on: July 10, 2010, 10:11:04 am »
Great news, Doc! Very glad to hear it.

Tod
Bob the tumor: 4.4cm x 3.9cm x 4.1 cm.
Trans-Lab and Retro-sigmoid at MCV on 2/12/2010.

Removed 90-95% in a 32 hour surgery. Two weeks in ICU.  SSD Left.

http://randomdatablog.com

BAHA implant 1/25/11.

28 Sessions of FSR @ MCV ended 2/9/12.

Lizard

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Re: The End-Game
« Reply #7 on: July 10, 2010, 10:26:10 am »
So happy  for you, you must be so relieved!
Such a positive report would make me want to celebrate too!

 ;D  ;D  ;D

Liz
Left AN 2.5CM,retrosigmoid 11/2008, second surgery to repair CSF leak. 
Headaches began immediately.  Dr. Ducic occipital nerve resection, December 2011!!!!!

"When you come to the end of your rope, tie a knot and hang on"
-Franklin D. Roosevelt

Jackie

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Re: The End-Game
« Reply #8 on: July 10, 2010, 11:10:44 am »
Fabulous news Doc,

So glad you are experiencing Blessings!!! May they continue always, enjoy your celebration, we celebrate you too!
Best to you,
Jackie
9mm x 11mm Right Side AN mild Tinnitis, and 60% hearing loss
Diagnosed 02/04/2007
Nov.13th, diagnosed with 5mm Meningioma
9/24/08 diagnosed with Aneurysm
Wait and watch per ENT's advice and researching my options!!! What's next???

moe

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Re: The End-Game
« Reply #9 on: July 10, 2010, 09:16:02 pm »
Doc,
Yes, some great news! You've had a rough go of things and I'm so glad to hear about your successful follow up.
A lot has happened in a year, and you are doing VERY well for your one year anniversary ahead.
Party hearty :D
Maureen
06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty