Author Topic: Hi all new to forum not new to Acousic Neuroma.  (Read 5425 times)

DaveShooter

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Hi all new to forum not new to Acousic Neuroma.
« on: December 08, 2010, 08:36:45 am »
  Hi all I had my surgery back in July 1990. I  too have the ringing in the ears 24/7 and balance issues and Minears Disease. My Dr Gale W miller in Cinn Ohio put me out on perminent disability from the USPS on Sept 2001. Since then Dr Miller has passed away. I would like any recomendations as to Dr's in the Cinn/ Dayton Ohio area. I live closer to Dayton than Cinn, Ohio. I did get all my medical records from Dr Miller after he passed away. He was a member or on the scientific board of the ATA as well. Thanks-Dave

CHD63

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Re: Hi all new to forum not new to Acousic Neuroma.
« Reply #1 on: December 08, 2010, 10:02:04 am »
Dave .....

I do not live in the Cincinnati area, but I want to welcome you to this forum.  WOW, ten years out already!!  Sorry you are still troubled with the tinnitus and balance issues ..... welcome to this exclusive club!   :o 

My AN surgery was almost three years ago and the tinnitus and balance problems are my only residuals.  In all fairness, the AN surgery was my second retrosigmoid surgery so the result was no vestibular function, which is the cause of my disequilibrium.  I never had tinnitus until after the surgery ..... bummer!  Most of the time I can refocus and forget about it, but whenever I am in a noisy environment (e.g. restaurants, etc.) it is awful.

There are others on here who may be able to help with doctor recommendations.  We are looking forward to coming to your fair city in June for the next ANA Symposium.

Again, welcome .....

Clarice
Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

tichinose

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Re: Hi all new to forum not new to Acousic Neuroma.
« Reply #2 on: December 08, 2010, 10:51:50 am »
I live in the Cinti area...Dr. Theo is awesome at UC physicians

Mark241

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Re: Hi all new to forum not new to Acousic Neuroma.
« Reply #3 on: December 13, 2010, 04:33:03 pm »
Hi Dave, my Doctor now runs' the Neuro dept at Case Western Reserve in Cleveland, I dont' know how close that is to where your at. Dr. Nicholas Bambakidas, he honestly saved my life, and I can't say enough good about him. My surgeries took place at Barrows in Phoenix, while he was practicing their. Good luck Dave. 
4cm C1  16hrs                 Barrows, Jan 06      NF2
3.5 cm  Right AN retro       Barrows, Oct 06   
Cranial Plate removal           UNM Nov 07
LP                                   Barrows  Jan,2011
Wound revision                 Barrows Feb, 2011
5mm left middle Fossa,  (2) 2mm spine w&w

Kaybo

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Re: Hi all new to forum not new to Acousic Neuroma.
« Reply #4 on: December 13, 2010, 04:51:26 pm »
Welcome Dave! 

WOW!!  There aren't many of us long standing vets out here - I was 15 years yesterday!  I can't help you with your search for a Dr. but I did want to welcome you!

K   ;D

Clarice-
 ::)I think that 2010-1990 is TWENTY!!  Maybe I have some MATH skills since you seem to have all the spelling/words lately and keep kicking my booty in WWF!!   ::)
Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

CHD63

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Re: Hi all new to forum not new to Acousic Neuroma.
« Reply #5 on: December 13, 2010, 05:39:08 pm »
What's 10 years when you're having fun???????    ;D  OK, you got me .....   :'(

Clarice
Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

Barb909

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Re: Hi all new to forum not new to Acousic Neuroma.
« Reply #6 on: December 18, 2010, 04:08:07 pm »
Hi Dave,

I am W and W for the time, but see Dr. Theodosopolus (SP?) (brain) and Dr. Pensak (ear) , at the Mayfield Clinic. They are kind, professional, very easy to talk with and are known to be top notch. They are hosting the ANA Symposium this summer in Cincinnati. Hope this helps!

Barb
Feb. 2010    4 x 8 x 5mm
June 2011   4.7 x 8.9 x 4.0mm
May 2012    4.5 x 9.1 x 3.9mm
Sept. 2013   5 x 10.1 x 5mm
Feb. 2015     6 x 13 x 5 mm
In IAC near cochlea
Mild hearing loss, tinnitus
W & W, thinking about treatment

tichinose

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Re: Hi all new to forum not new to Acousic Neuroma.
« Reply #7 on: December 27, 2010, 05:26:11 am »
i hear the top notch places are UC, Stanford, The House and mayo cllinic.....personally wish I went to House first

leapyrtwins

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Re: Hi all new to forum not new to Acousic Neuroma.
« Reply #8 on: December 27, 2010, 02:33:31 pm »
There are top-notch doctors everywhere.  Mine are in Illinois.

If I were near Cincinnati I'd go to Pensak (met him at the last symposium and was very impressed with him) & Theodopolous (not sure I spelled that right).

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways