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Author Topic: face pain  (Read 1714 times)

Patti

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face pain
« on: May 10, 2006, 08:17:48 am »
I had surgery 5 1/2 years ago (4 cm) and have had facial numbness along with lots of other things.  I have always gotten sensations of itcing, twitching, and mild bursts of pain.  Twice recently I had bursts of severe facial pain that stop me in my tracks.  Fortunately I wasn't driving.  Does anyone else have this or know what it's about?  Patti
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4 cm AN removed 12/2000
subsequent brain swelling
removal of part of cerebellum
face, scalp,tongue numbness and partial paralysis
no corneal sensation and no tears-frequent eye issues
cognitive issues
Regrowth (3.1 x ..86 cm) treated by SRS on November 6, 2015

Joef

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Re: face pain
« Reply #1 on: May 10, 2006, 08:56:37 am »
there has been a few messages about this .. so far I guess its a good thing,  ;D it means the nerves are coming back .. do you have movement and feeling of facial muscles? I too had a 4cm its been only 10 months for me ... I get shorts bursts of pain too ..
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4 cm AN/w BAHA Surgery @House Ear Clinic 08/09/05
Dr. Brackmann, Dr. Hitselberger, Dr. Stefan and Dr. Joni Doherty
1.7 Gram Gold Eye weight surgery on 6/8/07 Milford,CT Hospital

Battyp

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Re: face pain
« Reply #2 on: May 10, 2006, 09:24:20 am »
HI Patti, I get like a phatom pain which is intense but only last for a few seconds.  I had a sharp intense pain in my ear and regained some of my hearing so I'm hoping it means my facial numbness will go away!  I want my tongue back!

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matti

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Re: face pain
« Reply #3 on: May 10, 2006, 11:23:09 am »
Patti - I am 8 years post op and still getting weird sensations and some additional healing. My doctors continue to scatch their heads in amazement. Some say it is the facial nerve misfiring and some say I could still be healing, even at this length of time.

If I were you, I would definetly mention it to your doctors since you are 5 1/2 years post op. If it is the facial nerve misfiring, they could give you medication.

Keep us posted
Cheryl
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3.5 cm  - left side  Single sided deafness 
Middle Fossa Approach - California Ear Institute at Stanford - July 1998
Dr. Joseph Roberson and Dr. Gary Steinberg
Life is great at 50

Crazycat

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Re: face pain
« Reply #4 on: May 10, 2006, 11:46:44 am »
Hi Patti,

     When it comes to nerve pathways, it always seems to effect people differently. I've had the left side facial numbness since surgery that is gradually improving but have never experienced any sharp pains or even headaches for that matter. When is your next MRI?
    Mine is tomorrow believe it or not!

             Paul
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5cm x 5cm left-side A.N. partially removed via Middle Fossa 9/21/2005 @ Mass General. 
Compounded by hydrocephalus. Shunt installed 8/10/2005.
Dr. Fred Barker - Neurosurgeon and Dr. Michael McKenna - Neurotologist.
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