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Author Topic: Clinical Trial in AZ for Tinnitus  (Read 5127 times)

ppearl214

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Clinical Trial in AZ for Tinnitus
« on: April 06, 2010, 06:17:09 am »
cross posted in CK Patient Forums (in the "Acoustic Neuroma" subforum) by Dr. Medbery:

If any of you live within 50 miles of Gilbert AZ and are interested in a clinical trial of a drug for tinnitus: http://www.clinicalconnection.com/PatientViewStudy6254.aspx
 
Phyl
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cindyj

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Re: Clinical Trial in AZ for Tinnitus
« Reply #1 on: April 06, 2010, 06:53:47 am »
Darn, wish I lived in AZ...would be very interested in participating...hope someone here can do it.  Who's in AZ?  Know of Mary (MaryBKAriz).  Haven't seen her for awhile, I'll try to send her a PM to let her know about it...anyone else out there?

Cindy
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newmommyLA

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Re: Clinical Trial in AZ for Tinnitus
« Reply #2 on: April 06, 2010, 09:31:20 am »
This is for neramexane, I believe.  There are locations all over the country doing this trial including Burbank, CA where I tried to participate.  I was ineligible because I'd had a brain tumor and surgery.  I've tried to participate in a number of trials, but have never been accepted b/c of my AN.  Very annoying!

Amy
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6mmx8mm AN rt side.  Mid-fossa surgery HEI House/Schwartz 10/28/09.  Temp facial paralysis (8 weeks), SSD, severe tinnitus & hyperacusis, tumor all gone.  12/23/09 cochlear nerve section (trying to reduce tinnitus) no major improvement on tinnitus. Trying biofeedback/neurofeedback for tinnitus.

leapyrtwins

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Re: Clinical Trial in AZ for Tinnitus
« Reply #3 on: April 06, 2010, 04:41:47 pm »
Hey, does anyone know if MaryBKAriz suffers from tinnitus? 

Haven't seen her on the Forum in a while, but she may be interested in this.

Perhaps I should PM her?

Jan
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cindyj

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Re: Clinical Trial in AZ for Tinnitus
« Reply #4 on: April 07, 2010, 08:23:35 am »
I sent Mary a PM yesterday, Jan...can't remember if tinnitus is an issue for or or not, but sent it to her anyway...

Cindy
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rt side 1.5 cm - Translab on 11/07/08 Dr. Friedman & Dr. Schwartz of House Ear Institute,
feeling great!

"Life consists not in holding good cards, but in playing well those you do hold."  Josh Billings

leapyrtwins

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Re: Clinical Trial in AZ for Tinnitus
« Reply #5 on: April 07, 2010, 12:56:33 pm »
Thanks, Cindy  ;D
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

moe

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Re: Clinical Trial in AZ for Tinnitus
« Reply #6 on: April 07, 2010, 11:17:03 pm »
Most people who have tinnitus and are SSD are not eligible to participate as I understand it >:(
Maureen
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jaylogs

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Re: Clinical Trial in AZ for Tinnitus
« Reply #7 on: April 08, 2010, 12:34:17 am »
Hey, I am in Phoenix!!! I live in the next town over from Gilbert AND I have tinnitus...I might try this!! I'll let you all know!
Jay
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8.1mm x 7.8mm x 8.2mm AN, Left Ear, Middle Fossa surgery performed on 12/9/09 at House by Drs. Brackmann/Schwartz. Some hearing left, but got BAHA 2/25/11 (Ponto Pro) To see how I did through my Middle Fossa surgery, click here: http://www.caringbridge.org/visit/jaylogston

cindyj

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Re: Clinical Trial in AZ for Tinnitus
« Reply #8 on: April 12, 2010, 02:33:15 pm »
Please do let us know if you get in the trial and how it goes!

Cindy
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rt side 1.5 cm - Translab on 11/07/08 Dr. Friedman & Dr. Schwartz of House Ear Institute,
feeling great!

"Life consists not in holding good cards, but in playing well those you do hold."  Josh Billings

jaylogs

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Re: Clinical Trial in AZ for Tinnitus
« Reply #9 on: April 12, 2010, 03:30:21 pm »
Well...that one was short lived! I didn't even get past the first question...which was "How long have you had your tinnitus?" In my case, it's been about 4 years now.  They want people who are under a year. I guess I don't understand what difference it makes whether you've had it for 1 month or 30 years.  Oh well, better luck next time! :)
Jay
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8.1mm x 7.8mm x 8.2mm AN, Left Ear, Middle Fossa surgery performed on 12/9/09 at House by Drs. Brackmann/Schwartz. Some hearing left, but got BAHA 2/25/11 (Ponto Pro) To see how I did through my Middle Fossa surgery, click here: http://www.caringbridge.org/visit/jaylogston
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