Author Topic: Has this happened to You?  (Read 3730 times)

alwaysthere

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Has this happened to You?
« on: February 24, 2010, 08:47:37 pm »
I had my surgery on June 25 2009. Just in the last couple of weeks my incision area has become hyper sensitive. I went to get a haircut last week and it was torture to have my stylist wash my hair, let alone cut it. I did call my Dr and talked to his nurse. When she called me back, she said that according to the Dr. the nerves could still be healing this long after surgery and might be going thru a sensitive stage. Has anyone else had this problem and how have you dealt with it?

Patty
Diagnosed 1/09 1.6cm left side
5/09 2cm
hearing & balance problems
Surgery Date June 25, 2009 St. Mary's Hospital in Rochester, Mn
Surgery went great, can still hear!!!!

"This too shall come to pass and life will go on"

EJTampa

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Re: Has this happened to You?
« Reply #1 on: February 25, 2010, 12:11:19 am »
Hi Patty,
 
My surgery was in March of 2009, and I started to get "site" pain in June and July.  Not as long as yours, but same issue.  Doc said the nerves "mend" and are able to send the pain signals again.  For me, it was temporary.  I hope it is for you as well!
 
Ernie
-1.3 X 0.8 cm AN in the right cerebellopontine angle extending into the internal auditory canal.
-Retrosigmoid Surgery with Dr. Bartels and Dr. Danner at Tampa General 3/5/2009.
-Had to cut hearing nerve to get "sticky" tumor, so SSD right side.

nteeman

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Re: Has this happened to You?
« Reply #2 on: February 25, 2010, 07:24:16 am »
Patty,

I had a similar issue but it was about 6 weeks after my surgery. Everything seemed all healed up and after taking a shower I was towel drying my hair when all of a sudden the area around the incision became very painful and sensitive to the touch. Ouch, this really hurt! An hour later the pain was completely gone as if nothing happened - the area was no longer sensitive to the touch. Upon further self examination I found that if I moved my scalp (you know by shifting it back and forth with your fingers) I could trigger this reaction. I also found that it was easier to trigger if my eyebrows were raised!  I called my surgeon and his nurse informed me that the nerves in my scalp that were cut for the incision were still healing and that is what was causing this. I later found out that if I was a little gentler while towel drying my hair and scrunching my eyebrows downward it was less apt to happen.

Now it seems to have healed to the point where I can towel dry my hair as roughly as I wish and it does not cause any discomfort. None the less, I still feel that now, a little more than a year since surgery, there is still some healing going on in there.

I hope this helps you.

Neal
« Last Edit: February 25, 2010, 07:35:06 am by nteeman »
Diagnosed 12/16/2008
AN 2.4 X 2.0 X 1.6 CM
surgery performed on 1/27/2009 Mt. Sinai Hospital, NYC
Dr.Bederson & Dr. Smouha
9:30am thru 5:50pm
http://www.facebook.com/neal.teeman

Jim Scott

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Re: Has this happened to You?
« Reply #3 on: February 25, 2010, 03:24:27 pm »
Patty ~

I didn't have this experience and can't offer a solution but I'm sorry to learn that you have to deal with incision-area pain and sensitivity.  Your doctor's assessment seems to be logical although I don't understand why every AN surgery patient doesn't have this late-stage incision sensitivity (but I'm glad they don't).  In any case, it seems as if this will, thankfully, be a temporary condition.

Jim
4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

Lizard

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Re: Has this happened to You?
« Reply #4 on: March 07, 2010, 04:59:02 pm »
I have had this happen to me as well and the pain has subsided, but for about a year it was very sensitive...well after the nerves and sensation in that area started coming back about 2 month after surgery.  The doctors recommended that I rub it frequently as to de-sensitize it.  It seemed to help?  Or it could have just been the healing process.  Now the hairdresser's touch does not bother me at all.
Liz
Left AN 2.5CM,retrosigmoid 11/2008, second surgery to repair CSF leak. 
Headaches began immediately.  Dr. Ducic occipital nerve resection, December 2011!!!!!

"When you come to the end of your rope, tie a knot and hang on"
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yardtick

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Re: Has this happened to You?
« Reply #5 on: March 08, 2010, 01:30:23 pm »
Yes this still happens to me.  My girlfriend is my hair dresser so she is very, very careful with me.  I am 3 years and 6 months out from surgery.  I developed a scar neuroma on my incision that was removed a year later.  The hair on the left side of my head above my ear and to the mid point of my head is very sensitive.  Christmas of 2008 I went from below shoulder length hair to a very short cropped spike do.  I have very thick heavy hair, I thought maybe be eliminating the weight would help.  WRONG!  Just put me in the dog house with my husband and four sons. 

Last week when I was in the Tampa Bay area visiting my snowbirds sister and brother-in-law I had to wear a hoodie at all times when out doors.  The winds were so strong, my hair whipping around my head was actually painful. 

Anne Marie
Sept 8/06 Translab
Post surgical headaches, hemifacial spasms and a scar neuroma. 
Our we having fun YET!!! 
Watch & Wait for more fun & games

NancyMc

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Re: Has this happened to You?
« Reply #6 on: March 08, 2010, 03:10:07 pm »
Yes, I'm one year out and that area is still painful.  Had my first professional wash and cut a few weeks ago, and it was torture.  I'm beginning to think it's a permanent condition.  I'll see my doc in a couple of weeks and ask about it.
Watch and Wait since 9/19/01
Increased from 1.1 x 1.9 to 1.9 x 1.9 cm as of 10/27/08
Right SSD, tinnitus, compensating balance
Dr. McKenna at Mass Eye and Ear and Dr. Barker at MGH
Translab April 8, 9 hours, 18 mm Tumor all gone SSD some facial weakness

DR

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Re: Has this happened to You?
« Reply #7 on: March 09, 2010, 10:39:17 am »
I did have pain, but it was not caused by contact but, instead, was seemingly random.  It began about 10 weeks post-op and continued for over a month.  It felt like someone was sticking an ice pick in my scalp near my incision.  The pain was very intense but thankfully would fade quickly, lasting approximately 5-10 seconds.

Other than the usual sensitivity I never noticed touch causing significant pain.  Well, other than the one time I dropped the blow dryer on that area!
AN right side 12mm x 9mm x 9mm
Middle fossa surgery 11/4/09 at House (Dr. Brackmann/Dr. Schwartz)
Tumor removed, no facial issues, hearing intact!
http://denvstumor.blogspot.com/

"The greatest trick the devil ever pulled was convincing the world he did not exist."