Author Topic: Leaving part of the skull out  (Read 14062 times)

aj44

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Re: Leaving part of the skull out
« Reply #15 on: February 24, 2010, 11:45:35 am »
Could you tell me where I can watch the videos? The AN surgeries on youtube are only a few minutes long.
4 to 5cm AN removed on December 2009

sues1953

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Re: Leaving part of the skull out
« Reply #16 on: February 24, 2010, 12:15:01 pm »
Hi AJ

You can find both the traditional and the endoscopic videos on the Skull Base Institute website.  The endoscopic is a real person but the traditional methods are not.  I hope they are helpful for you.

Sue in Michigan
3.2 cm AN Right side diagnosed 12/4/09
Translab surgery May 2010 with Dr. Jack Kartush and Daniel Pieper at Michigan Ear Institute.
Successful surgery .5mm left on facial nerve.  Full facial movement. SSD, Tinnitis, tongue and lip numbness.  No headaches.  Back to living life.

aj44

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Re: Leaving part of the skull out
« Reply #17 on: February 24, 2010, 05:28:43 pm »
Hi AJ

You can find both the traditional and the endoscopic videos on the Skull Base Institute website.  The endoscopic is a real person but the traditional methods are not.  I hope they are helpful for you.

Sue in Michigan

Cheers!
4 to 5cm AN removed on December 2009

shabuck

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Re: Leaving part of the skull out
« Reply #18 on: March 02, 2010, 03:47:59 am »
ALL surgeons seem to have their own methods...mine filled the whole with bees wax and surgical glue( super glue) my head is a bit lumpy but otherwisr its seems fine.
I was looking forward to losing some of the tummy..lol
Sharon
2cm left side.. surgery booked for 3rd dec 09. St Georges London - Professor Bell.

leapyrtwins

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Re: Leaving part of the skull out
« Reply #19 on: March 02, 2010, 07:41:14 am »
Very interesting.  I've never heard of a doc using bees wax and super glue  8)

The amount of fat taken from the tummy isn't enough to really make a difference.  Most of us ask the docs to take more, but sadly, they never do  :'(

Jan 

Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

lori67

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Re: Leaving part of the skull out
« Reply #20 on: March 02, 2010, 12:16:17 pm »
Bees wax and Krazy glue - that is interesting!  I guess it's better than duct tape!   :D

Lori
Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

painter

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Re: Leaving part of the skull out
« Reply #21 on: March 02, 2010, 12:30:54 pm »
My surgeon explained that when they drill the whole, there is nothing but pulverized bone left, so nothing to put back.  After the operation, they pack the hole with belly fat, then use a fast curing "spackle type" compound that hardens like bone.  After reading all the other methods, I have to say I prefer this one.

Nickittynic

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Re: Leaving part of the skull out
« Reply #22 on: March 02, 2010, 04:48:59 pm »
I had retrosigmoid, and according to my surgical report my head is closed up with a titanium plate and "norian" bone.
25 year old OBGYN nurse, wife, mother of two
5.5cm x 3.1cm left side AN removed via retrosigmoid 9/09 @ Hopkins
SSD, Tinnitus, Chronic Migraines, Facial paralysis (improving!)
Resolved - Left sided weakness, Cognitive issues
Gold weight, upper and lower punctal plugs, tarsorrhaphy

lori67

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Re: Leaving part of the skull out
« Reply #23 on: March 02, 2010, 04:57:30 pm »
Sometimes don't you just wonder if they shove whatever they happen to find nearby in there?   :D  Yesterday's newspaper... Silly Putty....a bean bag....  "Uh...let's see...here's an old pillowcase - let's just ball that up and use that".   :o
Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

leapyrtwins

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Re: Leaving part of the skull out
« Reply #24 on: March 02, 2010, 10:07:45 pm »
Lori, LOL  :D

Painter -

not all of us had a hole drilled.  I had a window cut.

The hole that I had drilled came with my BAHA abutment  ;D

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Tod

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Re: Leaving part of the skull out
« Reply #25 on: March 03, 2010, 08:03:09 pm »
Lori, those options all seem so much better than having your family call me a fat-head.

Tod
Bob the tumor: 4.4cm x 3.9cm x 4.1 cm.
Trans-Lab and Retro-sigmoid at MCV on 2/12/2010.

Removed 90-95% in a 32 hour surgery. Two weeks in ICU.  SSD Left.

http://randomdatablog.com

BAHA implant 1/25/11.

28 Sessions of FSR @ MCV ended 2/9/12.

leapyrtwins

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Re: Leaving part of the skull out
« Reply #26 on: March 03, 2010, 08:35:46 pm »
I let my kids call me a fat-head and don't find it disrepectful at all.

Afterall, technically it's true and I get a chuckle out of it myself; plus they don't do it in a mean and nasty way.  It's kind of like a personal joke between us.

I've always tried to look at the lighter side of brain surgery - humor keeps me going. 

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Tod

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Re: Leaving part of the skull out
« Reply #27 on: March 03, 2010, 08:44:09 pm »
My sons are not the problem...it is my sisters.  ;D 46 years of sibling rivalry does not disappear overnight. but they are wonderful in that each spent a week in the hospital with me to keep company and allow my wife to work.

Tod
Bob the tumor: 4.4cm x 3.9cm x 4.1 cm.
Trans-Lab and Retro-sigmoid at MCV on 2/12/2010.

Removed 90-95% in a 32 hour surgery. Two weeks in ICU.  SSD Left.

http://randomdatablog.com

BAHA implant 1/25/11.

28 Sessions of FSR @ MCV ended 2/9/12.

leapyrtwins

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Re: Leaving part of the skull out
« Reply #28 on: March 03, 2010, 08:46:01 pm »
Ahh, siblings  ;D  I have 4 myself.

Know how they can be.

Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

lori67

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Re: Leaving part of the skull out
« Reply #29 on: March 03, 2010, 09:04:06 pm »
That's the reason I didn't tell my sisters I had fat in my head!   ;)  They'd have a field day with that!  Being the baby of the family, I've taken enough unwarranted ridicule - I'm not going to fuel the fire!

Lori
Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.