Author Topic: what kind of numbers (of AN cases) did your surgeon's report they do  (Read 13709 times)

ppearl214

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Re: what kind of numbers (of AN cases) did your surgeon's report they do
« Reply #30 on: January 22, 2010, 09:25:43 pm »
Et tu Brute?   ;D



*ahem* back on topic folks. :)
"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

leapyrtwins

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Re: what kind of numbers (of AN cases) did your surgeon's report they do
« Reply #31 on: January 22, 2010, 09:28:54 pm »
Sorry.  We're trying.  Rough week on the Forum.  I may be abdicating soon.  The people on the Cochlear Community are very nice  :)

Last hijack from me, Phyl.

I can't speak for Lori, though.
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

ppearl214

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Re: what kind of numbers (of AN cases) did your surgeon's report they do
« Reply #32 on: January 22, 2010, 09:33:25 pm »
Sorry.  We're trying.  Rough week on the Forum.  I may be abdicating soon.  The people on the Cochlear Community are very nice  :)

Last hijack from me, Phyl.

I can't speak for Lori, though.

I have a cold, I'm cranky, no more hijacks and glad to hear about the Cochlear Community. I'm still a good person! ;)

So, this topic is done, right? 

Phyl
"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

leapyrtwins

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Re: what kind of numbers (of AN cases) did your surgeon's report they do
« Reply #33 on: January 22, 2010, 09:35:22 pm »
Yes and YOU are a good person.  No debating that one  ;)

Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

4cm in Pacific Northwest

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Re: what kind of numbers (of AN cases) did your surgeon's report they do
« Reply #34 on: January 22, 2010, 09:56:26 pm »
Well wishes for the GOOD person with the cold... and pearly whites. :-*

DHM

Was that just a hi-jack?  ;) :D
4cm Left, 08/22/07 R/S 11+ hr surgery Stanford U, Dr. Robert Jackler, Dr. Griffith Harsh, Canadian fellow Assist. Dr. Sumit Agrawal. SSD, 3/6 on HB facial scale, stick-on-eyeweight worked, 95% eye function@ 6 months. In neuromuscular facial retraining. Balance regained! Recent MRI -tumor receded!

neuroma_racer

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Re: what kind of numbers (of AN cases) did your surgeon's report they do
« Reply #35 on: January 24, 2010, 07:04:46 am »
wow,
hadn't checked back in on this thread in a few days,
WHAT A FLURRY!!
thanks for the notes

1st otologist said he did 4-6/year
2nd said 50/year for himself, and 20 for his partner.
i am going to raleigh.

mild hearing loss - 12/'09
left 4x5x7mm, intracannicular schwanomma
MIDDLE FOSSA surgery 4/'10, Dr John McElveen, et.al.
was actually a FACIAL NERVE NEUROMA
hearing worsened 4/'12 - Tumor quadrupled to 9x9x15mm
cyberknife 8/'12
1.5yr MRI shows shrinkage % 85% necrosis
LEFT hearing & tinnitus SUCK

opp2

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Re: what kind of numbers (of AN cases) did your surgeon's report they do
« Reply #36 on: January 24, 2010, 11:46:46 am »
I meant to chime in on this before Jesse. 'My' surgeons (I haven't had the surgery yet) quoted usually one per week, sometimes two if there is an emergency. I would liken that, including annual leave, holidays etc thrown in there, that each does probably 45 a year. And I believe that Dr. Akagami does other neurosurgeries as well so this may be also slightly high. Realistically I think this is pretty experienced as far as VS surgery goes.
Diagn Apr 14 2009 with 2.5 cm lt AN. - numbness in the face and sudden onset headaches accompanied by balance issues. Consults with Drs in S Ontario, California (House) and Vancouver. Picked Dr. Akagami in BC.
Retrosigmoid July 6, 2010, 3.0cm by then. SSD left, no other significant side effects.

20acrewoods

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Re: what kind of numbers (of AN cases) did your surgeon's report they do
« Reply #37 on: January 25, 2010, 08:56:26 am »
My husband & I just met w/ Dr. Link & Dr. Driscoll (sp?) at the Mayo Clinic in Rochester MN on 1/19/10.   Dr. Link stated that they do 50 AN surgeries per year on average, along w/ other surgeries for cancer, etc.. 

The 2.5 cm tumor growing in my husband's head will be removed 2/1/2010.  Please keep our family in your prayers, especially my husband.

(Hey Jim, we have a pretty nice backyard here in MN w/ the Mayo Clinic 3 hours away.  Maybe not Yale, but pretty darn nice.  ;)
Hoping & praying for a great outcome for my husband.  Prayers accepted!

lori67

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Re: what kind of numbers (of AN cases) did your surgeon's report they do
« Reply #38 on: January 25, 2010, 01:10:20 pm »
Hi and welcome  "20"!

All you need to do is ask around here and you'll be getting prayers sent your way from all over the place!  We've gotcha covered!   :D  Keep us posted on your husband!

Racer,

Mind if I ask who you're seeing in Raleigh?  I'll be going down there for my 3 year follow up next month (wow, is it really coming up on 3 years????).  Just curious.

Lori
Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

neuroma_racer

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Re: what kind of numbers (of AN cases) did your surgeon's report they do
« Reply #39 on: January 26, 2010, 05:45:56 am »
Racer,

Mind if I ask who you're seeing in Raleigh?  I'll be going down there for my 3 year follow up next month (wow, is it really coming up on 3 years????).  Just curious.

Lori

Dr John McElveen, of Carolina Ear. (he trained at House Ear Institute)
he has a partner, Dr Calhoun Cunningham, (who ALSO did his fellowship at HEI).

they will (interestingly) do the craniotomy (1st part of the surgery), all the way to dissecting the facial nerve off of the tumor.

at that point, he has a neurosurgeon (whose name i forgot) remove the tumor,
Dr Hitselberger, (from HEI) will be guesting, in March, and assisting with the neurosurgical part of the procedure.

Dr McElveen says he does about 50 ANs / year
~25 of those are trans lab,
~15 are posterior fossa
~10 are middle fossa.

he says no more than 5-10% cahnces of facial nerve injury,  :)
he anticipates 40% chance of hearing preservation  :(
- as mine seems to be located on the INFERIOR branch of the vestibular nerve. based on my VNG results.


I am OFF te schedule for March, at work completely.
just anxious to find out WHEN in march it will be.

sister coming down from NY to keep the rugrats
kennel the dog,

and while this isnt exactly how i would have planned on a week away with my wife . . .
she'll be there.

still feeling weirdly melancholic about it all,
glad 95% of the decision making is over with.
« Last Edit: April 27, 2010, 12:50:05 pm by neuroma_racer »
mild hearing loss - 12/'09
left 4x5x7mm, intracannicular schwanomma
MIDDLE FOSSA surgery 4/'10, Dr John McElveen, et.al.
was actually a FACIAL NERVE NEUROMA
hearing worsened 4/'12 - Tumor quadrupled to 9x9x15mm
cyberknife 8/'12
1.5yr MRI shows shrinkage % 85% necrosis
LEFT hearing & tinnitus SUCK

lori67

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Re: what kind of numbers (of AN cases) did your surgeon's report they do
« Reply #40 on: January 26, 2010, 08:07:50 am »
Sounds like you've got all your ducks in a row - except for the actual date.

It is a relief to finally be able to make a decision - that's the hard part.

I think maybe next year you should take your wife to a more exotic location!   :D

Lori
Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

Kaybo

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Re: what kind of numbers (of AN cases) did your surgeon's report they do
« Reply #41 on: January 26, 2010, 08:10:50 am »
Glad you are getting things in place - I know that makes you feel better.  Sounds like you are going to have some great EXPERIENCED Dr.'s working on you!

Oh yeah...glad your wife will be with you too!   ;)

K   ;D
Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

 


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