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Author Topic: amazing  (Read 3101 times)

tenai98

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amazing
« on: January 08, 2010, 06:26:15 pm »
I believed I would have some problems on vacation here in Mexico...But I am surprised that my balance is fine, just need to be a little slower on uneven surfaces. Being SSD hasnt been a problem.  Being in noisy environments is fine. NO headaches, no wonky head...all is as it should be I guess...makes me a happy camper...
BTW Weather is chilly here in Puerto Vallarta...Rained the day we arrived...Unusual for this tme of the yr...Hopefully the last three weeks will be sunny and warm.
JO
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14mmX11mmX11mm left ear
TRANSLAB 04/07/09 2cms at time of surgery
Dr. Benoit and Schramm, Ottawa Civic Campus
SSD ,some facial numbness
Baha surgery sept 22/09
residual tumor 13mmX7mmX8mm
2016 new growth.  25mmX21mmX22mm
cyberknife on June 7

Tamster

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Re: amazing
« Reply #1 on: January 08, 2010, 06:40:02 pm »
How wonderful that you're enjoying yourself!  Can we all come along?  I will do a lot more walking on a warm sandy beach, promise!!
I see you have a Baha. Did you try out TransEar? or any others before choosing Baha?

Tam
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6mm AN left side, diagnosed Sept 22, 2009
Middle Fossa  December 8th 2009,  Drs. Brackmann and Schwartz.
Facial nerve preserved, tumor out, SSD. tinnitus.

Life isn't t about waiting for the storm to pass. It's about learning how to dance in the rain.

http://www.caringbridge.org/visit/Tamst

tenai98

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Re: amazing
« Reply #2 on: January 09, 2010, 06:07:18 am »
Tam
I didnt try the transear as its not available in Canada yet and not covered by my CHAMPVA insurance, whereas the BAHA is. ANd I dont lthink I would like something stuck inmy ear.
JO
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14mmX11mmX11mm left ear
TRANSLAB 04/07/09 2cms at time of surgery
Dr. Benoit and Schramm, Ottawa Civic Campus
SSD ,some facial numbness
Baha surgery sept 22/09
residual tumor 13mmX7mmX8mm
2016 new growth.  25mmX21mmX22mm
cyberknife on June 7

cyrmom2

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Re: amazing
« Reply #3 on: January 09, 2010, 05:04:04 pm »
Jo,
Glad to hear you are enjoying your vacation in Mexico.  I'm jealous - even if it is raining there.  Its gloomy here today in the buckeye state.

Cyndi
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diagnosed 7-27-09 4 cm CPA
12 hr translab 8-25-09
Dr Chicooca & Dr Welling at OSU/The James
sliver of tumor remains on brain stem
left SSD & facial paralysis (was 6/6, 2-3/6 at 9 weeks, 1/6 within 4 months) 6 month MRI on 3-17-10.

lori67

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Re: amazing
« Reply #4 on: January 09, 2010, 05:30:41 pm »
Maybe all the margaritas are counteracting the balance issues, making you feel steady?   :D

Have fun and enjoy the warm weather.  I don't think there's much of that anywhere north of you right now!

Lori
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Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

suboo73

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Re: amazing
« Reply #5 on: January 10, 2010, 07:25:11 pm »
Hi Jo!

So glad you are having a good time in Mexico! 
Would love to have some warm breezes up here in Virginia - so when you get some, please share  ;)

Have fun and relax, you deserve it!

Sue
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suboo73
Little sister to Bigsister!
9mm X 6mm X 5mm
Misdiagnosed 12+ years?
Diagnosed Sept. 2008/MRI 4/09/MRI 12/09/MRI 1/21/11
Continued W & W

Jim Scott

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Re: amazing
« Reply #6 on: January 11, 2010, 04:02:20 pm »
Jo ~

Great news about your lack of balance issues!  Perhaps warm climates have a previously unknown positive effect on 'wonkyhead' (the scientific term).  Enjoy!

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

tenai98

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Re: amazing
« Reply #7 on: January 11, 2010, 04:56:34 pm »
Jim
I am better this yr at crossing the rickety old swinging bridges here in Vallarta...I honestly thought it would be an issue.
JO
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14mmX11mmX11mm left ear
TRANSLAB 04/07/09 2cms at time of surgery
Dr. Benoit and Schramm, Ottawa Civic Campus
SSD ,some facial numbness
Baha surgery sept 22/09
residual tumor 13mmX7mmX8mm
2016 new growth.  25mmX21mmX22mm
cyberknife on June 7

Lynn Mc

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Re: amazing
« Reply #8 on: January 12, 2010, 04:21:26 am »
Mexico sounds Wonderful & definitely sounds like it does good things for Wonky Head!  Enjoy the warm weather & send some our way Massachusetts).
Enjoy!
Lynn
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Translab 01/22/10.  12 x 11.7 x 8.2 mm.
Dr's McKenna/McCall at Mass Eye & Ear,
Dr. Barker at MGH. 
SSD - No other significant problems post surgery, just some minor inconveniences!  Yipee!!
BAHA implant 04/08/11 Dr. Merchant
BAHA Gotcha 07/25/11
"Life is Good"

Captain Deb

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Re: amazing
« Reply #9 on: January 12, 2010, 10:00:44 am »
It is a proven fact that Tropical weather alleviates SSD and wonkyhead symptoms.  Why do you think the PBW spends so much time sailing the Caribbean and South Pacific?

Have a great time down there!!

Capt Deb
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"You only have two choices, having fun or freaking out"-Jimmy Buffett
50-ish with a 1x.7x.8cm.AN
Mid-fossa HEI, Jan 03 Friedman & Hitselberger
Chronic post-op headaches
Captain & Designated Driver of the PBW
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