Author Topic: The other shoe... (might be tmi)  (Read 21155 times)

HeadCase2

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Re: The other shoe... (might be tmi)
« Reply #15 on: December 01, 2009, 08:08:52 am »
Anissa,
  Like the others have mentioned, try not to worry.   Doctors are not always right with their first guess.  I took my nephew to a colonoscopy appointment, after his doctor said they detected a large mass during a prostate exam.  Everything was completely normal.  I suggested to my nephew that he may want to find a new doctor, 'cause this one didn't know #&^% from shinola  ;)
  I'm obviously not a doctor, but I don't see how a colon polyp could cause blood in the urine.
  Wishing you the best.
Regards,
  Rob
1.5 X 1.0 cm AN- left side
Retrosigmoid 2/9/06
Duke Univ. Hospital

GrogMeister of the PBW

Cheryl R

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Re: The other shoe... (might be tmi)
« Reply #16 on: December 01, 2009, 09:51:57 am »
I am also confused over why the dr wants a colonoscopy first as even a GI problem would possibly give rectal bleeding but am not sure why blood in the urine.        Some more kidney testing and maybe seeing an urologist might be of help.      Did you have an ultrasound to show the gall stones?        I would think a CT scan would be more of a possiblity to see what a problem could be and colonscopy later if nothing is showing up.    A higher up GI problem wouldn't show in the colonscopy.                  Just my opinion from a now retired nurse.             
I am having a colonoscopy a week from today and not excited but is just the age related time to get checked.
                                                          Cheryl R
Right mid fossa 11-01-01
  left tumor found 5-03,so have NF2
  trans lab for right facial nerve tumor
  with nerve graft 3-23-06
   CSF leak revision surgery 4-07-06
   left mid fossa 4-17-08
   near deaf on left before surgery
   with hearing much improved .
    Univ of Iowa for all care

moe

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Re: The other shoe... (might be tmi)
« Reply #17 on: December 01, 2009, 10:10:36 am »
Anissa,
Good advice from those ex-nurses.
Donnalynn- great advice. Did not recall that you are/were a nurse, but I know you have musical talent!
Wishing you good  or OK news for today, Anissa,
Maureen
06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty

anissa

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Re: The other shoe... (might be tmi)
« Reply #18 on: December 01, 2009, 10:12:59 am »
I talked to the doc this morning.  He won't have the final results until tomorrow morning but what he did have showed there was a lot less blood this time than last.  Yesterday he felt like there was something wrong in the kidneys and that would be seen from a scope?  I don't know anything and feel so helpless here!  

I had an u/s in August that showed the gall stones, he didn't seem concerned about that at all.  The thing that did concern him was the fact that there is little to no puss in the blood.   ???  To me that means that something is just all out bleeding without infection right?  

My doc is a country doc and fixes everything from skinned knees to delivering babies.  I'll go this round with him then hopefully he'll refer me to a specialist.  

Thank you all for your support here.  I haven't talked to any family or friends IRL so having you all here for me/us is really a treasure.   :-*
Anissa
2/11/09 Diagnosed AN 2.1cm
2/26/09 Consult with Dr. Clough Shelton, U of Utah
4/1/09 Translab with Shelton & Couldwell
--little teensy bit of tumor or cells on facial nerve, stuck! No facial weakness, Rt side SSD
4/8/10 1-yr MRI, "Looks great!"

NancyMc

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Re: The other shoe... (might be tmi)
« Reply #19 on: December 01, 2009, 11:09:20 am »
Tell him there are a lot of people out there awaiting these results, so Come On!
Another day . . . 
We'll try to be patient. 
You, too.
Fingers and toes crossed.
Watch and Wait since 9/19/01
Increased from 1.1 x 1.9 to 1.9 x 1.9 cm as of 10/27/08
Right SSD, tinnitus, compensating balance
Dr. McKenna at Mass Eye and Ear and Dr. Barker at MGH
Translab April 8, 9 hours, 18 mm Tumor all gone SSD some facial weakness

cindyj

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Re: The other shoe... (might be tmi)
« Reply #20 on: December 01, 2009, 01:57:33 pm »
Sorry you're having to wait for results, Anissa.  Do try to assume the best rather than the worst, despite what the doc may say...not easy, I know.  Will be watching to see what you find out.

Cindy

PS - what does "tmi" mean?
rt side 1.5 cm - Translab on 11/07/08 Dr. Friedman & Dr. Schwartz of House Ear Institute,
feeling great!

"Life consists not in holding good cards, but in playing well those you do hold."  Josh Billings

anissa

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Re: The other shoe... (might be tmi)
« Reply #21 on: December 01, 2009, 02:10:47 pm »
tmi = too much information

Thanks and you're right.  I'm feeling much better about it today.  God is so good to give peace and hope.  Until tomorrow then...
Anissa
2/11/09 Diagnosed AN 2.1cm
2/26/09 Consult with Dr. Clough Shelton, U of Utah
4/1/09 Translab with Shelton & Couldwell
--little teensy bit of tumor or cells on facial nerve, stuck! No facial weakness, Rt side SSD
4/8/10 1-yr MRI, "Looks great!"

Vincent87

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Re: The other shoe... (might be tmi)
« Reply #22 on: December 01, 2009, 02:52:47 pm »
I'm not a doctor, but I don't understand how yours could travel (at sonic speed) from a bladder infection to colon cancer!  I mean, c'mon, their two different highways!

Mom has had a UTI for the past four years.  (She's on suppressive therapy; Macrodatin daily.)  She's always asymptomatic-no burning sensation.  And then there's that odor.  It's only when it gets bad and ugly (bladder/kidney infection) is there blood in her urine and she gets back pain.  I remember when she was in the hospital (brain swelling from the GK) that her Gucci/Foley bag was a really bad color-like brown.  And I know you're thinking all bad thoughts, but when you have an infection, your count does go up. 

Who the hell are these doctors who give out bad news without all the lab results in their hands??? 

anissa

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Re: The other shoe... (might be tmi)
« Reply #23 on: December 01, 2009, 05:31:41 pm »
I keep thinking about it too.  He said the only things that caused bleeding like that was polyps and cancer but he didn't say that I had one or the other.  I don't think he intended to scare me (which he did anyway).  He said that a kidney stone (which I also have but in a place where it won't pass) would produce only a quarter of the blood that I was passing at the most.  He is not a specialist, but a country doc, GP. 

Ok, lots of water, no white foods, got it :)  Does that mean I have to skip my egg nog tonight?   :-[  ;D  Maybe if I put enough rum in it, it won't be a white food anymore, ha ha  j/k

Anissa
2/11/09 Diagnosed AN 2.1cm
2/26/09 Consult with Dr. Clough Shelton, U of Utah
4/1/09 Translab with Shelton & Couldwell
--little teensy bit of tumor or cells on facial nerve, stuck! No facial weakness, Rt side SSD
4/8/10 1-yr MRI, "Looks great!"

leapyrtwins

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Re: The other shoe... (might be tmi)
« Reply #24 on: December 01, 2009, 08:25:24 pm »
Ok, lots of water, no white foods, got it :)  Does that mean I have to skip my egg nog tonight?   :-[  ;D  Maybe if I put enough rum in it, it won't be a white food anymore, ha ha  j/k

Anissa -

you should definitely listen to Donnalynn; skip the egg nog and just have the rum  ;)

Hope the doc has positive news tomorrow.  Please keep us posted.

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Adrienne

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Re: The other shoe... (might be tmi)
« Reply #25 on: December 01, 2009, 08:55:08 pm »
Oh Anissa.

Just saw this now.  Huge (hugs) of strength while you sort through all of this.  Hope they get to the bottom of it with a somewhat simple explanation soon.

Adrienne
3.0 x 3.0 x 2.5 cm AN, left side.  Diagnosed Feb. 19th,2009
Retro Sig surgery with Dr. Akagami and Dr. Westerberg on May 26/09 at Vancouver General Hospital
SUCCESS! Completely removed tumor, preserved facial nerve, and retained a lot of hearing. Colour me HAPPY!

wendysig

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Re: The other shoe... (might be tmi)
« Reply #26 on: December 02, 2009, 12:53:05 am »




















Anissa,

This was my first chance to check back to see what your doc had to say.  Sorry he had no real news for you today, I'm sure you're on pins and needles.  I have to agree that it sounds like he's made quite a leap in his diagnostic guesses and I would say, don't worry until you know there is really something to worry about.  Easier said than done, I know.  Hopefully, your doc will be able to provide a fuller picture tomorrow.  Please keep us posted.

Wendy











1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

CHD63

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Re: The other shoe... (might be tmi)
« Reply #27 on: December 02, 2009, 07:35:36 am »
Anissa .....

Missed your post until just now ..... so sorry.  First reaction is "what in the world is a doctor giving you his idea of a worst case scenario before he even has test results?"  I worked for a family practice doctor (who was also a very good friend) for ten years when my children were small.  I always admired him because he never let a patient go out of the office without hope ..... and always gave the positive statistics, not all of the negative.  This is so troubling that he is causing you to worry excessively before the facts are all known.

Hang in there ..... I know there have to be other explanations for your symptoms.

Thoughts and prayers.

Clarice
Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

anissa

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Re: The other shoe... (might be tmi)
« Reply #28 on: December 02, 2009, 10:34:12 am »
Well, just shoot me ;).  I talked to the doc this morning, blood count was low, consistent with the kidney stone.   ??? ???  From cancer to a kidney stone?  I'm so irritated right now.  He is referring me to a surgeon for the gall bladder problem and I'll get a referral from him to a urologist for the blood/kidney stone issue.  Hopefully thats it and we can all move on.  I feel like I've been through the ringer.  I need another egg nog.  ;)
Anissa
2/11/09 Diagnosed AN 2.1cm
2/26/09 Consult with Dr. Clough Shelton, U of Utah
4/1/09 Translab with Shelton & Couldwell
--little teensy bit of tumor or cells on facial nerve, stuck! No facial weakness, Rt side SSD
4/8/10 1-yr MRI, "Looks great!"

staypoz

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Re: The other shoe... (might be tmi)
« Reply #29 on: December 02, 2009, 10:39:03 am »
Anissa, 8 months post-op, I experienced the same thing you did and learned that there are a lot of things that can cause blood to appear in urine.  When I was first referred to a urologist, he told me that they might never be able to determine the cause, so don't panic.  I would recommend you see a specialist.  I had several other tests beyond a scope.  You can pm me if you'd like. 

staypoz