Author Topic: One large unilateral tumor- later the other one appears? Am I Nf2? Help.  (Read 19231 times)

Tumbleweed

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Re: One large unilateral tumor- later the other one appears? Am I Nf2? Help.
« Reply #30 on: September 22, 2009, 07:56:49 pm »
Congratulations on the great news, DHM. I wouldn't worry much about the para-nasal sinus disease, especially if you are middle age or older. This may just be a thickening of the sinus membranes, which happens to many of us as we grow older. In any case, it should be a lot easier to treat (if that's even necessary or possible) than an AN!

Again, we're all happy for you!

Best wishes,
TW
L. AN 18x12x9 mm @ diagnosis, 11/07
21x13x11 mm @ CK treatment 7/11/08 (Drs. Chang & Gibbs, Stanford)
21x15x13 mm in 12/08 (5 months post-CK), widespread necrosis, swelling
12x9x6 mm, Nov. 2017; shrank ~78% since treatment!
W&W on stable 6mm hypoglossal tumor found 12/08

4cm in Pacific Northwest

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Re: One large unilateral tumor- later the other one appears? Am I Nf2? Help.
« Reply #31 on: September 22, 2009, 10:12:26 pm »
 :-*

You folks are SOOH awesome.

DHM  :)
4cm Left, 08/22/07 R/S 11+ hr surgery Stanford U, Dr. Robert Jackler, Dr. Griffith Harsh, Canadian fellow Assist. Dr. Sumit Agrawal. SSD, 3/6 on HB facial scale, stick-on-eyeweight worked, 95% eye function@ 6 months. In neuromuscular facial retraining. Balance regained! Recent MRI -tumor receded!

 


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