Author Topic: Bio 30 Trial update  (Read 6312 times)

tony

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Bio 30 Trial update
« on: June 06, 2009, 12:58:12 am »
Further results in on the Bio 30 trial (unoffical) for tumour suppression
If you recall there are about 56 NF2`s (worldwide) on a trial of propolis resin
a natural substance from New Zealand - made by bees
There are other trials but so far offically no cure for NF2 ?
Meanwhile Still looking quite good
We have 4 patients no growth 24mths (no other reason than the Bio)
We have 9 patients no growth 12mths
We have 12 patients - just too soon to say
1 patient showing (very) small shrinkage at 12mths
7-8 have dropped off the trial
8 showing slight growth
Now with NF2 12-18mths "no growth" is not unusual
but 24mths no growth  is rather rare
fingers crossed
Best regards
Tony

jerseygirl

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Re: Bio 30 Trial update
« Reply #1 on: June 06, 2009, 07:52:53 am »
This is incredibly encouraging. Thanks for the update, Tony!


                  Eve
Right side AN (6x3x3 cm) removed in 1988 by Drs. Benjamin & Cohen at NYU (16 hrs); nerves involved III - XII.
Regrowth at the brainstem 2.5 cm removed by Dr.Shahinian in 4 hrs at SBI (hopefully, this time forever); nerves involved IV - X with VIII missing. No facial or swallowing issues.

nancyann

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Re: Bio 30 Trial update
« Reply #2 on: June 06, 2009, 08:16:04 am »
Great news on the (preliminary) results ! !
Always good thoughts,  Nancy
2.2cm length x 1.7cm width x 1.3cm  depth
retrosigmoid 6/19/06
Gold weight 7/19/06, removed 3/07
lateral tarsel strip X3
T3 procedure 11/20/07
1.6 Gm platinum weight 7/10/08
lateral canthal sling 11/14/08
Jones tube insert right inner eye 2/27/09
2.4 Gm. Platinum chain 2017
right facial paralysis

Tumbleweed

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Re: Bio 30 Trial update
« Reply #3 on: June 06, 2009, 11:58:09 am »
Tony, thanks a lot for posting this news. I've got a second tumor that I'm W&W-ing on. Would love to find out where I can buy Bio 30. Any ideas?

Thanks,
TW
L. AN 18x12x9 mm @ diagnosis, 11/07
21x13x11 mm @ CK treatment 7/11/08 (Drs. Chang & Gibbs, Stanford)
21x15x13 mm in 12/08 (5 months post-CK), widespread necrosis, swelling
12x9x6 mm, Nov. 2017; shrank ~78% since treatment!
W&W on stable 6mm hypoglossal tumor found 12/08

tony

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Re: Bio 30 Trial update
« Reply #4 on: June 07, 2009, 01:27:43 am »
No Problemo
Ive sent you a private note with all the details
any issues
please let me know
Best Regards
Tony

Tumbleweed

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Re: Bio 30 Trial update
« Reply #5 on: June 08, 2009, 01:33:28 am »
Is this trial open only to people with NF2? My second tumor is a hypoglossal schwannoma, not an AN. Can I get Bio 30 oustide of the trial, or is it unavailable through other channels? If available elsewhere, where?

Many thanks,
TW
L. AN 18x12x9 mm @ diagnosis, 11/07
21x13x11 mm @ CK treatment 7/11/08 (Drs. Chang & Gibbs, Stanford)
21x15x13 mm in 12/08 (5 months post-CK), widespread necrosis, swelling
12x9x6 mm, Nov. 2017; shrank ~78% since treatment!
W&W on stable 6mm hypoglossal tumor found 12/08

tony

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Re: Bio 30 Trial update
« Reply #6 on: June 08, 2009, 04:35:13 am »
I guess anyone can buy the Bio 30
and take it for any reason - its a commercially availiable (healthcare) product
I dont know if it will work for you
- its also in trial mode for NF1 and some cancers
- it is an unoffical trial - not really a drug as such
We are taking rather larger qty than the general popoulation
- and watching events
I hope this helps
Best Regards
Tony