Author Topic: Had my 6 month post GK MRI....  (Read 2940 times)

tatianne

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Had my 6 month post GK MRI....
« on: November 11, 2009, 02:31:39 pm »
yesterday, next Tuesday I will get the results from my neuro....just wondering what is the average norm to
expect so early in the game...

Thank you

Tatianne
Waith and Watcher
July 2006 8mm
Jan 2007 9.5 mm
Jan 2009 1.4 cmm x 5mm
GK surgery completed on May 4, 2009 in Sherbrook Quebec, hoping and praying this will be the beginning of the end of my AN......

mk

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Re: Had my 6 month post GK MRI....
« Reply #1 on: November 11, 2009, 07:08:42 pm »
Hi Tatianne,

good luck with your results. I don't recall, did you have a 3 month MRI? usually the 3 month MRI gives some indication if swelling might be present.
At 6 months you may see some necrosis, but absence of necrosis doesn't really mean anything. Other than that, don't expect much, no growth/change will be an excellent result, but even if some swelling is noted this is very common. I think that one important indicator is absence of new symptoms and from what I have read you have been doing quite well.

Keep us posted on the results.

Marianna 
GK on April 23rd 2008 for 2.9 cm AN at Toronto Western Hospital. Subsequent MRIs showed darkening initially, then growth. Retrosigmoid surgery on April 26th, 2011 with Drs. Akagami and Westerberg at Vancouver General Hospital. Graduallly lost hearing after GK and now SSD but no other issues.

Tumbleweed

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Re: Had my 6 month post GK MRI....
« Reply #2 on: November 12, 2009, 02:12:27 am »
Tatianne, Marianna answered your question thoughtfully and accurately, so I'll add just one thing: if your MRI does show swelling, don't worry! My 5-month MRI showed my tumor had swelled by about 1/3 again in size, but the next MRI (taken at 11 months) showed it subsequently shrank 59% (from its swollen size)! Swelling, especially when evident early on, can be an indication that the tumor is reacting strongly to the radiation and dying a quick and dramatic death.

Good luck to you!

Best wishes,
TW
L. AN 18x12x9 mm @ diagnosis, 11/07
21x13x11 mm @ CK treatment 7/11/08 (Drs. Chang & Gibbs, Stanford)
21x15x13 mm in 12/08 (5 months post-CK), widespread necrosis, swelling
12x9x6 mm, Nov. 2017; shrank ~78% since treatment!
W&W on stable 6mm hypoglossal tumor found 12/08

tatianne

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Re: Had my 6 month post GK MRI....
« Reply #3 on: November 12, 2009, 01:32:32 pm »
thanks you! I appreciate your responses, it seems that no matter what Im told at this point its kinda early to determine anything.

I didnt have an MRI at 3 months, this is my first MRI since my treatment in May 2009...

Waith and Watcher
July 2006 8mm
Jan 2007 9.5 mm
Jan 2009 1.4 cmm x 5mm
GK surgery completed on May 4, 2009 in Sherbrook Quebec, hoping and praying this will be the beginning of the end of my AN......

ppearl214

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Re: Had my 6 month post GK MRI....
« Reply #4 on: November 16, 2009, 06:38:56 am »
Hey Tatianne!  Sending wellness wishes and healing hugglez your way for good news tomorrow! Please keep us updated on how the appt goes and what the team says.  Great being a "toastie postie", eh? :)

Phyl
"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

leapyrtwins

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Re: Had my 6 month post GK MRI....
« Reply #5 on: November 16, 2009, 06:56:07 am »
Tatianne -

hope the results are good.  Can't wait to hear.

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Vivian B.

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Re: Had my 6 month post GK MRI....
« Reply #6 on: November 16, 2009, 05:47:17 pm »
Hi Tatianne,

Best wishes on your results. Keep us posted.

Vivian
CPA AN(most likely meningioma) 1.6cm by 1.5cm by 1.9cm diagnosed early March 09. Watch and Wait.

 


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