Author Topic: What is a "Wonky head" ?  (Read 14900 times)

MikeC

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What is a "Wonky head" ?
« on: July 28, 2009, 11:48:15 pm »
Nice to use terms I cannot find the definition of. Best I found is Australian slang for a broken head.

Another web site uses the term, "Wonky eye", for his droopy weak eye.

http://wonky-eye.com/?page_id=9

Is there a difference between a Schwannoma an an acoustic neuroma ?

LADavid

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Re: What is a "Wonky head" ?
« Reply #1 on: July 29, 2009, 12:20:44 am »
Hi Mike
"Broken head" may just be a good explanation.  Ever seen those bobble-head celebrities and sports figures?  That's pretty much what we are talking about.  It's a post-surgery thing where it feels like your head is on a spring bouncing around as you try to function in daily life.  I'm sure that it's related to balance.  It's just that reference that everyone seems to agree with.
David
Right ear tinnitus w/80% hearing loss 1985.
Left ear 40% hearing loss 8/07.
1.5 CM Translab Rt ear.
Sort of quiet around here.
http://my.calendars.net/AN_Treatments

tenai98

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Re: What is a "Wonky head" ?
« Reply #2 on: July 29, 2009, 05:33:45 am »
by ANA its an enhance state of dizziness with head detachment....My definition is head swirl (like having one to many to drink) without the alcohol effect on the brain.
JO ;D
14mmX11mmX11mm left ear
TRANSLAB 04/07/09 2cms at time of surgery
Dr. Benoit and Schramm, Ottawa Civic Campus
SSD ,some facial numbness
Baha surgery sept 22/09
residual tumor 13mmX7mmX8mm
2016 new growth.  25mmX21mmX22mm
cyberknife on June 7

leapyrtwins

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Re: What is a "Wonky head" ?
« Reply #3 on: July 29, 2009, 06:25:35 am »
Mike -

wonkyhead is a term we use here on the Forum.  I'm not sure you'd find a definition in a dictionary  :)  David's comparison to a bobble-head figure hits the nail right on the head.

Vestibular schwannoma is just another (harder to pronounce) term for acoustic neuroma.

Best,

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Patti UT

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Re: What is a "Wonky head" ?
« Reply #4 on: July 29, 2009, 10:56:58 pm »

How about,  the feeling of trying to balance a bowling ball (your heavy head) on your shoulders  or

fishbowl head,  where your head is the fishbowl, and your eyes are the goldfish sloshing around



patti ut
2cm Rt side  middle fossa  at University of Utah 9/29/04.
rt side deafness, dry eye, no taste, balance & congintive issues, headaches galore
7/9/09 diganosed with recurrent AN. Translab Jan 13 2010  Happy New Year

nteeman

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Re: What is a "Wonky head" ?
« Reply #5 on: July 30, 2009, 06:14:41 am »
After reading these definitions of WONKY HEAD I would say that I have never had one.  I have had very slight dizziness after surgery and sometimes I still feel a light head feeling. I find that if I make a quick turn to either side it takes me a moment longer to orientate myself but this nothing like feeling like a bobble-head toy. While lying down I can lie on either side without any pain but I feel more comfortable keeping my AN side up--not sure why. So I guess I never had a WONKY HEAD or my WONKY HEAD is different.  :)
Diagnosed 12/16/2008
AN 2.4 X 2.0 X 1.6 CM
surgery performed on 1/27/2009 Mt. Sinai Hospital, NYC
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NancyMc

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Re: What is a "Wonky head" ?
« Reply #6 on: July 30, 2009, 07:15:39 am »
Me, too.  Never had it.
Compensating for seven years of wait and watch probably circumvented the issue.
Watch and Wait since 9/19/01
Increased from 1.1 x 1.9 to 1.9 x 1.9 cm as of 10/27/08
Right SSD, tinnitus, compensating balance
Dr. McKenna at Mass Eye and Ear and Dr. Barker at MGH
Translab April 8, 9 hours, 18 mm Tumor all gone SSD some facial weakness

saralynn143

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Re: What is a "Wonky head" ?
« Reply #7 on: July 30, 2009, 07:38:37 am »
In addition to Australian slang for broken, "wonky" is also a British slang term meaning shaky, groggy, or unsteady.

That seems to sum it up pretty well.

Sara
MVD for hemifacial spasm 6/2/08
left side facial paresis
 12/100 facial function - 7/29/08
 46 - 11/25/08
 53 - 05/12/09
left side SSD approx. 4 weeks
 low-frequency hearing loss; 85% speech recognition 7/28/08
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wcrimi

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Re: What is a "Wonky head" ?
« Reply #8 on: July 30, 2009, 08:16:28 am »
After reading these definitions of WONKY HEAD I would say that I have never had one.  I have had very slight dizziness after surgery and sometimes I still feel a light head feeling. I find that if I make a quick turn to either side it takes me a moment longer to orientate myself but this nothing like feeling like a bobble-head toy. While lying down I can lie on either side without any pain but I feel more comfortable keeping my AN side up--not sure why. So I guess I never had a WONKY HEAD or my WONKY HEAD is different.  :)

I feel more comfortable sleeping with my AN side up also.  ???  I guess deep down I afraid I'm going to upset whatever is holding my skull, titanium mesh etc.. together if I put too much pressure on it.  I'm slowly overcoming it.

You are lucky you never had Wonky head.  ;)


1 cm, 6mm, 4mm on Left side. Surgery performed 11/6/2008 by Dr. Kalmon Post and Eric Smouha at Mt. Sinai Hospital in NYC.
Normal hearing before, 85%-90% now, dizziness when walking or turning head, annoying hissing and high pitched tinnitus on and off, eyes have trouble adjusting to rapid head move

epodjn

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Re: What is a "Wonky head" ?
« Reply #9 on: July 30, 2009, 09:54:05 am »
My experience is somewhere in the middle of the Austrailian and Engish versions of wonky, just depends on the day. But those versions sure hit it right on the mark. For those of you who don't know what we are talking about, Thank Goodness!!! I'm glad you don't have it. Not much fun.
Left side 3.2cm AN/FN removed 12/8/08 Dr's. Shelton and Reichman. SSD, facial paralysis,taste issues, lateral tarrsoraphy 6/25/09,scheduled for eye and nasal valve surgery 6/22/11 life is GOOD!

CHD63

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Re: What is a "Wonky head" ?
« Reply #10 on: July 30, 2009, 08:03:02 pm »
Love all of the definitions of "wonkyhead."  When doctors ask me if I have vertigo or dizziness, I always say no because it is more like a disorientation ...... but wonkyhead is so much more descriptive.  I, too, would agree with JO that it feels like I've had one too many, without having had any.

Clarice
Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

yardtick

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Re: What is a "Wonky head" ?
« Reply #11 on: July 31, 2009, 09:42:26 pm »
Some times don't you just wish you had that one too many  ;)  I think it would make it all worth while. 

Last night my husband and I played euchre at our friends house around the corner from us.  I had one glass a wine the entire evening.  Walking home, holding Louie's hand, my balance goes for a nose dive and I twisted the ankle I broke and had surgery on four years ago.  I have some swelling, a bit of bruising and I'm limping.  So I guess that was my one too many ;D

Anne Marie
Sept 8/06 Translab
Post surgical headaches, hemifacial spasms and a scar neuroma. 
Our we having fun YET!!! 
Watch & Wait for more fun & games

HeadCase2

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Re: What is a "Wonky head" ?
« Reply #12 on: August 03, 2009, 11:54:46 am »
"Is there a difference between a Schwannoma an an acoustic neuroma ?"

Mike,
  A Schwannoma is a tumor composed of the swann cells that form a sheath around nerves.  An Acoustic Neuroma is a Vestibular Schwannoma.  Not all Schwannomas are Acoustic Neuromas, since they can also form on other nerves besides the acoustic (vestibular)nerve.
  The general term is Acoustic Neuroma, and Vestibular Schwannoma is probably the more technical term.

Regards,
  Rob
1.5 X 1.0 cm AN- left side
Retrosigmoid 2/9/06
Duke Univ. Hospital

GrogMeister of the PBW

4cm in Pacific Northwest

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Re: What is a "Wonky head" ?
« Reply #13 on: August 03, 2009, 09:54:28 pm »
HUGS Anne Marie

DHM
4cm Left, 08/22/07 R/S 11+ hr surgery Stanford U, Dr. Robert Jackler, Dr. Griffith Harsh, Canadian fellow Assist. Dr. Sumit Agrawal. SSD, 3/6 on HB facial scale, stick-on-eyeweight worked, 95% eye function@ 6 months. In neuromuscular facial retraining. Balance regained! Recent MRI -tumor receded!

Patrick-OC

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Re: What is a "Wonky head" ?
« Reply #14 on: August 05, 2009, 08:36:30 am »
I have "Wonky Head".
I will use some of these desciptions when i talk to my physical therapist on Friday.
I tried to describe the bobble head thing to her but she didn't get it. Now i have other options.
Thanks.  ;D
Patrick
5mm Middle Fossa removal on 6/30/09
House Ear Clinic & St. Vincent's Hospital
Drs. Brackmann, Schwartz & Stefan

 


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