One AN and one meningioma

[Elena Melnikova]

One AN and one meningioma without NF , are there such people here ? And is there such a combination without NF? I am 44 years old. Please respond! Thanks !

[cp76]

I have an AN, a small trigeminal schwannoma, and a tiny thing that they assume is a meningioma.

I have tested negative for NF2 but can't know for sure until tumors are resected. 

[Elena Melnikova]

Thank you for your reply ! Has there been any treatment? And how long have the tumors been detected?

[Elena Melnikova]

I have an AN, a small trigeminal schwannoma, and a tiny thing that they assume is a meningioma.

I have tested negative for NF2 but can't know for sure until tumors are resected.

Thank you for your reply! Has there been any treatment? And how long ago were the tumors discovered?

[Viva]

Hi Elena,
I’m 48 and was diagnosed with a vestibular schwannoma (VS) on my left side, measuring 18×11 mm, and an incidental 4 mm petroclival meningioma on the right side near the porus of the trigeminal nerve. I’m going to be tested for NF2 in June, although Dr. Stattery thinks I’m not NF2. Did you take the test for NF2? do you have any family history of hearing loss or NF2?