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Author Topic: Dr. Medberry CK message board  (Read 3956 times)

mindyandy

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Dr. Medberry CK message board
« on: May 24, 2012, 06:37:51 pm »
Does anyone know what happened to the CK message board that Dr. Medberry went to? It doesnt work anymore.
http://patientforum.cksociety.org/
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14mm dx 9/07. CK done Seattle  1 year MRI showed some shrinkage. 4 year MRI 2mm growth nothing conclusive. Trigminal nerve involvment Retrosigmoid Friedmand/Schwartz HEI March 7,2012

nftwoed

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Re: Dr. Medberry CK message board
« Reply #1 on: May 24, 2012, 08:57:18 pm »
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PaulW

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Re: Dr. Medberry CK message board
« Reply #2 on: May 25, 2012, 01:25:30 am »
Doctor Medbury can now be found at The Radiosurgery Society website

http://patientforum.therss.org/
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10x5x5mm AN
Sudden Partial hearing loss 5/28/10
Diagnosed 7/4/10
CK 7/27/10
2/21/11 Swelling 13x6x7mm
10/16/11 Hearing returned, balance improved. Feel totally back to normal most days
3/1/12 Sudden Hearing loss, steroids, hearing back.
9/16/13 Life is just like before my AN. ALL Good!

mindyandy

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Re: Dr. Medberry CK message board
« Reply #3 on: May 25, 2012, 04:39:51 am »
Nftwoed thanks but Dr. Medberry is no longer there.
Thanks Paul. I had it in my favorites but I don't know what happened  :-[
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14mm dx 9/07. CK done Seattle  1 year MRI showed some shrinkage. 4 year MRI 2mm growth nothing conclusive. Trigminal nerve involvment Retrosigmoid Friedmand/Schwartz HEI March 7,2012

ppearl214

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Re: Dr. Medberry CK message board
« Reply #4 on: May 25, 2012, 05:31:40 am »
Will see if I can find out.
Phyl

Quote from: mindyandy on May 25, 2012, 04:39:51 am
Nftwoed thanks but Dr. Medberry is no longer there.
Thanks Paul. I had it in my favorites but I don't know what happened  :-[
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"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

Sheryl

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Re: Dr. Medberry CK message board
« Reply #5 on: May 25, 2012, 11:06:01 am »
I wrote to Dr. Medbury on the Radiosurgery Society website (www.therss.org) about three days ago and still no response.  He used to answer within minutes or hours on the CyberKnife board but maybe he's away. 
Sheryl
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9th cranial nerve schwannoma - like an acoustic neuroma on another nerve. Have recently been told it could be acoustic neuroma. Only 7 mm of growth in 18 years. With no symptoms. Continuing W&W

ppearl214

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Re: Dr. Medberry CK message board
« Reply #6 on: May 26, 2012, 04:29:32 am »
Quote from: Sheryl on May 25, 2012, 11:06:01 am
I wrote to Dr. Medbury on the Radiosurgery Society website (www.therss.org) about three days ago and still no response.  He used to answer within minutes or hours on the CyberKnife board but maybe he's away. 
Sheryl

Sheryl

My thought, as well, due to holiday weekend.  Just being patient (sorry for the pun!) to see when he responds back. He will.
Phyl
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"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"
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