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Post-Treatment / 2 1/2 Weeks Post Translab @ MGH - Odd post surgery symptom
« Last post by BrokedownPalace on November 13, 2025, 05:44:44 PM »
Hi All,

I completed my translab surgery on October 28 w/ Dr. Lee & Dr. Barker @ MGH. The surgery was as much of a success as possible, full tumor removal with full facial function intact. My hearing in my AN ear was already so bad that getting used to the SSD in quieter environments feels pretty comfortable, and I'm slowly bringing back music into my life. My balance is slowly but surely coming back, and I'm going on unassisted, slow walks for an hour at a time already. Still feel pretty unstable, but I know that it'll be sometime before I fully get that stabilization back.

The one thing that has been bothering me though is a strange symptom. Every night, my AN ear will become red and a bit hot to the touch for a few hours and then return to normal. I'm now off steroids and other prescribed meds so they don't seem to be the direct cause. I've had some extensive conversations w/ the team @ MGH about this and they're unsure of the cause, but are not concerned given the lack of other infection symptoms (fever, confusion, etc.) and the fact that it goes away relatively quickly. I have an appointment with my PCP per the MGH team's recommendation next week as I don't live in Boston to cover all my bases on possible causes.

Has anyone else experienced this post surgery? Looking to find any insight into this, thanks :)

62
Facial Issues / Frustrating. What are your results after one to two years?
« Last post by WALEED KHALID on November 11, 2025, 01:26:03 PM »
I removed the entire tumor and its size was 5 centimeters and I was paralyzed in my left face and after 10 months the corner of the mouth began to move and now it is 11 months of operation and the smile from the corner of the mouth moves 1 centimeter or a little more, is there an improvement in the coming months or does the improvement depend on these simple results?
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Eye Issues / cataract surgery in dry eye
« Last post by ad325 on November 10, 2025, 06:50:20 AM »
I am considering cataract surgery. I am concerned about increasing the problem in dry eye (the surgery side) as dry eye condition is quite difficult mainly during winter months. Anyone has experience with cataract surgery affecting the dry eye condition?
thank you for any advice
64
Hi Jackysue,

The Foundation is a separate organization. A quick internet search will give you the contact information for the physician you are looking for.

Please reach out if we can be of assistance. 

Best regards,

The ANA Team
melanie@anausa.org
65
Radiation / Radiosurgery / Gamma Knife Surgery Scheduled
« Last post by JoHo1118 on November 07, 2025, 07:34:08 AM »
After my 2nd MRI this year, the Acoustic Neuroma grew 20% (it's at nearly 5 mm now) and haver been recommended for the Gamma Knife procedure to take place on December 4th because of the rate of growth.  While there is the small chance my hearing will get worse (it already is anyway) my true hope is the long-term positive effects of no more vertigo and imbalance issues while walking or other activities.
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Facial Issues / Getting back to normal after facial reanimation 5 to 7
« Last post by YankyG. on November 07, 2025, 01:58:59 AM »
Hi

I have an appointment for facial reanimation In 2 weeks

I would like to know how long after the surgery can you go back to normal like working flying domestic or international.

I know the hospitals are saying to stay around 3 to 4 weeks

But I would like to hear from people that went thru such a process how long after that is it really possible to travel?

I have to get back home as soon as possible.

Thanks a lot
67
For those in the 'watch and wait' status / Re: Diagnosed with VS , What to do
« Last post by DodgeAU on November 05, 2025, 10:16:05 PM »
And147159, welcome to the best AN community! I had similar AN size like yours when first diagnosed. I decided to wait and watch for three years. My AN has tripled in size after 3 years and decided to go for GK treatment. So far the treatment has worked really well for me and my AN is now under control, continues to shrink in size. It's okay to wait and watch but please be mindful of the growth rate after few MRI's. Most of us are lucky to find out AN while still small in size as we have plenty of options. In my case, I should have taken action/treatment much earlier although I had enough time to decide what treatment was best for me. I'm really glad I found this community people are really nice and helpful. All the best and keep us updated with your progress.
68

It's our understanding that the Facial Paralysis & Bell's Palsy Foundation is not currently active. You can still find some helpful links and information posted on their website, however.

Please reach out to Melanie at the ANA for facial resources, including the ANA's facial support group.

Best regards,

The ANA Team
melanie@anausa.org

I am very curious about this...Is Dr. Azizzadeh's office not open anymore? 
69
AN Issues / Re: Second surgery-HELP
« Last post by mwatto on October 31, 2025, 08:08:14 PM »
I read this today and was wondering if medication/ chemo might help this time? Here is the link to show your specialists : https://academic.oup.com/noa/article/6/1/vdae107/7697688
70
Headaches / Re: Sex / orgasm headaches & dhiarhea headaches - post op
« Last post by greenamw on October 31, 2025, 06:29:50 AM »
I've actually experienced mild headaches after sex a few times, especially when I was stressed or recovering from illness, but nothing as intense as what you're describing. It always freaked me out, but for me, drinking water and lying down in a dark room usually helped. Diarrhea-related headaches are something I had post-gastrobug, probably from dehydration, but never both together or as severe as you mention.
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