Hi I did not have dizziness pre or post radiation. I did read this article recently however linking dizziness in AN to anxiety - mmight help to work on that aspect. Another thing is to check your medications if on eg even statins can have dizziness as a side effect, as do some health conditions like low blood pressure:  https://jamanetwork.com/journals/jamaotolaryngology/article-abstract/2839530?guestAccessKey=aa803a9d-f934-4dab-b140-9924cd8ac6fc&utm_medium=email&utm_source=postup_jn&utm_campaign=article_alert-jamaotolaryngology&utm_content=olf-tfl_&utm_term=100225

Thanks Mark! Glad to hear you're back to crushing 5ks already.

I also have a weird taste in my mouth on the AN side post surgery that comes and goes, seems to be pretty "common" from what I've read on here as apparently the AN is generally located near some taste receptors in your brain. I can't do anything too artificial tasting currently with the taste being off.

Hi All,

I completed my translab surgery on October 28 w/ Dr. Lee & Dr. Barker @ MGH. The surgery was as much of a success as possible, full tumor removal with full facial function intact. My hearing in my AN ear was already so bad that getting used to the SSD in quieter environments feels pretty comfortable, and I'm slowly bringing back music into my life. My balance is slowly but surely coming back, and I'm going on unassisted, slow walks for an hour at a time already. Still feel pretty unstable, but I know that it'll be sometime before I fully get that stabilization back.

The one thing that has been bothering me though is a strange symptom. Every night, my AN ear will become red and a bit hot to the touch for a few hours and then return to normal. I'm now off steroids and other prescribed meds so they don't seem to be the direct cause. I've had some extensive conversations w/ the team @ MGH about this and they're unsure of the cause, but are not concerned given the lack of other infection symptoms (fever, confusion, etc.) and the fact that it goes away relatively quickly. I have an appointment with my PCP per the MGH team's recommendation next week as I don't live in Boston to cover all my bases on possible causes.

Has anyone else experienced this post surgery? Looking to find any insight into this, thanks

I am considering cataract surgery. I am concerned about increasing the problem in dry eye (the surgery side) as dry eye condition is quite difficult mainly during winter months. Anyone has experience with cataract surgery affecting the dry eye condition?
thank you for any advice

After my 2nd MRI this year, the Acoustic Neuroma grew 20% (it's at nearly 5 mm now) and haver been recommended for the Gamma Knife procedure to take place on December 4th because of the rate of growth.  While there is the small chance my hearing will get worse (it already is anyway) my true hope is the long-term positive effects of no more vertigo and imbalance issues while walking or other activities.