Recent Posts

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61
AN Issues / Re: New member, symptoms questions.
« Last post by Jill Marie on May 18, 2025, 10:17:51 pm »
Hi Mark,

Wow, I was really surprised and pleased to see that you posted just 3 days after surgery.  I didn't think we would hear from you for at least a week or two.  Glad to hear your balance is better than normal, that will certainly help your recovery.  I was on crutches after breaking my leg a month before surgery so I'm lucky they even let me out of the hospital. Lol. Speaking of getting out, tomorrow is the big day, bet you're looking forward to it.  So sorry to hear that you had such a rough time with the headaches, thankful of course that they went away.  Considering the growth in your tumor recently I imagine you're really glad you got rid of it.  Take Care, Jill :)
62
AN Issues / Re: New member, symptoms questions.
« Last post by DanFouratt on May 17, 2025, 01:38:35 pm »
Surprised it grew, glad it is gone!  Keep on moving.
Dan
63
AN Issues / Re: New member, symptoms questions.
« Last post by Mark F. on May 17, 2025, 11:41:02 am »
I just realized that I didn't mention the results from that last MRI the day before surgery.  I was a little surprised as I had just had an MRI 4 weeks prior, and in those 4 weeks it grew 1mm each direction.   Final measurements on it was 13x9x9.   When it was first diagnosed I was at 10x6x6.
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AN Issues / Re: New member, symptoms questions.
« Last post by ESH on May 17, 2025, 10:30:55 am »
So glad to hear you are making such progress.

Ellen
65
AN Issues / Re: New member, symptoms questions.
« Last post by Mark F. on May 16, 2025, 05:02:36 pm »
Skier,

I think you are on to something with keeping as active as possible.  Since I was a runner I used my treadmill everyday before surgery, even when my balance was questionable at best I used the handrails and did what I could.   I really believe that my surprise walking ability after surgery has everything to do with having strong legs that can help me steady myself.  If I could give anyone any word of advice it would be do whatever you can to keep active and keep your legs strong right up to the day.  I'm not doctor, but it helped me.
66
AN Issues / Re: New member, symptoms questions.
« Last post by DanFouratt on May 16, 2025, 04:31:56 pm »
Great news, thanks for sharing.  Keep on getting better.
67
AN Issues / Re: New member, symptoms questions.
« Last post by sissyn on May 16, 2025, 09:20:55 am »
Outstanding News!  Mark - So glad to hear that you are doing well and each day improving. 

Take Care - Sissy
68
AN Issues / Re: New member, symptoms questions.
« Last post by skier on May 16, 2025, 05:46:20 am »
Terrific, Mark! Very happy to hear this.

Best,
Skier
69
AN Issues / Re: New member, symptoms questions.
« Last post by Mark F. on May 16, 2025, 03:40:26 am »
Well first post after surgery.  First day was rough, no sugar coating that one, but feeling better each day.   Spent 2 days in ICU, now I'm just out on the floor.   Told I'll most likely be sent home Monday, making my stay 6 days.   They were able to preserve what hearing I had, although it isn't much, as I was already legally deaf in the left ear, just not totally deaf, so I can still tell direction of louder sounds.   Balance am told is better than most at this point.  I got up and walked the hallway yesterday afternoon with just someone holding my arm.  Yesterday morning I was using a walker so that was a quick transition.  Post op headache was probably the worst headache I ever had in my life, but after 2 days seems to be gone now. Thank you all for your support and advice, it was useful and I believe really helped.
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Inquiries / Re: Mayo for Treatment/s
« Last post by bfoley on May 16, 2025, 03:33:57 am »
Greetings Kamama62-

I was treated at Mayo in MN. Started with Gamma in 2019 - deemed to be a failure (part died party kept growing) so I had translab surgery in 2023.  Let me know what questions you have!
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