Author Topic: Clinical study  (Read 3573 times)

ombrerose4

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Clinical study
« on: December 15, 2010, 08:25:05 pm »
Tomorrow I am going to be interviewed for a clinical study that involves non-invasive trans cranial stimulation for facial pain. I was referred to them by my pain doctor. They said they have had great results with patients who have chronic facial pain that results in headache. So hopefully they will pick me for the study and it will work. :)
Retrosigmoid 9/24/09
AN 2.4+ cm left side
Mount Sinai Hospital, NYC (Dr. Bederson and Dr. Choe)
BAHA surgery 1/4/2010

leapyrtwins

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Re: Clinical study
« Reply #1 on: December 16, 2010, 06:35:03 am »
I hope they pick you too, Lauren.

Good luck,

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

saralynn143

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Re: Clinical study
« Reply #2 on: December 16, 2010, 09:08:00 pm »
Oooh, I'll send a prayer your way. Sounds promising for you.
MVD for hemifacial spasm 6/2/08
left side facial paresis
 12/100 facial function - 7/29/08
 46 - 11/25/08
 53 - 05/12/09
left side SSD approx. 4 weeks
 low-frequency hearing loss; 85% speech recognition 7/28/08
1.8 gram thin profile platinum eyelid weight 8/12/08
Fitted for scleral lens 5/9/13

Truffles

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Re: Clinical study
« Reply #3 on: January 09, 2011, 08:06:43 pm »
Good luck.  When will you know if you're in the study?  I can sympathize with the headaches as I almost always have some kind going on.

ombrerose4

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Re: Clinical study
« Reply #4 on: January 09, 2011, 08:33:31 pm »
I should be starting the week of the 24th :)
Retrosigmoid 9/24/09
AN 2.4+ cm left side
Mount Sinai Hospital, NYC (Dr. Bederson and Dr. Choe)
BAHA surgery 1/4/2010

saralynn143

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Re: Clinical study
« Reply #5 on: January 11, 2011, 02:42:22 pm »
Great news. I sure hope it works for you.
MVD for hemifacial spasm 6/2/08
left side facial paresis
 12/100 facial function - 7/29/08
 46 - 11/25/08
 53 - 05/12/09
left side SSD approx. 4 weeks
 low-frequency hearing loss; 85% speech recognition 7/28/08
1.8 gram thin profile platinum eyelid weight 8/12/08
Fitted for scleral lens 5/9/13

yardtick

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Re: Clinical study
« Reply #6 on: January 11, 2011, 03:59:18 pm »
This is very interesting, please keep us updated on the treatment and how you are feeling.  I'm a facial pain suffer and I suffer from brutal headaches.  My head also hurts all the time.  Wow this treatment could be a break through.

Take care,
Anne Marie
Sept 8/06 Translab
Post surgical headaches, hemifacial spasms and a scar neuroma. 
Our we having fun YET!!! 
Watch & Wait for more fun & games