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Author Topic: Mask  (Read 3095 times)

sher

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Mask
« on: September 17, 2008, 01:43:05 pm »
got my mask  made today for CK .... didn't realize you had to keep your eyes closed. Also had CT and MRI. Now the docs will plan out the attack. ;D. Going to visit my daughter and grandbabies in Vegas next weekend before my CK. I hope everyone is having a great day!!!!!
Sher
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1.2cm x 0.6 cm extracanicular component (7 mm) 05/08/08
MRI in AUG 08  showed 30 % growth
Having CK 9/30, 10/1 and 10/2/08
1/12/08 MRI shows swelling

hruss

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Re: Mask
« Reply #1 on: September 17, 2008, 01:49:13 pm »
Enjoy your time with family in Vegas, Sher!
this will be a nice rest before the stressing moment!
have fun!
Hrissy
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4.5cm right AN pressing on the brain stem, dn Sept 2007
2 Retrosigm surgeries in Oct 2007 and Jan 2008 by the Bulgarian prof. Kyrkeselian partially removed.
3rd retro surgery in Hannover,Germany by prof Samii, Oct 2008. SSD
Got rid of my bugger, temp facial paresis
hrissysexperiences.blogspot.co

Jim Scott

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Re: Mask
« Reply #2 on: September 17, 2008, 01:55:41 pm »
Sher:

I'm sure the mask is fetching.  ;)

I wish you a fun and relaxing visit with your grandchildren as well as a smooth and ultimately successful CK treatment later this month.

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

mimoore

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Re: Mask
« Reply #3 on: September 17, 2008, 03:04:58 pm »
Enjoy every minute with your family. Lots of love helps the healing.  ;D
Take care. Michelle  ;D
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Retrosigmond surgery on June 4th, 2008 for an AN. 100% hearing loss and facial paralysis (was not prepared for facial paralysis). Size: 2.3 cm, 2.1 cm, 1.8 cm. some tumour remains along facial nerve. Pray for no regrowth. Misdiagnosed for 10 yrs.

leapyrtwins

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Re: Mask
« Reply #4 on: September 18, 2008, 07:26:02 am »
Sher -

have a great time with your daughter and grandbabies.

And post a picture of your mask for us - if you're comfortable with that idea  :)

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

sher

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Re: Mask
« Reply #5 on: September 18, 2008, 11:09:18 am »
Thanks everyone!!!!
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1.2cm x 0.6 cm extracanicular component (7 mm) 05/08/08
MRI in AUG 08  showed 30 % growth
Having CK 9/30, 10/1 and 10/2/08
1/12/08 MRI shows swelling

wendysig

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Re: Mask
« Reply #6 on: September 19, 2008, 07:43:20 pm »
Sher -
Have a great time in Las Vegas!  I'll look forward to seeing you picture with the mask if you decide to posit it.

Wendy
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1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

28Lisa

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Re: Mask
« Reply #7 on: September 20, 2008, 06:55:14 am »
Mask??
Im cluless
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A.N. 4+cm, 9/11/07 @ NY Presbyterian Hospital, Dr. Phillip Stieg
post opt - partial facial paralysis on left side, total hear loss on left side, speech altered, loss of taste, smell,balance, loss of sensation on right side from shoulder down, low motor skills, eye weight 11/07

ppearl214

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Re: Mask
« Reply #8 on: September 20, 2008, 07:03:28 am »
Quote from: 27Lisa on September 20, 2008, 06:55:14 am
Mask??
Im cluless

Hey Lisa,

the mask they use for Cyberknife treatment... here is a pic of mine during my treatment... fab "Hannibal Lechter" look, don't ya think? :)



Sher, have a fab time!!!!!

Phyl
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"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

sher

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Re: Mask
« Reply #9 on: September 20, 2008, 11:49:21 am »
Phyl,
Could you open your eyes at all in your mask?
Logged
1.2cm x 0.6 cm extracanicular component (7 mm) 05/08/08
MRI in AUG 08  showed 30 % growth
Having CK 9/30, 10/1 and 10/2/08
1/12/08 MRI shows swelling

sgerrard

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Re: Mask
« Reply #10 on: September 20, 2008, 07:42:18 pm »
Sher,

I could open mine in my mask - but you might want to think twice about doing that. Every now and then, if you are peaking out, you may open your eyes to see the Cyberknife head peering right back at you with its single big gentle eye! It can give you a start, and you don't want to move around on the table if you can help it.

Better to close your eyes and zone out, or even nap, and listen to the hum of the machines hum or your favorite music.  8)

Steve
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8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

ppearl214

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Re: Mask
« Reply #11 on: September 21, 2008, 09:00:34 am »
Quote from: sher on September 20, 2008, 11:49:21 am
Phyl,
Could you open your eyes at all in your mask?


Absolutely... but... I have long eye lashes and they will get stuck between the mesh holes :D  I slept through treatment... although... some "cheeky" folks here asked me to look for the "eye"... so, I did during treatment.. and I saw it and giggled. 

No issues opening eyes during treatment....

Phyl
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"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"
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