Author Topic: Age of AN patients: UPDATE with data and names thru post 126 p 9  (Read 36505 times)

johnsli

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Re: Age of AN patients: UPDATE with data so far
« Reply #30 on: May 24, 2007, 01:12:17 pm »
Diagnosed age 51 2CM on a wait and watch, and by the way the night sweats are back with a vengence.  Had them when I was 45 to 48 and they stopped.  But, boy are they back now.  So bad, they wake me from a deep sleep.  And it really is hard for me to sleep right now.

Lol
Laura

jerseygirl

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Re: Age of AN patients: UPDATE with data so far
« Reply #31 on: May 24, 2007, 01:45:47 pm »
Diagnosed with 6x3x3 cm right side AN at age 25 in 1988. Another surgery pending for regrowith.
                     

            Eve
Right side AN (6x3x3 cm) removed in 1988 by Drs. Benjamin & Cohen at NYU (16 hrs); nerves involved III - XII.
Regrowth at the brainstem 2.5 cm removed by Dr.Shahinian in 4 hrs at SBI (hopefully, this time forever); nerves involved IV - X with VIII missing. No facial or swallowing issues.

Jim Scott

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Re: Age of AN patients: UPDATE with data so far
« Reply #32 on: May 24, 2007, 04:16:47 pm »
O.K., I'll play.....diagnosed with a 4.5 cm AN at age 63. 

Jim
4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

Jwh

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Re: Age of AN patients: UPDATE with data so far
« Reply #33 on: May 24, 2007, 07:24:38 pm »
Diagnosed at 26 with a 1.2 cm AN - surgery at 27. Regrowth discovered a couple of months ago at age 33 size 9 mm. 

At 28 years old tons of night sweats for about a year!  Went to the doctor couldn't explain it.
5/01  1.3 AN removed at NYU using Retrosig. Approach
2/07  Rediagnosed with Regrowth 8 mm (wait & watch mode)
1/09  1.4 AN removed at NYU using Translab (total tumor removal)

Cheryl R

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Re: Age of AN patients: UPDATE with data so far
« Reply #34 on: May 24, 2007, 07:48:12 pm »
    49 with right sided AN in 2001     1.2 cm     mid fossa
     51 with left sided AN in 2003       4mm but now 11 mm in Jan 2007 and W&W
     53 with right sided facial neuroma March 2006   translab        ? 2cm
                                           Cheryl R
                                                 
   
     
Right mid fossa 11-01-01
  left tumor found 5-03,so have NF2
  trans lab for right facial nerve tumor
  with nerve graft 3-23-06
   CSF leak revision surgery 4-07-06
   left mid fossa 4-17-08
   near deaf on left before surgery
   with hearing much improved .
    Univ of Iowa for all care

Pablo

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Re: Age of AN patients: UPDATE with data so far
« Reply #35 on: May 25, 2007, 03:12:21 am »
Diagnosed at age 41, 2.7 cm due to recurrent  sudden hearing  loss. Same symptom I had once 13 years ago and ignored.
2.5 cm x 3.0 cm  right side
FSR  7/2006
Cabrini Medical Center, NYC

Dealy

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Re: Age of AN patients: UPDATE with data so far
« Reply #36 on: May 25, 2007, 06:48:00 am »
NF2- Age 38-1.5CM -removed surgically- no problems in 1988- 2nd one Age 56-2.5 CM-FSr Radiation in 2006_Ron

cookiesecond

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Re: Age of AN patients: UPDATE with data so far
« Reply #37 on: May 25, 2007, 06:50:09 am »
I was 42 when diagnosed with 2+ cm An. I had surgery 5 months later.

chelsmom

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Re: Age of AN patients: UPDATE with data so far
« Reply #38 on: May 25, 2007, 08:32:42 am »
Daughter diagnosed last year at 17 years old- 6cm.  I have noticed that almost all the teens on this board have 4+ cm when diagnosed.  Just wonder why they are so young with such large AN's???     I think this would be a very interesting research project.       Michelle

webwrestler

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Re: Age of AN patients: UPDATE with data so far
« Reply #39 on: May 25, 2007, 10:26:46 am »
32, male, 2cm x cm, removed may 1, 2007 translab approach

elliemae

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Re: Age of AN patients: UPDATE with data so far
« Reply #40 on: May 25, 2007, 11:59:59 am »
Hi, I'm a newbie here...diagnosed at age 56 one year ago, 1.1 cm with small growth to 1.3 cm as of 4/07, so watching and waiting...
Originally discovered because I thought my hearing loss was related to my MS and had an MRI, which disclosed this wonderful addition to my ailments. (After one year, hearing is gone in the affected ear).

mema

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Re: Age of AN patients: UPDATE with data so far
« Reply #41 on: May 25, 2007, 04:01:17 pm »
Diagnosed at age 57, 8mm.  Hearing loss happened then, but I had bouts of vertigo for four years prior.  Even had an MRI (without contrast) at age 53 for the vertigo.  So did I have it then and thats what caused the vertigo?  I guess I'll never know.                             


                                                                   mema
6mm x 8mm left AN FSR 26 treatments Nov.-Dec.2005
MD Anderson Orlando, Fl.

Jeanlea

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Re: Age of AN patients: UPDATE with data so far
« Reply #42 on: May 25, 2007, 07:23:02 pm »
I was diagnosed at age 42 with a 3.5 cm tumor.  My only symptom was mild hearing loss in one ear.  No other noticable symptoms.

Jean
translab on 3.5+ cm tumor
September 6, 2005
Drs. Friedland and Meyer
Milwaukee, WI
left-side facial paralysis and numbness
TransEar for SSD

1wareagle

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Re: Age of AN patients: UPDATE with data so far
« Reply #43 on: May 25, 2007, 08:04:00 pm »
I was diagnosed with a 3.2cm AN at age 46 and 3 mts later had it removed by translab. I first had slight hearing loss, went to doctor with no luck. Two years passed and I started to get so dizzy at times. Went to another doctor and nothing found. Two more years passed and I went to another doctor to get a hearing aid for the one ear. That's when the doctor did a MRI and found the AN.

Ellis
Ellis- Age 50- Mississippi
3.2 cm AN Translab w/ BAHA Surgery
@ House Ear Clinic - LA - 01/04/07    Dr. Brackmann, Dr. Hilselberger, Dr. Stefan
Platinum weight in right eye-Dr. Roberts
Right side facial paralysis (slowly getting movements)

Jill Marie

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Re: Age of AN patients: UPDATE with data so far
« Reply #44 on: May 25, 2007, 11:41:00 pm »
I was diagnosed May of 1992 with a 1 x 0.5 x 0.5 cm mass.  I was 35 at the time.  They said it was an AN but the surgeon later found it to be a Facial Nerve Tumor. My hearing loss was first recorded in first grade so I had the tumor for at least 28 years!
Facial Nerve Neuroma removed 6/15/92 by Dr. Charles Mangham, Seattle Ear Clinic. Deaf/left ear, left eye doesn't water.