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Author Topic: MRI again yesterday  (Read 4155 times)

poppyy

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  • I have a 1.6 cm sized Neuroma diagonosed in 2008
MRI again yesterday
« on: November 17, 2009, 10:26:18 am »
Hi, had my second six month MRI yesterday at Mass Eye & Ear ..no further growth so now I can go a year before the next MRI / Does anyone else suffer from head aches since their diognosis ?
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wendysig

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Re: MRI again yesterday
« Reply #1 on: November 17, 2009, 10:29:23 am »
HI Poppy

I don't suffer from headaches but wanted to  congratulate you on your excellent MRI.  No growth is great news.  I hope you continue to get the same reports.

Wendy
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1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

poppyy

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  • I have a 1.6 cm sized Neuroma diagonosed in 2008
Re: MRI again yesterday
« Reply #2 on: November 17, 2009, 10:46:54 am »
Thanks Wendy , hope you are doing well also .
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NancyMc

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Re: MRI again yesterday
« Reply #3 on: November 17, 2009, 10:49:21 am »
Hi, Poppyy.
Who is following you at MEEI?  I had only hearing loss, a slight balance issue, and tinnitus.
You're in good hands at MEEI and MGH.
Please ask if you have any questions about McKenna, McCall, or Barker.  They were my physicians.
Glad you had no growth.  I remember those days.
Nancy
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Watch and Wait since 9/19/01
Increased from 1.1 x 1.9 to 1.9 x 1.9 cm as of 10/27/08
Right SSD, tinnitus, compensating balance
Dr. McKenna at Mass Eye and Ear and Dr. Barker at MGH
Translab April 8, 9 hours, 18 mm Tumor all gone SSD some facial weakness

novagirl

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Re: MRI again yesterday
« Reply #4 on: November 17, 2009, 12:45:20 pm »
Poppyy - great news re the MRI! I've been w&w since July, but had dizziness/facial tightness for about a year prior to diagnosis. No headaches.
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Right AN 10 x 10 x 7 mm - dx 7/28/09; w&w for three years
CK at Stanford October 2012 - Dr. Chang and Dr. Soltys
Oct'12: 15 x 14 x 10 mm
Oct'14: 12 x 6 x 5 mm

frank

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Re: MRI again yesterday
« Reply #5 on: November 17, 2009, 01:16:23 pm »
Hi Poppyy
Congratulations on your no-growth MRI.
I was in the W&W category for over 2-years. Never had any headaches. My only symptoms were: tinnitus, slight loss in hearing at certain frequencies, a perceived very minor balance problem. I also have problems where there is a lot of background noise. My AN ear seems to shut down in these instances.
Frank
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4/07 MRI 8x5x6 mm  AN, RS  
Partial hearing loss and tinnitus 
4/08 MRI 10x5x5 mm
No additional hearing loss
4/09 MRI 1.2 cm , 6mm in AP dia, small mushroom shaped component into CB angle cistern. No additional hearing loss
Gamma Knife 11/09 Univ Hosp GK Ctr, Syracuse
Dr Hahn & Woods

Rivergirl

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Re: MRI again yesterday
« Reply #6 on: November 17, 2009, 07:29:36 pm »
Good news on the no growth, I am in the middle of my full year of W&W, it has been good not think of going back in 6 months sort of a break from that but not the symptoms they don't go away.  Enjoy your year off.
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Diagnosed 6/2008
Right AN 2cmx8x9
Sub-Occipital at Mass General with Martusa and McKenna on 5/31/11
Right SSD, very little taste
I think I will make it!

Jim Scott

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Re: MRI again yesterday
« Reply #7 on: November 18, 2009, 05:36:48 pm »
Poppy ~

Congratulations on the no-growth MRI and the move to annual scans.  Unfortunately, in some AN patients, headaches do continue.  I hope yours will soon diminish and disappear.

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

Vivian B.

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Re: MRI again yesterday
« Reply #8 on: November 18, 2009, 08:45:12 pm »
Hi Poppyy,

Glad to hear that you have no growth. It is great news. I always suffered from headaches. The funny thing is that the Neurosurgeon said they have nothing to do with the AN.

I do get a lot of throbbing ear pain, the doctor didn't comment much on this. 

                 
Vivian
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CPA AN(most likely meningioma) 1.6cm by 1.5cm by 1.9cm diagnosed early March 09. Watch and Wait.

suboo73

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Re: MRI again yesterday
« Reply #9 on: November 24, 2009, 07:28:12 am »
Hi Poppy!

Congrats on the no growth MRI!
All of us in W & W like that.

I hope you can resolve your headaches - i haven't had to deal with any since my diagnosis.
Prayers for relief from those bothersome headaches.

Sincerely,
Sue
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suboo73
Little sister to Bigsister!
9mm X 6mm X 5mm
Misdiagnosed 12+ years?
Diagnosed Sept. 2008/MRI 4/09/MRI 12/09/MRI 1/21/11
Continued W & W
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