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Author Topic: From Manders blog - Day 4`from Her Dad`  (Read 3193 times)

LakeErie

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From Manders blog - Day 4`from Her Dad`
« on: May 15, 2012, 06:36:55 am »
Hello, we're experiencing a possible complication.  A spinal tap, labs and ct scan have been ordered to rule out meningitis. We appreciate your continual prayers for Amanda.
http://www.awkwardturtlesan.blogspot.com/
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4.7 cm x 3.6 cm x 3.2 cm vestibular schwannoma
Simplified retrosigmoid @ Cleveland Clinic 10/06/2011
Rt SSD, numbness, vocal cord and swallowing problems
Vocal cord and swallowing normalized at 16 months. Numbness persists.
Regrowth 09/19/2016
GK 10/12/2016 Cleveland Clinic
facial weakness Jan 2017

pjb

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Re: From Manders blog - Day 4`from Her Dad`
« Reply #1 on: May 15, 2012, 12:00:20 pm »
My thoughts and prayers are with her and your family.

Best Wishes,
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Diagnosed with a 1 cm. AN had Retrosigmoid
Approach surgery July of 2009, several problems after surgery.

LakeErie

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Re: From Manders blog - Day 4`from Her Dad`
« Reply #2 on: May 15, 2012, 01:07:11 pm »
Just to be clear, I was quoting Manders father who was posting on her blog ( see the link.) I can see now my post is confusing.
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4.7 cm x 3.6 cm x 3.2 cm vestibular schwannoma
Simplified retrosigmoid @ Cleveland Clinic 10/06/2011
Rt SSD, numbness, vocal cord and swallowing problems
Vocal cord and swallowing normalized at 16 months. Numbness persists.
Regrowth 09/19/2016
GK 10/12/2016 Cleveland Clinic
facial weakness Jan 2017

Jim Scott

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  • 1943-2020 Please keep Jim's family in your hearts
Re: From Manders blog - Day 4`from Her Dad`
« Reply #3 on: May 15, 2012, 02:14:16 pm »
Good thoughts and prayers for Amanda as she struggles with these unwanted complications. 

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

Suu

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Re: From Manders blog - Day 4`from Her Dad`
« Reply #4 on: May 15, 2012, 07:25:29 pm »
G'day Amanda
I wish you the best. I hope all of our hopes for your speedy recovery are boosting your esteem sky-high.

Lovenhugs,
Suu xxoo
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4cm Left side AN Translab August 18th 2010
Facial nerve not working
Nerve conduction Jan '11 Repeated 23rd May '11
SSD left side
5 ops in 6 weeks to fix CSF leaks
Tarsorrhaphy 9 Mar '11 Extended 26 Aug '13
Sling Thur 16 June '11
12/7 nerve graft 9 Feb '12

tx-anp

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Re: From Manders blog - Day 4`from Her Dad`
« Reply #5 on: May 16, 2012, 08:52:01 am »
Oh wow... I am so sorry to hear this!  Please let us know how she is doing as soon as possible.   :(
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2cm left side AN
Translab on 3/1/2012
No facial nerve damage, SSD

LizAN

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Re: From Manders blog - Day 4`from Her Dad`
« Reply #6 on: May 16, 2012, 09:33:25 am »
No update on her blog, as of yet.  I hope she's better now.
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8/20/2010 - 9mm AN on left side 
Fullness, tinnitus, mild hearing loss
2/20/2011 - 8mm
4/20/2012 - 12.4 mm
Moderate to severe hearing loss, LOUD tinnitus, deteriorating balance
Facial numbness and twitching, which subsided pre-surgery
Translab at House, 7/3/2012, Slattery and Schwartz
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