Don't neglect it so that it doesn't grow up, but if it's less than 3 cm, you can size it with a Kama Knife device.

I really don't have much to offer here except that I can listen. My acoustic neuroma is not nearly as big and has not caused nearly as much trouble. I also have not had surgery. But I did not want this message up here with you thinking you were all alone and no one was listening. Maybe someone else will have something more for you.

I had the symptoms of the tumor at the beginning of tinnitus. I gradually lost my hearing. In 2018, I went to the ear doctor and he told me that you lost the auditory nerve. You may have been exposed to high noise or it was inflammation. Two years later, I felt double vision and I went to the ophthalmologist and he told me that you have a simple syndrome.

And until before the discovery of the tumor, I had pressure in my head and an electric current was going down to the head of my face from time to time.

Then I went to the doctor on 25/11/2024 and did the tests

I have a tumor in my brain 5 cm in size on the left side

It's called vestibric acoustic neuroma

All these years, the doctors I reviewed did not think of performing an MRI for me and because of them the tumor grew and I lost my hearing

I underwent the operation at four o'clock in the evening 2024/12/5

And on 6/12/2024 in the evening, I came out of intensive care, and my family came near me and I talked to them

In 2025/3, I had physical therapy sessions on my face because the seventh nerve is stopped and my eyes are not tearing

A month ago I changed the therapist because I didn't feel comfortable with him

And on 25/5/28, I have the first session with an excellent therapist.

My feeling now and after 5 and a half months

Normal eye duplication

Walking is normal, but I still feel that I have weakness on my left side

The doctor told me this will go away gradually but slowly

And I have a slight tremor sometimes if I'm tired or I'm out of the house with my family and when I come back I feel a slight and now it's light I'm still sure it will go away because I'm sitting in my house

My interest in my eyes is very high, I put a sticker at night, moisten my eyes all day and wear sunglasses when I leave the house

And I spend most of my time at home

And now half of my face is paralyzed and the time has become 5 and a half months and I can't move it knowing that sometimes I feel some light sensations in my lips, cheeks and eyebrows

I asked my doctor on 2025/5/11 to take some vitamins such as D3, B1, B2 and B6

I wonder if my time is normal and when I feel the first movement in my face and improve the tears of the eye?

I HOPE YOU FIND ENCOURAGEMENT FROM THSES POSTS.

I am post op 6 month for total removal.of AN and transplant of a nerve. I chose to go into this on my terms.with a possative outlook. I chose to dye my hair blue and cut it short with a undercut shave so they didn't shave my head. Not only were.my doctors surprised the day if surgery but over the last 6 months it has been a mixed blessing I wouldn't change. I wanted a possative outlook. It causes.co.plete strangers to talk to me and lets.me explain why I did it on my terms. It has provided me with overwhelming support.

Initially my tumor was miss diagnosed and it got.larger over time.while putting together the right team.of doctors to perform the surgery. I'm now learning g many things prior to my dx may have been relat3d to it. Some of which has resolved. Some are ongoing. But I am.convinced that a possative look on what is a long road to recovery is the best way.to go. What ever you do to make that happen make it on your terms.be proud of what you are accomplishing. This is not an easy or quick fix and you have to keep posative for the long haul. My nerves prevented me from sleeping for about a month prior to surgery. The news was full of reports you could see the northern lights in my area. After a.month in Alaska and no northern lights, a pilot told me you see them.better by taking a picture. I spent most nights at 2 am standing in my back yard taking pictures of the Black sky. But once I looked at those pictures and could see the green and pink show up n my back yard. I suddenly had the idea someone higher up was looking out for me. I'm not an overly religious person but accepted any prayer anyone offered.me no.matter what they believed in and today I'm so glad I did. My Dr's were wonderful. I spend only one night in the hospital and things keep getting better. I am now on a journey to help.people feel good about what they are going through. I had a woman come up to me and tell me her story of her AN 15 yrs.prior and it was the best 15 min I could of asked for. If you need a pick.me up reach out and ask.for it. There are.people.out there who.want.to give suport and just don't know how. Best of luck and prayers for a.speedy recovery.

I am 6 months post surgical removal of a facial schwannoma with transplant of a nerve from my ear. Leading g up to my surgery. I was told worst case to expect. Had my nerves going insane. I couldnt sleep for weeks leading up to it. I had a wonderful team of surgeons at the University of Penn. My surgery lasted 12 hrs. Just prepare your family for a long wait. I on the other hand had a wonderful anesthesiologist and I never remember leaving g.preop and woke up to my husband giving me a kiss. With the best days sleep I ever had.

To give some back ground my AN needed to be completely removed and was causing palsy on the right side of my face and was.miss diagnosed for 6 months. Thanks to a great nurse practitioner she got me the correct diagnosis and to the correct doctors.  They told me to expect to be in the hospital 3 to 5 days and I would most.likely loose all hearing in the right ear. I was prepared for the worst. The hospital being 5 hrs drive one way from home, my husband would be staying at a local hotel. As it turned out, I lost no hearing they were able to avoid removing those bones and went under. I was discharged the following morning to recuperate at home. It's now 6 months later and they tell me it will take another 6 months before they can determine how much recovery will be co.plete. but so far things are.improving. I just wanted to reach out and try to ease the anxiety. If it wasn't for family and friends, I would t have gotten this far. I joined today to look at some other issues that may or may not be related, but my over all experience with my surgical team has been great. You have to go in with a good attitude and.possative outlook. I'm 56 and have 6 kids, so when I told them I was dying my hair blue for surgery, they thought it was cool. I have kept crazy colors since to keep my mood upbeat. I get lots of compliments to and it's a talking point for my situation but has lead to lots of outside support. Every month I change the color and do update photos to keep track. My surgeons love it. I shaved the underside of my hair to prevent them from. Making a mess of my hair style but it's been woth it. Hair goes back. You have to do what gets you in a possative outlook. One of the best thi gs that happened, I was waiting for a dr apt and someone who had surgery 15 yrs prior came up to me and Introduced herself to let me know I wasn't alone and that thi gs will get better. I'm trying g to pay it forward by speaking out and supporting those who need it. I wish you luck and the best recovery. Everyone is different but it does get better. I don't know if you are religious or not but I accepted every prayer anyone offered. I will say a prayer for you that you have a speedy recovery and the best.possible outcome. Best of luck.