NF-1, NF-2, Schwannomatosis

[Mary]

I found out by reading on a web site that Neurofibromatosis and AN were similar.   I got in touch with the NF Foundation (now called the Childrens Tumor Foundation) in New York, NY.   Many of the symptoms or the tumors are very similar. the only major difference is with NF you have more than one.Here's there web site   www.ctf.org.   It's a wonderful organization and they will help you any way they can.