Author Topic: Syl's surgery update  (Read 28491 times)

Jim Scott

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Re: Syl's surgery update
« Reply #120 on: August 09, 2008, 08:28:14 am »
Syl:

Just popping into your thread to add my good wishes for continued progress in your fairly rapid recovery.  I pushed myself when recovering and on hindsight, that was probably imprudent but paid off in a faster time frame for getting back to normal.  You seem to be doing all the right things and unlike me, not rushing it.  Your continued success in moving forward is very heartening to everyone following your progress.  Thanks for keeping us apprised and don't be concerned about returning to work.  I think you'll be more than ready.  :)

Jim
4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

wendysig

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Re: Syl's surgery update
« Reply #121 on: August 09, 2008, 09:27:57 pm »
Hi Syl,
Great news that you are feeling well enough to return to work woon and begin to return to a normal life again!  Working shorter days the first week is a good idea too.  It's probably best to push yourself, but not too hard.  Just remember to listen to your body as it will tell you what you need. 

Wendy
1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

MAlegant

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Re: Syl's surgery update
« Reply #122 on: August 10, 2008, 12:39:26 pm »
Hi Syl,
I'm joining Kate in the happy dance for you.  Yay!
M
3cmx4cm trigeminal neuroma, involved all the facial nerves, dx July 8, 2008, tx July 22, 2008, home on July 24, 2008. Amazing care at University Hospitals in Cleveland.

Syl

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Re: Syl's surgery update
« Reply #123 on: August 12, 2008, 10:34:46 am »
Good morning friends,

I went for almost 2 full days free of the nasty headaches. My head has felt like a headache wants to develop, but it doesn't. That is a major step forward in my healing process. This allows me to reduce my pain killer consumption. The headache that broke the 2-day streak went away without my having to apply any heat. However, it did require 400mg of Motrin.

I'm going for a walk before it gets too hot outside.

Syl
1.5cm AN rt side; Retrosig June 16, 2008; preserved facial and hearing nerves;
FINALLY FREE OF CHRONIC HEADACHES 4.5 years post-op!!!!!!!
Drs. Kato, Blumenfeld, and Cheung.

cindyj

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Re: Syl's surgery update
« Reply #124 on: August 12, 2008, 02:33:50 pm »
Great to hear you've had some headache-free days!  Know that's such a relief.

Hope you enjoyed your walk - we had an almost fall-like day here today.

Cindy
rt side 1.5 cm - Translab on 11/07/08 Dr. Friedman & Dr. Schwartz of House Ear Institute,
feeling great!

"Life consists not in holding good cards, but in playing well those you do hold."  Josh Billings

wendysig

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Re: Syl's surgery update
« Reply #125 on: August 12, 2008, 04:59:46 pm »
Hi Syl,

Glad to hear your headaches are getting better.  Another step forward and another small victory.

Wishing you continued victories on the road to wellness,
Wendy
1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

MAlegant

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Re: Syl's surgery update
« Reply #126 on: August 13, 2008, 07:35:12 am »
Two headache-free days feels like progress to me.  I will join you on your walk, only virtually.  I wonder what two dizzy AN'ers would look like walking together?   :D
Marci
3cmx4cm trigeminal neuroma, involved all the facial nerves, dx July 8, 2008, tx July 22, 2008, home on July 24, 2008. Amazing care at University Hospitals in Cleveland.

Debbi

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Re: Syl's surgery update
« Reply #127 on: August 13, 2008, 02:57:38 pm »
And, I'll totter along with you both!  I'm not dizzy, but my balance still sends me staggering around at times.  Kind of funny, actually.

Debbi, looking like a drunken pirate...
Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

NL

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Re: Syl's surgery update
« Reply #128 on: August 21, 2008, 12:25:52 pm »
Hi Syl,

I just realized this is the week you were going to go in to work for a few hours a day. I hope everyone was REALLY nice to you and that it wasn't too tiring, but it sounded like you were ready for it.

Please let us know how you're doing when you get a chance, but of course, after you've taken a refreshing nap!

Nancy
1.6 cm left AN diagnosed Oct. '07
1.9 cm on 2nd MRI, May '08
Retrosigmoid surgery at House Clinic/St. Vincent's on 8/6/08
(no post-op dizziness, nausea, facial or balance issues)
Thankful for a fantastic team of doctors - Dr. Rick Friedman, Dr. Marc Schwartz, & Dr. Michael Stefan

Syl

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Re: Syl's surgery update
« Reply #129 on: August 21, 2008, 02:08:13 pm »
Nancy,

Thanks for inquiring. I did return to work 5 hrs per day. It's been exhausting, but I think getting back to my routine will do me some good. It will help me feel more like normal as the healing continues. I had enough of being couped up at home. If it gets too much to handle, I can ease up on the work schedule or just take a day off.

I got a very good reception, not only because they got some help back, but there's something comforting about seeing that I'm alive.

Now it's time to think about taking that vacation I've been putting off all year.

Syl
1.5cm AN rt side; Retrosig June 16, 2008; preserved facial and hearing nerves;
FINALLY FREE OF CHRONIC HEADACHES 4.5 years post-op!!!!!!!
Drs. Kato, Blumenfeld, and Cheung.

NL

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Re: Syl's surgery update
« Reply #130 on: August 21, 2008, 06:34:51 pm »
Syl,

So glad you got a good reception! It's really good that you can ease up on your hours if you need to, but it sounds like you were really ready for this next phase.

I agree that you should definitely start thinking about that vacation!  8) Funny how these AN journeys make us re-evaluate the "important" things in life!   

Wishing you continued healing!

Nancy
1.6 cm left AN diagnosed Oct. '07
1.9 cm on 2nd MRI, May '08
Retrosigmoid surgery at House Clinic/St. Vincent's on 8/6/08
(no post-op dizziness, nausea, facial or balance issues)
Thankful for a fantastic team of doctors - Dr. Rick Friedman, Dr. Marc Schwartz, & Dr. Michael Stefan

MAlegant

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Re: Syl's surgery update
« Reply #131 on: August 21, 2008, 07:47:23 pm »
Hi Syl,
I'm glad you're getting back to work and I'm sure they missed you and are thrilled to see you're doing well.   I went in today for an hour, went to lunch with my boss  and  came home and went to sleep for over two hours! 

I am a true party girl!  You too?
Marci
3cmx4cm trigeminal neuroma, involved all the facial nerves, dx July 8, 2008, tx July 22, 2008, home on July 24, 2008. Amazing care at University Hospitals in Cleveland.

sgerrard

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Re: Syl's surgery update
« Reply #132 on: August 21, 2008, 08:08:02 pm »
Hi Syl,

I'm glad you have discovered that they didn't change the locks at work while you were gone.  ;)

You have been through a major medical event and very patient with your recovery; I think you are now entitled to a first class vacation anytime you want to go.  8)

Steve
8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

Syl

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Re: Syl's surgery update
« Reply #133 on: August 22, 2008, 10:59:07 am »
Steve,

About the locks...my FOB didn't work. And, I had to take a new photo for my badge, which is my FOB. Don't know how the photo got deleted from the system. Funny thing cause that's the photo that I had requested the obits clerk use if something should go terribly wrong with my surgery.

But, not to worry, everything is in order now.

Syl
1.5cm AN rt side; Retrosig June 16, 2008; preserved facial and hearing nerves;
FINALLY FREE OF CHRONIC HEADACHES 4.5 years post-op!!!!!!!
Drs. Kato, Blumenfeld, and Cheung.

Debbi

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Re: Syl's surgery update
« Reply #134 on: August 22, 2008, 11:03:29 am »
Syl--
So happy to read that you are back at work - that is definitely good for the psyche!  Just remember to take it easy...  ;)

Debbi
Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com