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Author Topic: Latest newsletter  (Read 9525 times)

leapyrtwins

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Latest newsletter
« on: December 16, 2008, 07:14:05 am »
Word on the street is that the latest edition of "Notes" is in the mail - and has even been received already by some  :o

I hear it's a great issue - no pun intended  ::)

Hope mine arrives soon,

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

tenai98

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Re: Latest newsletter
« Reply #1 on: December 16, 2008, 08:23:20 am »
I received mine yesterday. ;D
Jo
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14mmX11mmX11mm left ear
TRANSLAB 04/07/09 2cms at time of surgery
Dr. Benoit and Schramm, Ottawa Civic Campus
SSD ,some facial numbness
Baha surgery sept 22/09
residual tumor 13mmX7mmX8mm
2016 new growth.  25mmX21mmX22mm
cyberknife on June 7

Jim Scott

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Re: Latest newsletter
« Reply #2 on: December 16, 2008, 09:21:28 am »
Jan:

If 'Notes' has been published and mailed, I should have mine in, oh, about three weeks or so.  We'll see.  Thanks for the heads-up. 

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

lori67

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Re: Latest newsletter
« Reply #3 on: December 16, 2008, 10:09:33 am »
NEWS FLASH.....


I GOT MINE!!!!!

It's a Christmas miracle!!!!

Lori
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Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

Kaybo

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Re: Latest newsletter
« Reply #4 on: December 16, 2008, 10:16:30 am »
Lori~
You must have REALLY been good the last couple of months!!  Maybe they turned the list upside down and those of us that waited the longest last time are getting it 1st thing time?  I haven't received mine yet though...guess I haven't been as good as you have!   ;D

K 
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Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

mimoore

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Re: Latest newsletter
« Reply #5 on: December 16, 2008, 10:24:20 am »
I got mine today and I am in Canada!  ::) ::) ::)
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Retrosigmond surgery on June 4th, 2008 for an AN. 100% hearing loss and facial paralysis (was not prepared for facial paralysis). Size: 2.3 cm, 2.1 cm, 1.8 cm. some tumour remains along facial nerve. Pray for no regrowth. Misdiagnosed for 10 yrs.

Dan

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Re: Latest newsletter
« Reply #6 on: December 16, 2008, 10:49:33 am »
I got mine here in Germany on Friday.  I thought it always took so long to recieve mail from the USA but I guess not.  Info on the 19th National Symposium in Chicago is inclosed, sure wish I could come, my parents only live 2 1/2 hours south of Chicago.

Dan in Germany
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US Army Retired, age 51,  residing and working in Germany.
Retrosigmoid 21 Sept 07 left side 1.76cm AN, Prof. Mann, Uniklinik Mainz Germany

Cheryl R

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Re: Latest newsletter
« Reply #7 on: December 16, 2008, 01:30:55 pm »
My newsletter came today too.      Yeah! 
      I do not think the registration fee varies by dates as it does so much in the past.    Good way to do it.                 I hope those who may need help can get it via the scholarship fund.
     Iowa is in the middle of the next snow.          Only 3"-5" this time.   
                                         Cheryl R
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Right mid fossa 11-01-01
  left tumor found 5-03,so have NF2
  trans lab for right facial nerve tumor
  with nerve graft 3-23-06
   CSF leak revision surgery 4-07-06
   left mid fossa 4-17-08
   near deaf on left before surgery
   with hearing much improved .
    Univ of Iowa for all care

cindyj

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Re: Latest newsletter
« Reply #8 on: December 16, 2008, 02:48:15 pm »
Got mine yesterday and I was one of the last to get it last time like Lori - so maybe they did turn the list upside down this time.

cindy
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rt side 1.5 cm - Translab on 11/07/08 Dr. Friedman & Dr. Schwartz of House Ear Institute,
feeling great!

"Life consists not in holding good cards, but in playing well those you do hold."  Josh Billings

lori67

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Re: Latest newsletter
« Reply #9 on: December 16, 2008, 03:47:31 pm »
Cindy,

They must not have wanted us to complain this time!   ;D  I don't blame them one bit!! 

I am amazed that it made it to Germany before Chicago though!  Go figure!

Lori
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Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

Kaybo

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Re: Latest newsletter
« Reply #10 on: December 16, 2008, 04:43:16 pm »
Isn't it kind of ironic that the title of this thread is "LATEST newsletter" and we all talk and wonder WHO will be the one to get it the LATEST?  Maybe it will be the one who started this thread...just a thought... ;)

K
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Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

leapyrtwins

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Re: Latest newsletter
« Reply #11 on: December 16, 2008, 09:41:13 pm »
You may be right, Kay.  I started this thread and I've yet to see my newsletter.

Interesting it's made it all the way to Canada and Germany - and Tennessee - but not to Illinois yet  ::)

Perhaps the cold weather - or now the snow - has slowed it down.  Or, maybe like you say, I just haven't been as good as Lori lately  :D

Dan in Germany, wish you could attend the symposium; I'm looking forward to meeting as many "forumites" as possible.  Perhaps it's time to pay a visit to mom & dad.

Jan

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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

ppearl214

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Re: Latest newsletter
« Reply #12 on: December 17, 2008, 06:43:44 am »
what newsletter?  ???  ???  ???


 :'(
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"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

fbarbera

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Re: Latest newsletter
« Reply #13 on: December 17, 2008, 10:41:48 am »
Keep an eye out for my "Voyages" piece in this edition!  Hope everyone enjoys it.  Francesco
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lori67

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Re: Latest newsletter
« Reply #14 on: December 17, 2008, 11:27:47 am »
Francesco,

I thought it was an absolutely wonderful article you wrote!  I did enjoy it!  And you should put your picture on the forum - you're a cutie!   ;)

Lori
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Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.
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