Author Topic: Ok - now I am more than a little nervous ......  (Read 3556 times)

Denisex2boys

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Ok - now I am more than a little nervous ......
« on: October 08, 2008, 10:55:55 am »
Barring any emergencies I am confirmed for the 16th .... and I received this email .... OH MY look at the duration of the surgery????  :O  Is this typical .... it seems sooooo' long ........

We will confirm everything closer to the time.  Your surgery will start at 0800 therefore you will need to be at the Pre Admission Clinic for 0600.  Nothing to eat or drink from midnight the night before.   The surgery is expected to run until 1800.   You can expect to be in hospital for approximately 4-6 days.  Dr. Lownie has confirmed it will be a suboccipital approach
- Oct. 16/08 - 12 hour 'blob-ectomy' at LHSC in London, ON - Dr. Lownie and Parnes
- Some internal facial numbness (cheek, tongue, eye), SSD, headaches (getting better), dry eye, some balance issues..... but othwise AWESOME!

lori67

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Re: Ok - now I am more than a little nervous ......
« Reply #1 on: October 08, 2008, 11:06:23 am »
Denise,

Yep, that sounds about right.  My translab took 9 hours, so I wouldn't imagine a sub occipital approach would be any different.  Don't worry - it's normal - and you'll be asleep so you won't even know about it!  That's a good thing!

You're going to do great!  This will all be behind you before you know it!

Lori
Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

ppearl214

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Re: Ok - now I am more than a little nervous ......
« Reply #2 on: October 08, 2008, 11:56:43 am »
Hey Denise,

I don't know if my huggles will help... or any words of encouragement will help.... but, what may help is knowing that me (and all of us here) are here for you.... and we're cheering you on... and are right beside you to help hold you up.  You can do it... and gain strength from us all..... and if that doesn't work... I'll send over Queenie Beanie "toots" as they are back at work, healing the gang around here! :)

We're here for ya!
xo
Phyl
"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

Denisex2boys

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Re: Ok - now I am more than a little nervous ......
« Reply #3 on: October 08, 2008, 02:08:09 pm »
Thank you .......

I was just reading some of the posts about the 'traveling scarf' and I just had to chuckle .... I go to Curves for Women and their Fall clothing line came in - - one thing is a comfy, cozy, snuggly, LEOPARD print robe ..... my mother-in-law ordered it for me for my hospital stay .... and I see that the 'travellng scarf' is a funky leopard print as well - - it must be KARMA - and I will take it that my robe is a good luck sign :)
- Oct. 16/08 - 12 hour 'blob-ectomy' at LHSC in London, ON - Dr. Lownie and Parnes
- Some internal facial numbness (cheek, tongue, eye), SSD, headaches (getting better), dry eye, some balance issues..... but othwise AWESOME!

Kaybo

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Re: Ok - now I am more than a little nervous ......
« Reply #4 on: October 08, 2008, 02:27:30 pm »
Denise~
My surgery was14 hours so I know they can run long, but that way they can be thourogh!  I know you will do great...so glad you finally got a date!

K
Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

cindyj

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Re: Ok - now I am more than a little nervous ......
« Reply #5 on: October 08, 2008, 03:03:56 pm »
Hey Denise!

Yes, the length does sound scary, but all of these AN removals seem to take rather a long time.  But, as Lori said, you'll be asleep and it will seem as though no time went by. 

We'll be cheering you on next week!

Cindy
rt side 1.5 cm - Translab on 11/07/08 Dr. Friedman & Dr. Schwartz of House Ear Institute,
feeling great!

"Life consists not in holding good cards, but in playing well those you do hold."  Josh Billings

Jim Scott

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Re: Ok - now I am more than a little nervous ......
« Reply #6 on: October 08, 2008, 03:17:54 pm »
Denise:

Not to worry.  As many others have correctly stated, the hospital e-mail instructions sound perfectly normal, including the 'no food or drink after midnight' and 6 A.M. arrival time.  My surgery was retro and lasted just under 9 hours.  I was in hospital for 5½ days. 

Although 10 hours is a long time to be in surgery, AN removal is a very slow, delicate operation and cannot be rushed in any way - and who would want them to?  The good news is that you won't be conscious during the time the surgery takes, whether its 5 hours or 10.

Remember that many people have gotten through this and, as Steve likes to say, the first few days post-op 'don't count'.  :) 

Jim
4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

MAlegant

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Re: Ok - now I am more than a little nervous ......
« Reply #7 on: October 08, 2008, 03:46:44 pm »
Hey Denise,
They told me to be prepared for that length of time but it ended up taking far less time. I think they just want you to be prepared. Also, they do a lot of stuff after you are out but before they begin the procedure in terms of getting you hooked up to things etc, so I wonder if that accounts for some of the time.  Don't worry, it will be what it will be and you will be fine.  I took a robe to the hospital as well and of all the things I took that ended up being useless, the robe was essential as I was determined to walk the halls in order to get home.  All best, Marci
3cmx4cm trigeminal neuroma, involved all the facial nerves, dx July 8, 2008, tx July 22, 2008, home on July 24, 2008. Amazing care at University Hospitals in Cleveland.

wendysig

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Re: Ok - now I am more than a little nervous ......
« Reply #8 on: October 08, 2008, 06:25:05 pm »
Hi Denise,
I have to say I know it sounds like a long time and I have to agree with Marcii.  Set up pre-op takes about an hour according to my doc and this is after all brain surgery.  Very delicate, meticulous surgery, not something you'd want anyone to rush through.  My surgery itself took 7 1/2 hours and I had translab, add another hour for setup and then I understand it was two hours after that that my husband, sister and sister-in-law were allowed to see me for about ten minutes.  That was it for the day for visitors and I slept on and off for the rest of the  night.  I remember getting up to ICU, and  being woken up a couple of times, but nothing more than that until the next day.

Wendy
1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

sgerrard

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Re: Ok - now I am more than a little nervous ......
« Reply #9 on: October 09, 2008, 12:11:12 am »
Hi Denise,

Nice to see you back, hope you had a good summer. Now you have a surgery date - and I note that it is on the calendar. Since you have waited this long, what's 10 hours in surgery?  Jim is right, I do like to say that the first 3 days after surgery don't count. It will an unusual week for you, no doubt, but you will make it through fine, and we will be with you every step of the way.

Steve
8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

calimama

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Re: Ok - now I am more than a little nervous ......
« Reply #10 on: October 09, 2008, 09:41:24 am »
Hi Densie...

Sorry i meant to reply sooner...
I know your surgery is just around the corner, i think that's great so you can get the treatment out of the way and move on with your life. Don't worry, it's really not soo bad. I hope your surgery is quick and easy, and you get a private room, and get released fast as it's much better to be home (although those first few days in the hospital were a much needed break from being mommy). Happy thanksgiving to you and your family. Enjoy the great long weekend weather!

Trish in Toronto
Left 2.9cm CP Angle AN discovered Jan 2008. Retrosig surgery June 2, 2008 Toronto, Canada. Facial paralysis and numbness, double vision (4th nerve), SSD. DV totally recovered in 4th month; palsy started to recover slowly around month 7. Had twin boys 13 months after surgery. Doing great.

pwatts

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Re: Ok - now I am more than a little nervous ......
« Reply #11 on: October 13, 2008, 06:22:04 pm »
 I had suboccipital craniatomy in aug of 2000, if I have any advice for you it would be as soon as you can get out of bed and walk. I guess we have a choice , lay around and complain about it , or get our butt out of bed and move on . Im a high school teacher and baseball coach , sure its hard sometimes , but i have to constantly push myself... itll be ok and you can move on   

pwatts

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Re: Ok - now I am more than a little nervous ......
« Reply #12 on: October 13, 2008, 06:29:05 pm »
 mine took 11 hrs

Kate B

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Re: Ok - now I am more than a little nervous ......
« Reply #13 on: October 13, 2008, 06:42:50 pm »
Hi Denise,

I had to be at the hospital early, but as others have noted there is prep time and waiting time.

All the best,

Kate

Kate
Middle Fossa Surgery
@ House Ear Institute with
Dr. Brackmann, Dr. Hitselberger
November 2001
1.5 right sided AN

Please visit http://anworld.com/

mrgarlic

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Re: Ok - now I am more than a little nervous ......
« Reply #14 on: October 13, 2008, 06:57:29 pm »
Greetings Denise, After a guy has had as many surgeries as I have, you look for the fun side when never you can. So here is my trick. I have been self employed for many years making BBQ sauce. The bottles make great bribes and gifts. I tuck a few bottles under my blanket. When I arrive in "the room" I hand them out. Makes for a great laugh. I also ask for a favor. Ask if they will let you savor the anathesia for a bit befor you go night night. It's a great high, and it's leagal. Bring in some jam or???????? Maybe Im'e crazy but I have fun,,,,,,,,,,,,,,,,,,,,,Larry
I am not the person I used to be,
 I am becoming the pereson I am.

AN surgery 2004- Trigeminal Neuroma  surgery scheduled    Nov 2oth 2008