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Author Topic: Does It Ever End?  (Read 5344 times)

terisandler

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Does It Ever End?
« on: September 17, 2013, 08:29:15 pm »
So, I have had an earache in my AN ear for over a week.  I contacted my otologist's office last Thursday and his opinion was allergies, gave me an Rx for Flonase.  I have been taking antihistamines for weeks and started Mucinex when the ear first started to hurt in case it was fluid in my ear (been there, done that in the past).

Today, all other allergy type symptoms are gone but the earache persists.  I mentioned it to my physical therapist at balance therapy and he strongly suspects it is migraine headaches manifesting as ear pain.  Waiting for the otologist to decide who I need to see for this - him, my PCP, or another type of specialist.  It's always something! :o :o
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3/25/13- dx 18x11x14 mm AN, hearing loss in right ear x 5+ years, 5 sessions of CK completed May 2013, now a "post toastie".  Follow up MRI 4/14/14 - 15x19x11 mm. Stable with some signs of necrosis.
 Yippee!

ppearl214

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Re: Does It Ever End?
« Reply #1 on: September 18, 2013, 07:48:56 am »
teri,

saw your noted on FB before this. I responded on FB.  Hang in there!

Phyl
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cindyjarrett

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Re: Does It Ever End?
« Reply #2 on: September 18, 2013, 11:21:49 am »

Four months after I had gamma knife, I also had ear pain that felt like an earache.  Then I began to have shooting pains all on the an side.  Doctor put me on a steroid.  First one did not work.  I was put on a second stronger steroid, and it worked.  I have had no further problems and am eleven months out.  My doctor said I was having a little bit of swelling that was causing the symptom.

Good luck. 
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Diagnosed 8/9/12 with an on left side
19 mm x 17 mm x 13 mm
tinnitus with high pitch hearing loss
Will have gammaknife at UVA with Dr. Sheehan on 10/12/12
Trusting in God

jaylogs

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Re: Does It Ever End?
« Reply #3 on: September 19, 2013, 03:17:20 pm »
Ah yes, lovely headaches...aren't they grand? I hope you get some resolution and start feeling better Teri! Let us know how it goes!
Jay
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8.1mm x 7.8mm x 8.2mm AN, Left Ear, Middle Fossa surgery performed on 12/9/09 at House by Drs. Brackmann/Schwartz. Some hearing left, but got BAHA 2/25/11 (Ponto Pro) To see how I did through my Middle Fossa surgery, click here: http://www.caringbridge.org/visit/jaylogston

terisandler

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Re: Does It Ever End?
« Reply #4 on: September 19, 2013, 03:22:48 pm »
I have an appointment with the neurontologist on Monday morning.  To be continued...
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3/25/13- dx 18x11x14 mm AN, hearing loss in right ear x 5+ years, 5 sessions of CK completed May 2013, now a "post toastie".  Follow up MRI 4/14/14 - 15x19x11 mm. Stable with some signs of necrosis.
 Yippee!

MDemisay

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Re: Does It Ever End?
« Reply #5 on: September 19, 2013, 09:32:43 pm »
Teri,

Too soon to tell! 6 months out symptoms normally get worse but then as time goes by about a year or so they should start dimishing as the dead tissue shrinks. The good thing Is IT DOES GET BETTER! Hang in there you've got a ways to go yet! Meditation helps best at least that's what I've found!

Mike
PS.
I had GK radiation. Results may vary depending on treatment modality! Hang in just the same! PM me if you need to!
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1974 - Dr. Michelson  Colombia Presbyterian removal of 3 Arterio Venous Malformations
2004- Dr. Sisti  NY Presbyterian subtotal removal of 3.1 cm AN,
2012 - June 11th Dr. Sisti Gamma Knife (easy-breasily done)"DEAD IRV" play taps!
Research, research, research then decide and trust in God's Hands!

terisandler

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Re: Does It Ever End?
« Reply #6 on: September 20, 2013, 09:36:18 am »
Thanks, Mike. 

I knew about the delayed reaction for symptoms when radiation is involved and I very strongly suspect ithe earache is just another side effect and not a migraine that is lasting almost 2 weeks.  Patience is definitely a virtue when it comes to an AN!
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3/25/13- dx 18x11x14 mm AN, hearing loss in right ear x 5+ years, 5 sessions of CK completed May 2013, now a "post toastie".  Follow up MRI 4/14/14 - 15x19x11 mm. Stable with some signs of necrosis.
 Yippee!

terisandler

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Re: Does It Ever End?
« Reply #7 on: September 23, 2013, 04:17:13 pm »
I saw the neurotologist this morning.  His conclusion is the earache and other symptoms are related to post CK growth and nerve irritation caused by the radiation.  The vestibular therapist ordered computerized dynamic posturography testing.  Scheduled October 1.
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3/25/13- dx 18x11x14 mm AN, hearing loss in right ear x 5+ years, 5 sessions of CK completed May 2013, now a "post toastie".  Follow up MRI 4/14/14 - 15x19x11 mm. Stable with some signs of necrosis.
 Yippee!

terisandler

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Re: Does It Ever End?
« Reply #8 on: September 23, 2013, 06:43:44 pm »
That should be post CK swelling, not growth.

I think this depicts the test I will be taking on 10/1. 

http://www.youtube.com/watch?v=HT1xe4JaV7w
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3/25/13- dx 18x11x14 mm AN, hearing loss in right ear x 5+ years, 5 sessions of CK completed May 2013, now a "post toastie".  Follow up MRI 4/14/14 - 15x19x11 mm. Stable with some signs of necrosis.
 Yippee!
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