Author Topic: Catlover´s Postie Story  (Read 30602 times)

cin605

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Re: Catlover´s Postie Story
« Reply #135 on: June 21, 2009, 08:38:09 am »
lol
 ;D
2cm removed retrosig 6/26/08
DartmouthHitchcock medical center lebanon,N.H.
43yrs old

suboo73

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Re: Catlover´s Postie Story
« Reply #136 on: June 22, 2009, 05:02:18 am »
Hi Helene!

I continue to read your updates - sounds like you are doing very well!
Now it is time for summer vacation.  Are you going away for vacation?

All my best to you and your family!
Sincerely,

Sue



suboo73
Little sister to Bigsister!
9mm X 6mm X 5mm
Misdiagnosed 12+ years?
Diagnosed Sept. 2008/MRI 4/09/MRI 12/09/MRI 1/21/11
Continued W & W

Lilan

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Re: Catlover´s Postie Story
« Reply #137 on: June 22, 2009, 06:45:31 am »
Belatedly -- I had the same issue with feeling like my non-affected nostril was a little runny when I brushed teeth, had a hot drink or ate something. So I specifically asked if a leak would show up on only the opposite side and Dr. Stefan said he's never seen that happen, so I stopped worrying about it. (Also, it was clearly a reaction to a stimulation, whereas a leak they said would be a more constant drip, like a faucet.) You may be right that the AN side is drier so the other side just seems more noticeable!

ETA: So glad you are doing well and biking. Your balance is not done improving at a month, more progress to come I'm sure!

Facial nerve hemangioma. Probable dx 7/2008 confirmed 4/2009. Combo middle fossa and translab to remove the blood vessel malformation and snip ruined hearing and balance nerves by Drs. House and Brackmann @ House 6/2009. Doing great!

largecat

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Re: Catlover´s Postie Story
« Reply #138 on: June 24, 2009, 02:03:30 pm »
Hello dear wife!

Glad to hear you are still improving. Now that I have been away two days you have had plenty of time to do the exercises so I hope you are in good condotion when I get home, and that you will take good care of your husband.  I'm on the train now.. one hour to go. You know you should ask your friends here when is is normal to do you-know-what after the surgery - but I can't see the question being asked anywhere? Am I right that it is normal to start you-know-what about the same time as one start vacuuming?


 ;D ;D ;D

For new readers: Dont worry - it's just for fun! The folks here are so easy to make upset :)  But they know me - so I guess it will not make any big impact...  Keep up the good work - this forum does a lot of good for many people (including me...!

 
/mats  - "catlovers" husband

NancyMc

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Re: Catlover´s Postie Story
« Reply #139 on: June 24, 2009, 02:14:31 pm »
Six months should do it, Mats!   ;)
Watch and Wait since 9/19/01
Increased from 1.1 x 1.9 to 1.9 x 1.9 cm as of 10/27/08
Right SSD, tinnitus, compensating balance
Dr. McKenna at Mass Eye and Ear and Dr. Barker at MGH
Translab April 8, 9 hours, 18 mm Tumor all gone SSD some facial weakness

CHD63

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Re: Catlover´s Postie Story
« Reply #140 on: June 24, 2009, 03:15:57 pm »
Well, well, well ...... men are the same the world over!! :o   ;D

Clarice
Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

Keri

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Re: Catlover´s Postie Story
« Reply #141 on: June 24, 2009, 09:47:26 pm »
if YOU do the vacuuming (mats) maybe she'll do the ...  :o   ;)
1.5 left side; hearing loss; translab scheduled for 1/29/09 at Univ of MD at Baltimore
My head feels weird!!

sgerrard

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Re: Catlover´s Postie Story
« Reply #142 on: June 25, 2009, 12:36:03 am »
I would suggest trying flowers, Mats. While there is no guarantee, they seem to produce a good return on investment. 8)

Steve
8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

Lilan

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Re: Catlover´s Postie Story
« Reply #143 on: June 25, 2009, 07:30:35 am »
Dr. Stefan's handout mentions this topic: He says "Please wait till you leave the hospital!"

Facial nerve hemangioma. Probable dx 7/2008 confirmed 4/2009. Combo middle fossa and translab to remove the blood vessel malformation and snip ruined hearing and balance nerves by Drs. House and Brackmann @ House 6/2009. Doing great!

Jim Scott

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Re: Catlover´s Postie Story
« Reply #144 on: June 25, 2009, 03:25:43 pm »
Mats (and Helene) ~

I understand that the one-month surgery 'anniversary' is a good time to 'celebrate' a spouses recovery.  We considered it to be 'therapy'.  Assuming a complication-free recovery, as Helene has enjoyed, everything is pretty well healed and the only issue by then is fully regaining balance - which only counts when in a vertical position.  ;)  Dinner out is also good 'therapy'.

Jim
4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

cin605

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Re: Catlover´s Postie Story
« Reply #145 on: June 25, 2009, 08:10:04 pm »
I know you will have a better shot once the the steroids wear off! ;D
2cm removed retrosig 6/26/08
DartmouthHitchcock medical center lebanon,N.H.
43yrs old

catlover

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Re: Catlover´s Postie Story
« Reply #146 on: July 21, 2009, 04:26:51 pm »
Hi,
Oh, my dear Mats! I'm getting embarrased! I'm glad that most people on the forum know you by now!

Hi everyone,
It's been a long time since I logged in. I don't know what has happened to me! I've just had (and still have) summer vacation and I haven't been away, but I've been with the family, seeing friends, taking care of the cat (you know the cat is important to me!  ;)) taking long walks in the woods and only been thinking of myself and about recovering as much as I can. Well, I've been thinking a little about Mats as well ...

I'm feeling very well and I feel like my balance is back at about 90% now. I don't hear very much on the AN ear, but that's not a big problem, anyway. I think life is back to normal and I'm beginning to long for my pupils, my collegues and the school. On the 13th August I'll see one of my surgeons. It's the first follow-up since surgery, but since I'm feeling "perfect" I hope everything is ok.

Summerhugs to all of you Helene  :D
AN found in February, 2006, size 0,8 cm
Surgery 20th May, 2009, retrosigmoid approach
SSD and balance issues
Forever grateful to Dr Siesjo and Dr Kahlon, University Hospital of Lund, Sweden
Two AN:s found 1st March, 2016
Waiting for GK

NancyMc

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Re: Catlover´s Postie Story
« Reply #147 on: July 21, 2009, 04:57:20 pm »
That is just what we like to hear  ::) !
Carry on with life.
Watch and Wait since 9/19/01
Increased from 1.1 x 1.9 to 1.9 x 1.9 cm as of 10/27/08
Right SSD, tinnitus, compensating balance
Dr. McKenna at Mass Eye and Ear and Dr. Barker at MGH
Translab April 8, 9 hours, 18 mm Tumor all gone SSD some facial weakness

CHD63

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Re: Catlover´s Postie Story
« Reply #148 on: July 21, 2009, 06:31:40 pm »
Helene .....

Really glad to hear you are continuing to do so well.  Enjoy the rest of your summer vacation ...... and then it will be so good to be back with your students, teacher friends, etc.

Clarice
Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

Keri

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Re: Catlover´s Postie Story
« Reply #149 on: July 21, 2009, 08:21:43 pm »
Hi Helene,
I was wondering about how you all were doing. Glad things are going well!
Have a great rest of the summer.
Keri
1.5 left side; hearing loss; translab scheduled for 1/29/09 at Univ of MD at Baltimore
My head feels weird!!