sissyn

How did the MRI go?

How are you doing now? I hope things are starting to look up for you. I can totally relate—I wasn’t able to work for a couple of months either, and it really threw me off. During that time, I mostly just stayed home, watched way too much TV, and oddly enough, spent a surprising amount of time chatting with ea sports customer support because some of my channels and services kept acting up. It’s funny how those little tech issues can become your biggest distraction when you’ve got too much time on your hands. Hopefully, things are getting back on track for both of us.

thank you all for validating that I'm not losing my mind.  Counting down the days for a resolution whatever that may be.  Thank you

Hi Sissyn,

I had facial twitches related to my AN, little tiny twitches that were not disruptive or noticeable, except to me. These were a few seconds at a time, often for a period of day. They came and went for two years of watch and wait.

I also had little twitches around my eye on the AN side, and numbness (sort of) around that side of my mouth and tongue. Same sort of frequency as above.

Surgery relieved all of them. I have the tiniest of all former twitches sometimes below that eye, but I consider it a great reminder of a successful outcome, honestly.

My Acoustic Neuroma was on the Vestibular nerve, and it was not originating on the facial nerve--but it was "bothering" the facial nerve before surgical removal. (That's my non-medical description.)

I hope your consult went well--and I hope you find relief soon.

Best,
Skier

The last two days my left eye has been twitching on/off for no particular reason. I have the facial tingling, like I've been shot with Novocain waiting for dental treatment.  This tingling comes and goes which I'm used to, but this eye thing is not something I want to get used to.  Anyone else have this issue?  I see the neurosurgeon on June 6th to determine next steps.