Author Topic: Cindys Nerve Ablaision Experience....11/2010  (Read 57942 times)

cin605

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Re: Cindys Nerve Ablaision Experience....11/2010
« Reply #90 on: January 14, 2011, 11:23:31 am »
Yesterday was a fall down day.....i tipped over like 5 times w/o warning.....Today major pressure on my head .....no pain though.
I am extremly nauseous and sensitive to smell.....eating saltines and TRYING to rest.Its not really  easy think since i really want to upright and moving....Seriuosly contemplating ENT visit....I kno that they are going to want a audio work up and MRI...scared to find out....i am expierencing symptoms of pre-sergury madness.Note all this is not invoving pain.. :P
2cm removed retrosig 6/26/08
DartmouthHitchcock medical center lebanon,N.H.
43yrs old

Mei Mei

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Re: Cindys Nerve Ablaision Experience....11/2010
« Reply #91 on: January 14, 2011, 03:28:26 pm »
Don't be scared, Cindy.   After all, Knowledge is power and you are powerful.   Stop contemplating a visit and go.  It's already 4:30 on a Friday afternoon.   What if something happens on the weekend you'll end up in the ER where they don't know you.   Just get up and go.
Hugs,
Mei Mei   :P
1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

cin605

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Re: Cindys Nerve Ablaision Experience....11/2010
« Reply #92 on: January 21, 2011, 02:04:12 pm »
Better day!Relaxed no balance issues...ears clear...look i learned how to put a pic on my profile.. ;D
This is me today!
2cm removed retrosig 6/26/08
DartmouthHitchcock medical center lebanon,N.H.
43yrs old

Jim Scott

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Re: Cindys Nerve Ablaision Experience....11/2010
« Reply #93 on: January 21, 2011, 03:06:22 pm »
Hi, Cindy ~

Thanks for the update.  I'm glad to learn that you're having a better day!  Your avatar photo looks good but seems to be just a little too large for the space.  We'd like to see a bit more of you!  :)

Jim
4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

Mei Mei

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Re: Cindys Nerve Ablaision Experience....11/2010
« Reply #94 on: January 21, 2011, 03:55:00 pm »
That's great.   Must have been some sort of ear infection.   Hope you're better health continues ...

I still haven't figured out how to get the picture on here.
 :P
Mei Mei
1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

cin605

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Re: Cindys Nerve Ablaision Experience....11/2010
« Reply #95 on: January 21, 2011, 04:17:23 pm »
Do you have photobucket meimei?
I will work on it Jim!
2cm removed retrosig 6/26/08
DartmouthHitchcock medical center lebanon,N.H.
43yrs old

Mei Mei

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Re: Cindys Nerve Ablaision Experience....11/2010
« Reply #96 on: January 21, 2011, 08:24:33 pm »
No, I don't.   I have Picasa on MacBook.   I also have Picasa on Dell.   I'll check out photobucket.
MM
1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

cin605

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Re: Cindys Nerve Ablaision Experience....11/2010
« Reply #97 on: January 23, 2011, 12:33:54 pm »
Crazy muscle spasms today....feel like my head is shaking no,no....put up w/ it for while and just took two tizanidines and 1/2 of percocette.
calling Dr tomorow can not live my life being crappy %85 of the time.Grrrrrrrrrrrrrr.
2cm removed retrosig 6/26/08
DartmouthHitchcock medical center lebanon,N.H.
43yrs old

Mei Mei

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Re: Cindys Nerve Ablaision Experience....11/2010
« Reply #98 on: January 23, 2011, 02:56:01 pm »
Cindy,
These are not good signs and percocette cannot cure these strange symptoms.   I wish you would go up to Dartmouth.
Mei Mei
1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

cin605

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Re: Cindys Nerve Ablaision Experience....11/2010
« Reply #99 on: January 25, 2011, 10:40:21 am »
O.K. MeiMei....I made an appointment w/ my ENT who first diagnosed tumor....scheduled for audio work up and visit w/ Dr.Anderson after....Hope to get answers. ???
2cm removed retrosig 6/26/08
DartmouthHitchcock medical center lebanon,N.H.
43yrs old

Mei Mei

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Re: Cindys Nerve Ablaision Experience....11/2010
« Reply #100 on: January 25, 2011, 05:31:11 pm »
 ;D   OK, good.  Now I feel better.   When is the appointment?
Is Dr. Anderson your surgeon or the ablation doc?

Mei Mei
1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

cin605

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Re: Cindys Nerve Ablaision Experience....11/2010
« Reply #101 on: January 26, 2011, 03:39:50 pm »
Dr.Andersen is my local ENT......He is the one that discovered my tumor,He will do a full audio work up and then see me directly after.
Went to spine specialist today and the switched me from gabepenton to Lyrica and gave me a perscription for Skelexin.
Anyone try these?They also want to set me up w/ a tens unit.
GrrGrrGrr.....On...and....On.
Discusing posibility of Botox
2cm removed retrosig 6/26/08
DartmouthHitchcock medical center lebanon,N.H.
43yrs old

Mei Mei

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Re: Cindys Nerve Ablaision Experience....11/2010
« Reply #102 on: January 26, 2011, 05:13:10 pm »
Hi Cindy,
I was given Vicodan with Skelentin last November when I broke the two ribs helping my father.   It was OK.   It helped the pain for the broken ribs but nothing, no nothing helps the pain for the neck and the skull.   They gave me morphine in the ER and that also helped the ribs but not the skull.   Maybe they'll help you prevent the headaches from coming on.

My rheumatologist has had me on Voltaren for preventing headaches, but it's supposed to give you heart damage or a heart attack, so I'm not staying on it too long.   It's not preventing the daily headaches, but I didn't have one last night.   Had three the night before.

About the TENS Unit.   I had asked for one back last spring from my PT and she said she was going to bring it up but then found out that you can't have one if you have a Titanium Mesh.   You had better run this information by the doctor before he orders you one.   I wouldn't want you to have ill effects from a TENS Unit because of the Titanium Mesh.

Not all doctors know this.   There were two doctors in Cleveland Clinic that were going to send me a script for a TENS Unit.   So many bad stories from Cleveland.

Hugs and hope you're not having the same storm we are in Maryland!
Mei Mei
1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

cin605

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Re: Cindys Nerve Ablaision Experience....11/2010
« Reply #103 on: January 27, 2011, 08:23:41 am »
I will have to inquire more about the Tens Unit....I thought there were several people here that have used it.
My physical Therapist used it on me also.Hmmm..
2cm removed retrosig 6/26/08
DartmouthHitchcock medical center lebanon,N.H.
43yrs old

Mei Mei

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Re: Cindys Nerve Ablaision Experience....11/2010
« Reply #104 on: January 27, 2011, 08:43:28 am »
Then I don't know why my PT didn't want to give it to me.

We had a terrible snowstorm last night, lost power and heat around 5pm.  Thunder and lightening too.   Tree branches in front of the house are fallen on the front lawn.   Got to Barnes and Noble and am sending messages and charging my cell phone.   No land lines either.   We have gas heat but I guess the pilot light went out.   Trying to get the plumber on the phone but the line is busy busy busy.   Got to get the pilot light back on or we will have fumes.
Will call the gas company.

Mei Mei
1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh