Just curious. I had GK in Denver in Oct. 2008. I have received 4 follow-up questionnaires from the GK center already. I am not sure what they are doing with the data. I need to ask. Since the center has only been in operation since 2004, they obviously don't have any long term data yet, and I'm not sure if they are sending the data to Pittsburgh (seems like they should). My doctor said he gets his research data from Pittsburgh....which is the "go to" place for GK (as Stanford is to CK). I know one person on this board who has not gotten any follow-up questionnaires from Pittsburgh where she had her GK. That seems disturbing to me. I mentioned this briefly to my doctor, and he just said, "huh!" He was in a hurry that day so I didn't get into it with him. I plan to ask him on my next visit.
Have any of you received any follow-up questionnaires from Pittsburgh or the centers where you had your GK (or CK if you want to chime in)?
Nancy
