Author Topic: Post-operative headaches/pressure  (Read 9613 times)

Mei Mei

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Re: Post-operative headaches/pressure
« Reply #15 on: May 27, 2010, 07:16:20 am »
Headache so bad by as early as 9 pm last night that I almost went to the ER in an ambulance but toughed it out.   Took 4 Motrin, 2 Tylenol, added Aleve to the Mix, and waited.   then two hours later added two more Motrin.   Finally it eased up.   Can't wait for this neurologist appointment on June 8th.   June 14th is for the BAHA at Hopkins, but am going to hold off on that with all these headaches I just don't want any more surgery and do as little invasive things as possible right now.   Just rest and take care of this headache issue.   Have to get to the bottom of this.   They have to help me and all they offer me at Hopkins right now is the BAHA.

Mei Mei
1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

Jim Scott

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Re: Post-operative headaches/pressure
« Reply #16 on: May 27, 2010, 12:38:18 pm »
Mei Mei ~

I'm so sorry to learn about these horrific headaches you're experiencing.  I think you're wise to postpone the BAHA surgery for now.   Of course I hope your appointment with the neurologist will bring you some answers.  Meanwhile, for what its worth, know that you'll be in the thoughts and prayers of many, including me. 

Jim
4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

Mei Mei

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Re: Post-operative headaches/pressure
« Reply #17 on: May 27, 2010, 01:32:10 pm »
Thank you so much, Jim.   That is so nice and means a lot to me.  They always come at night and it is approaching dinner time soon so I am not looking forward to this.  I can't wait for June 8th and meeting this headache specialist in Washington.   I just don't want to live on medicine all my life.   I didn't before the surgery.

Thank you everyone for your support and thoughts.

Mei Mei
1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

Kaybee

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Re: Post-operative headaches/pressure
« Reply #18 on: May 29, 2010, 06:51:21 am »
Thank you Capt Deb, Mei Mei, kzanana, Lizard, and Larry for sharing some stories.  I wish you all some relief and soon!  I do not have headaches but do have facial paralysis so I truly understand the number this surgery can take on us!  I will pass along this and other information to my co-worker. I have lunch with her on Tuesday and will also encourage her to join the discussion form.  Happy Memorial Day weekend!
2 x 3 x 4 cm tumor removed at Methodist Hospital in Indianapolis 10/30/09
Left facial paralyis/SSD (showed first signs of improvement at approximately 6 months post-op)

Captain Deb

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Re: Post-operative headaches/pressure
« Reply #19 on: May 31, 2010, 01:42:04 pm »
Mei Mei, have you ever tried an occipital nerve block? Or Botox injections?  Both are pretty pricey--I couldn't afford either until I got medicare with my disability.  I had a $5000 deductible, which is kinda like having no insurance at all unless you have a catastrophic illness.  Botox wasn't an option at all at $1200 a treatment and my insurance would not even consider covering it.

Capt Deb
"You only have two choices, having fun or freaking out"-Jimmy Buffett
50-ish with a 1x.7x.8cm.AN
Mid-fossa HEI, Jan 03 Friedman & Hitselberger
Chronic post-op headaches
Captain & Designated Driver of the PBW

Mei Mei

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Re: Post-operative headaches/pressure
« Reply #20 on: May 31, 2010, 06:25:45 pm »
Thanks, Capt. Deb.   No, I've never had an Occipital Nerve Block.   I went to my primary care a couple of months ago and asked him if he thought I should get one and he massaged my occipital area to see if it would refer up to the top of my head where I was having my headaches.   It didn't refer so he didn't think a nerve block would help me, but ever since that day, my occipital area has been hurting like hell and I think he damage it when he pressed so hard and so has my neck because my neck was OK and now my neck has been in pain ever since the day he pressed on that area.

I went for Chinese Accupuncture today with electricity and a hot lamp ...I just wrote about this on the other post.   I was GREAT especially the massage.   I went because I complained to my father's home health aide that I had two more killer headaches last night.   She brought me there after work.   I have good insurance even after retirement.   $5 copay.    I feel bad about your situation about your copay.   Something has to be done about our insurance plan.  It's not equitable!

I have the Neurologist Appointment on June 8th   I am anxiously awaiting that and what input he has for me.   Whether I should take Flexeril.   I have Pins and Needles on my neck and occipital area. and knots as well.   I also go to PT and she is massaging it too at twice a week.   The knots have to be worked out somehow.   It's got me so tense.   Maybe I should get a bite plate for my teeth.  I keep telling my tongue to relax beforee I go to sleep, but I'm sure it ends up on the roof of my mouth tense as anything.   They tell you this in Yoga to relax the rest of your body, relax your tongue......

Waiting to hear from you.
Mei Mei
1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh