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Author Topic: Anissa's Updates  (Read 24890 times)

Captain Deb

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Re: Anissa's Updates
« Reply #120 on: April 15, 2009, 08:01:20 am »
I'm a complete believer in peroxide and neosporine on the scar even weeks after surgery.  Especially living in the tropics, Ernie!

Hard to believe your scar is 2 weeks old Anissa--keep up the good healing!

Hugs,

Capt Deb
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"You only have two choices, having fun or freaking out"-Jimmy Buffett
50-ish with a 1x.7x.8cm.AN
Mid-fossa HEI, Jan 03 Friedman & Hitselberger
Chronic post-op headaches
Captain & Designated Driver of the PBW

moe

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Re: Anissa's Updates
« Reply #121 on: April 15, 2009, 08:06:33 am »
Anissa,
You look absolutely fantastic. So happy with hubby on the couch, and baby watching nearby.
I knew things would work out for you. Just pace yourself, girl, and don't overdo it.
Your scar looks beautiful. No scar tissue.
Once it is completely healed, don't forget the Vit E  squeezed out of the capsule and rubbed on the incision.
My incision had a lumpy area on the bottom that wasn't there when the incision healed (ast least I don't think it was).

HIJACK- and Nancy you are doing superb too!  2 great outcomes.
Maureen
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06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty

Cheryl R

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Re: Anissa's Updates
« Reply #122 on: April 15, 2009, 08:17:58 am »
   Have to be careful with too much peroxide as can harm tissue regrowth.      I know my surgeon had us do some cleansing with diluted peroxide post op but didn't use it too long.                               
                                                      Cheryl R
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Right mid fossa 11-01-01
  left tumor found 5-03,so have NF2
  trans lab for right facial nerve tumor
  with nerve graft 3-23-06
   CSF leak revision surgery 4-07-06
   left mid fossa 4-17-08
   near deaf on left before surgery
   with hearing much improved .
    Univ of Iowa for all care

yardtick

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Re: Anissa's Updates
« Reply #123 on: April 15, 2009, 08:18:59 am »
You look wonderful Anissa.  Hubby looks pretty good too  ;)

Anne Marie
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Sept 8/06 Translab
Post surgical headaches, hemifacial spasms and a scar neuroma. 
Our we having fun YET!!! 
Watch & Wait for more fun & games

Pooter

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Re: Anissa's Updates
« Reply #124 on: April 15, 2009, 10:32:53 am »
WOW!  I'm almost a year out and my scar doesn't look that good!  Of course, I also keep my head shaved very close so I can show it off to everyone. ;)

Congrats on things going so well for you after surgery.

Regards,
Brian
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Diagnosed 4/10/08 - 3cm Right AN
12hr retrosig 5/8/08 w/Drs Vrabec and Trask in Houston, Tx
Some facial paralysis post-op but most movement is back, some tinitus.  SSD on right.
Story documented here:  http://briansbrainbooger.blogspot.com/

"I must be having fun all wrong!"  - Roger Creager

SML

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Re: Anissa's Updates
« Reply #125 on: April 15, 2009, 11:12:29 am »
Anissa, your scar looks great. Mine doesn’t look that good at 4 weeks.
Glad your feeling good, and what a great picture of you and Chris!

Scarlett
Quote from: moe on April 15, 2009, 08:06:33 am
HIJACK- and Nancy you are doing superb too!  2 great outcomes.
Maureen
Can we make that 3? ;)
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SML(Scarlett)-Massachusetts
1.5 cm x 2.5 cm Cystic AN - Right side
Retrosigmoid 3/18/09 at MGH in Boston,MA.
Dr. Barker - Neurosurgeon, MGH - Dr. Lee - Neuro-Otology, MEEI
no facial issues, SSD right side, balance issues to work on.
Outstanding Surgeons, I'm very happy with the results.

joebloggs

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Re: Anissa's Updates
« Reply #126 on: April 16, 2009, 07:20:32 am »
Fab scar!  You look super dooper!

Your hair grows really fast!  I'm not sure mine is that long 5 weeks out!  I'll have to take a picture of it to check!
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Right sided AN 2.7cm at last MRI.  Hearing loss/facial numbness.  Translab scheduled March 11th 2009.  Translab at Royal Melbourne Hospital, Australia successful!  Total tumour removed, SSD, no facial issues, numbness has left the building, balance issues but they'll get better and I'm loving life!

NancyMc

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Re: Anissa's Updates
« Reply #127 on: April 16, 2009, 08:38:31 am »
Anissa,
I'm guessing you had dissolveable stitches?  You are the envy of all recent stitchees!
aka Nancy in NH
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Watch and Wait since 9/19/01
Increased from 1.1 x 1.9 to 1.9 x 1.9 cm as of 10/27/08
Right SSD, tinnitus, compensating balance
Dr. McKenna at Mass Eye and Ear and Dr. Barker at MGH
Translab April 8, 9 hours, 18 mm Tumor all gone SSD some facial weakness

Jim Scott

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Re: Anissa's Updates
« Reply #128 on: April 16, 2009, 08:40:06 am »
Anissa ~

You're looking great!  Nice family photo.  Your scar is healing rapidly, just as mine did.  I'm sure the cobwebs and other issues will abate in no time, although it's never quick enough. 

Thanks for the update and photos. 

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

anissa

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Re: Anissa's Updates
« Reply #129 on: April 16, 2009, 11:48:29 am »
Thanks for all your kind words!  I had invisible (dissolvable) stitches on my head and belly.  The divet in my belly is gone, they had to attach it to muscle when they sewed it up so it looked really funny (don't laugh at my fat  :D) but its popped out now.  My belly is now a visual history of three c-sections and that one time that I needed fat for my brain surgery.   ;) ;D  Does anybody else think it sounds funny or weird to say that?  I spoke with a friend the other day and when I said "I had brain surgery" I almost started laughing because it sounds so preposterous.  Even after surgery it still seems surreal but with the aches and pains as not-so-gentle reminders.  Anyway, its all good.  Thanks again!
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Anissa
2/11/09 Diagnosed AN 2.1cm
2/26/09 Consult with Dr. Clough Shelton, U of Utah
4/1/09 Translab with Shelton & Couldwell
--little teensy bit of tumor or cells on facial nerve, stuck! No facial weakness, Rt side SSD
4/8/10 1-yr MRI, "Looks great!"

Patti UT

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Re: Anissa's Updates
« Reply #130 on: April 16, 2009, 09:07:06 pm »
Hi Anissa,
  So glad to see you posting,  I didn't get a reply to my PM's to ya welcoming you home, I was getting worried.  You look great in the pic on the couch with Chris, def better than at the hospital..  Can't believe it's been two weeks.  SO glad it all worked out so well and I was honored to be ablet o come down to the hospital  and offer a bit of moral support .  I have May 7th on the calendar, lets pick a time

HUGS
Patti ut
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2cm Rt side  middle fossa  at University of Utah 9/29/04.
rt side deafness, dry eye, no taste, balance & congintive issues, headaches galore
7/9/09 diganosed with recurrent AN. Translab Jan 13 2010  Happy New Year

anissa

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Re: Anissa's Updates
« Reply #131 on: April 16, 2009, 10:10:49 pm »
Hi Patti!  I sent you an email, I'm really looking forward to hanging out with the sisterhood and SOs on the 7th!   ;D
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Anissa
2/11/09 Diagnosed AN 2.1cm
2/26/09 Consult with Dr. Clough Shelton, U of Utah
4/1/09 Translab with Shelton & Couldwell
--little teensy bit of tumor or cells on facial nerve, stuck! No facial weakness, Rt side SSD
4/8/10 1-yr MRI, "Looks great!"

Kaybo

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Re: Anissa's Updates
« Reply #132 on: April 17, 2009, 07:08:39 am »
Anissa~
You look AWESOME - so glad things are working out well for you.  The pic of you & Chris is wonderful and one to be cherished because it was taken right after such a "big" event!  So glad you kept your beautiful smile!

K
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Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

anissa

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Re: Anissa's Updates
« Reply #133 on: April 12, 2010, 10:38:24 pm »
Last Thursday I had my one year MRI and Dr. visit.  It was the first MRI since my diagnosis so I was extremely anxious to see what's going on in my head.  Both the neuro and neuro-otologist were happy, nothing to report.  They said its pretty early to be able to see anything up close but they didn't see anything obvious and thats good.  I asked for a copy of the MRI report but haven't got it yet.  It hadn't been officially read and dictated when I had my appointments.  I also had a hearing test on my hearing ear which he said was fine and they won't test it again unless I ask.  I will continue to have MRIs and visits for 5 years and then I can go longer if everything looks good.  They are keeping a close eye on it because of the little bit they left. 

I feel good, balance is wonky but you know, it is what it is.  Other than that I haven't had any problems.  Still asymptomatic on the Chiari Malformation so nothing to talk about there.  All in all a good visit.   ;D  Thank you all for your thoughts and prayers, you are such a sweet bunch, I don't know what I would have done without you.  Thank you again!

Anissa
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Anissa
2/11/09 Diagnosed AN 2.1cm
2/26/09 Consult with Dr. Clough Shelton, U of Utah
4/1/09 Translab with Shelton & Couldwell
--little teensy bit of tumor or cells on facial nerve, stuck! No facial weakness, Rt side SSD
4/8/10 1-yr MRI, "Looks great!"

sgerrard

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Re: Anissa's Updates
« Reply #134 on: April 12, 2010, 11:50:40 pm »
Best wishes for year number 2, Anissa. It is bound to be a better one!

Steve
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8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.
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