Author Topic: One-Year Post-CK Update  (Read 4136 times)

novagirl

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One-Year Post-CK Update
« on: October 10, 2013, 05:34:18 pm »
Hello fellow An-ers!

Just wanted to give you all a quick update. I had CK at Stanford in October of 2012, and just got a call from them about my one-year follow up tests. Great news: perfect hearing, and the tumor is stable (actually slightly smaller than at the time of treatment). Next MRI is a year from now. Yay!

Measurements:
Oct 2012: 15 x 14 x 10
Oct 2013: 14 x 8 x 6

Also, overall, am feeling a lot better. It is crazy how one learns to live with discomfort and barely notices it until it's gone. I have more energy, facial tingling is gone and ringing is gone most of the time. Have not had bouts of vertigo in a while either. I do feel like a walking barometer though: whenever the weather changes (if we are about to get rain), my face goes slightly numb on the right side.

So good news all around. Here sending positive thoughts to all.
Right AN 10 x 10 x 7 mm - dx 7/28/09; w&w for three years
CK at Stanford October 2012 - Dr. Chang and Dr. Soltys
Oct'12: 15 x 14 x 10 mm
Oct'14: 12 x 6 x 5 mm

Jim Scott

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Re: One-Year Post-CK Update
« Reply #1 on: October 11, 2013, 12:44:15 pm »
Hi Novagirl ~

Congratulations on your splendid one-year update!  Thanks, too, for allowing us to share in the good news.  May your recovery continue at this great pace!

Jim
4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

MDemisay

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Re: One-Year Post-CK Update
« Reply #2 on: October 12, 2013, 12:50:34 pm »
Dear nova girl,

Congratulations!

Mike
1974 - Dr. Michelson  Colombia Presbyterian removal of 3 Arterio Venous Malformations
2004- Dr. Sisti  NY Presbyterian subtotal removal of 3.1 cm AN,
2012 - June 11th Dr. Sisti Gamma Knife (easy-breasily done)"DEAD IRV" play taps!
Research, research, research then decide and trust in God's Hands!

robinb

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Re: One-Year Post-CK Update
« Reply #3 on: October 14, 2013, 10:07:23 am »
Awesome news!
AN Diagnosed 11-2012 right side
13mm x 7.2 mm
Gamma Knife 1/24/13
UPMC w/Dr. Lunsford
Officially a postie toastie!
See my treatment journal at: http://www.anausa.org/smf/index.php?topic=18291.0

Echo

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Re: One-Year Post-CK Update
« Reply #4 on: October 14, 2013, 03:18:37 pm »
Thanks for sharing the good news!  It's very encouraging.

Cathie.
Diagnosed: June 2012, right side AN 1.8cm
June 2013: AN has grown to 2.4 cm.
Gamma Knife: Sept. 11, 2013 Toronto Western Hospital

kejac

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Re: One-Year Post-CK Update
« Reply #5 on: October 14, 2013, 07:12:39 pm »
That's great news and I would agree that it is encouraging for anyone considering ck, like myself. That's a nice reduction in size also. Thanks for sharing.
Tumor discovered 8/2012 10x5x5
WW 6 months tumor grew 12x6x6
CK treatment Stanford 3/2014
6 month scan swelled to 15x9x9
1 year scan tumor reduced to 14x7x6
2 year scan tumor reduced to 12x6x5
3 year scan tumor stable 11x6x5
5 year scan no change 11x6x5

theshawn65

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Re: One-Year Post-CK Update
« Reply #6 on: October 15, 2013, 09:53:07 am »
Woooot, that is nice to hear.
2.2 x 2.2 x 2.3cm AN -- 3 FSR LINAC Oct 23-25th 2013

tekmac2000

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Re: One-Year Post-CK Update
« Reply #7 on: October 31, 2013, 12:06:30 pm »
Wonderful!  Very encouraging for those of us who are on the brink of deciding!  :)
1.4 cm Left AN diagnosed fall 2012
growing about 1.5-2 mm per year

Gamma Knife: 1-22-2014

Gloria Nailor

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Re: One-Year Post-CK Update
« Reply #8 on: October 31, 2013, 12:13:50 pm »
Yay, congrats to you on the good news !
4/2011 diagnosed with 3 cm AN on right side
6/15/2011 retrosigmoid craniotomy which resulted in SSD, severe facial paralysis
7/2011 gold weight placed right eye lid
5/2012 tarsorrpapny right eye
6/2012 woke up with a smile
1/2013 cranioplasty because a screw came out of my head!
6-7/13 regrowth, GK

robinb

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Re: One-Year Post-CK Update
« Reply #9 on: November 03, 2013, 10:11:05 am »
Awesome news!!!
AN Diagnosed 11-2012 right side
13mm x 7.2 mm
Gamma Knife 1/24/13
UPMC w/Dr. Lunsford
Officially a postie toastie!
See my treatment journal at: http://www.anausa.org/smf/index.php?topic=18291.0