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Radiation / Radiosurgery / Re: Radiosurgery from a non-expert center
« Last post by richcooks on Today at 01:48:22 pm » I wish I can give you great advice on how to pick the right Doctor to radiate your AN. I looked at it from a practical point of view. Once I decided on Fractionated Stereotactic Radiation (FSR) I searched for someone who does that type of treatment. I saw my AN as any other tumor in the brain and would ask the Doctors if they treat brain tumors. Of course I asked if they had experience with ANs. Is my AN a good target for you to engage? What challenges does the location of my tumor present? How is engaging a AN different from other types of brain tumors? I saw a neurologist once and told him that I was leaning toward FSR treatment and what was his opinion and does he think my AN makes a good target. I chose the one who took the time to address all my questions, and allay my fears. I felt all were honest about their results and I made a choice. He is a local Oncologist treated all kinds of brain tumors including ANs.
Now 14 years since my treatment the Radiation Oncologist who treated me is the only Doctor I see. I get am MRI every 2 years and go see him and things are still fine. I never lost any additional hearing as a result of the treatment. As a side note, my brother also has a AN and he chose Gamma Knife because that is the technology his Doctor had, he lost his hearing in his affected ear. I highly recommend you break up the Radiation treatments into smaller doses.
Hope this helps and best of luck. Remember there are many many successful AN patients out there. You are not alone.
Regards,
Rich
Now 14 years since my treatment the Radiation Oncologist who treated me is the only Doctor I see. I get am MRI every 2 years and go see him and things are still fine. I never lost any additional hearing as a result of the treatment. As a side note, my brother also has a AN and he chose Gamma Knife because that is the technology his Doctor had, he lost his hearing in his affected ear. I highly recommend you break up the Radiation treatments into smaller doses.
Hope this helps and best of luck. Remember there are many many successful AN patients out there. You are not alone.
Regards,
Rich