Author Topic: Cindys Nerve Ablaision Experience....11/2010  (Read 57799 times)

cin605

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Re: Cindys Nerve Ablaision Experience....11/2010
« Reply #45 on: November 26, 2010, 05:06:17 pm »
3 steps forward two back.....very sore do nothing kind of day
2cm removed retrosig 6/26/08
DartmouthHitchcock medical center lebanon,N.H.
43yrs old

Mei Mei

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Re: Cindys Nerve Ablaision Experience....11/2010
« Reply #46 on: November 26, 2010, 06:31:02 pm »
Just be patient.   I'm having the same kind of day.   Try using the aspercreme.   Will call tomorrow!
Hugs,
Mei Mei
1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

cin605

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Re: Cindys Nerve Ablaision Experience....11/2010
« Reply #47 on: November 29, 2010, 10:32:39 am »
I'm baaack!Not so good for a couple days.....I decide i would try to start a quilt and worked on it for about an hour and 1/2 on saturday....My Mom bought over a material cutter...I am righty..surgery and nerve ablasion on the right...not a good idea.I got the head pounding to your heartbeat..Vision pulsating along w/ it..My shoulder and neck hurt sooo bad.So thats out for awhile.
Up side....balance is good...No wonky head aka bobblehead...no fullness in ear.
read up some more on ablation ....said the nerves endings take time to die and couse muscle spasms...takes about two to three weeks for them to  die.It will be three weeks in Wednesday.
Hope everyone is well...Take care!
Cindy
Oh yeh...Got a bill in the mail...$2200 is what it cost....Thank God for Ins.
« Last Edit: November 29, 2010, 10:34:59 am by cin605 »
2cm removed retrosig 6/26/08
DartmouthHitchcock medical center lebanon,N.H.
43yrs old

Mei Mei

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Re: Cindys Nerve Ablaision Experience....11/2010
« Reply #48 on: November 29, 2010, 06:56:15 pm »
Yes, thank God for insurance.  What would we do without it?   I think anything to do with a table like sewing and computers is bound to trigger neck pain because you're focused on a target downwards.   It's probably not a good idea.   I can't even stay on the Forum or Facebook for more than a few minutes at a time.   Try cooking for a hobby for now since it involves being up and about.

Mei Mei
1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

pattycake

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Re: Cindys Nerve Ablaision Experience....11/2010
« Reply #49 on: November 30, 2010, 01:33:01 pm »
Cindy you are so brave.  Keep it up - I am following your journey with high interest.  I am afraid of the idea of ablation in my neck - but I'm watching you closely.   Our prayers & best wishes coming your way.   When is Captain's procedure?
1.7cm x 1.4 - Surgery 3/14/08 - Meningioma
Mass General Hosp - McKenna & Barker - no facial problems
Persistent Headache pain remains

Mei Mei

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Re: Cindys Nerve Ablaision Experience....11/2010
« Reply #50 on: November 30, 2010, 02:37:53 pm »
Yes, she certainly is brave and I'm so very proud of her.   The idea of the ablation without being under general anesthesia really scares me, but if she can do it and Captain can and they suggest it for us, then I'll try if the Nerve Block in Cleveland doesn't work.

Mei Mei   :-*
1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

cin605

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Re: Cindys Nerve Ablaision Experience....11/2010
« Reply #51 on: November 30, 2010, 02:42:03 pm »
Thanks for the well wishes Pattycake......I went for follow up thiis mourning....Dr said pain should start to eas up soon....gave me another script for percocette...uped my gabepenton from 300mg 3x a day to 400mg 3x per day.....For some odd reason if i take the 100mg gabepenton they work better then 1 300mg? ::)
So i have a follow up in another 3 weeks...I don't know why the Drs stick thier thumbs into your skull and ask if it hurts????
HELOOOO ya it hurts..let me try it on you....vent..vent ;D
2cm removed retrosig 6/26/08
DartmouthHitchcock medical center lebanon,N.H.
43yrs old

Mei Mei

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Re: Cindys Nerve Ablaision Experience....11/2010
« Reply #52 on: November 30, 2010, 02:46:51 pm »
Yeah, my doctor did that too.   He said he wanted to know if the pain connected up to the top of my head when he pressed on the occipital area.

That's really strange about the meds working better on lower dose.   It doesn't make sense.   Maybe a pharmacologist could explain it.
Mei Mei
1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

Captain Deb

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Re: Cindys Nerve Ablaision Experience....11/2010
« Reply #53 on: December 01, 2010, 05:29:15 pm »
Anything I do that involves looking down gives me neck pain and a headache.  Once I went hiking and had to walk 3 miles downhill, looking at the ground through the tops of my bifocals. It was absolute hell!  Even with the Botox this happens because the Botox works better in my forehead than it does in my neck.

So CHIN UP--at least for a while!

My procedure is not for a while--taking care of back first and will wait for Botox to wear off first.  Have a dreadful headach today--neck, shoulder, incision area, temple, forehead and eye all involved.  Just like old times!   Had a flu shot yesterday--maybe a side-effect?

Capt Deb
"You only have two choices, having fun or freaking out"-Jimmy Buffett
50-ish with a 1x.7x.8cm.AN
Mid-fossa HEI, Jan 03 Friedman & Hitselberger
Chronic post-op headaches
Captain & Designated Driver of the PBW

Mei Mei

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Re: Cindys Nerve Ablaision Experience....11/2010
« Reply #54 on: December 01, 2010, 06:57:38 pm »
It might be the weather.    We had a big thunder storm here that last for several hours.   My father's aide was late to our house this morning because of a headache.   I had a brainwreck at 2:30 exactly like yours!   Had to stop and buy some Tylenol at the hospital I was at this afternoon to help the Alleve I had and the Voltaren.   Took all three and sat in the lobby with a Coke.  Wished that I was home on the sofa with an icepack.  Our life is so changed.   I used to jog and work out, go boating and camping.   Looking forward to being active again.   At least I can walk and talk.
Thankful for what I've got and hope I don't lose that.
Mei Mei
1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

cin605

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Re: Cindys Nerve Ablaision Experience....11/2010
« Reply #55 on: December 02, 2010, 09:42:24 am »
Still very sore....Got o.k. for chiro...now that medicare has kicked in i can go again.
Had to go for blood work 8:15 this mourn...around the corner from my place is my Dr...chose him wisely..directly after surgery...thank goodness...My neck is still killin ...but not at surgery site ....so i think once the nerves die...i will be better off.
My soon to be 16 yr old announced yesterday he needed paperwork to run track...took care of that yesterday....then announces he needs running sneaks....TODAY.....he has day off from school...i am off to Kholes...no...no mall for me today..Thank You very much!
2cm removed retrosig 6/26/08
DartmouthHitchcock medical center lebanon,N.H.
43yrs old

Mei Mei

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Re: Cindys Nerve Ablaision Experience....11/2010
« Reply #56 on: December 02, 2010, 11:46:09 pm »
How long does it take for the nerves to die?   Did they tell you?
Mei Mei
1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

cin605

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Re: Cindys Nerve Ablaision Experience....11/2010
« Reply #57 on: December 07, 2010, 11:25:12 am »
Hello!
Going in to week 4.......stopped the percocette 3 days ago...it was not making me feel good...
So its been tylenol and gabepenton....stressed out today...head shaking.balance not so good...can feel my blood pressure going up......breathe deep....Its gotta get better soon ::)
2cm removed retrosig 6/26/08
DartmouthHitchcock medical center lebanon,N.H.
43yrs old

cin605

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Re: Cindys Nerve Ablaision Experience....11/2010
« Reply #58 on: December 10, 2010, 01:30:25 pm »
Today is one month...since ablation.yesterday i cut out my 1/2 of tramadol a day out..as it was not doing me any good giving me a headache 4 hours later......Today a little btter.....pain is subsideing....not so sore at injetion site.....i am sticking w/ the gabenton for awhile..as i am afraid to regress and cut to many meds out at one time.
2cm removed retrosig 6/26/08
DartmouthHitchcock medical center lebanon,N.H.
43yrs old

Mei Mei

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Re: Cindys Nerve Ablaision Experience....11/2010
« Reply #59 on: December 10, 2010, 06:29:16 pm »
Great plan, Cindy.   I can't wait till you tell me that you are off of everything.   This ablation really helped you.   What a relief.
Hugs,
Mei Mei
1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh