Author Topic: Wonky Head  (Read 2743 times)

Don Winslow

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Wonky Head
« on: November 18, 2010, 11:08:45 am »
Good morning all.  I'm about 12 years post Gamma Knife and have gotten along better than most during that time.  But in last few months I've had a lot of very uncomfortable days with a head that feels like it's fulll of wet sawdust.  During thee periods, thinking becomes difficult.  Is this what some call a "wonky head?"  My wife says it sound like her worst allergy problems. 

  Don Winslow

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Re: Wonky Head
« Reply #1 on: November 19, 2010, 10:20:39 pm »
People ask me about "wonky head". I've come to describe it thusly:

the spongy-minded, ethereal, not-really-solid, "almost-awareness" a person has the morning after taking a whole sleeping pill when they should have taken half.
5/21/10 diagnosis: Left side AN: size 25X17; tinnitus with variable volume, garbled word recognition, disequilibrium.

10/11/10 CK treatment@Stanford; Drs. Chang, Gibbs, Lieberson size 25 x 20 x 15 mm

4/24/12 size 23 X 20 X 15 no hearing change

ppearl214

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Re: Wonky Head
« Reply #2 on: November 20, 2010, 06:11:39 am »
"Wonky head", a term coined by Capt Deb, is the "head disconnect" one may feel (much like taking cold meds) with a hint of dizziness/vertigo tossed in.

Don, hoping things calm down for you soon! Be well!

Phyl
"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

moe

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Re: Wonky Head
« Reply #3 on: November 20, 2010, 11:06:07 am »


the spongy-minded, ethereal, not-really-solid, "almost-awareness" a person has the morning after taking a whole sleeping pill when they should have taken half.

People actually are required to function feeling like this?!
I don't suffer from wonky head, but have other things, so can't contribute. I get "foggy brain" where sometimes it is hard to clearly think and my brain feels constantly disracted and muffled.
Don-hope you feel better. Could be allergies??
Maureen
06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty

GramaSuby

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Re: Wonky Head
« Reply #4 on: November 20, 2010, 11:29:25 pm »
"Wonky head", a term coined by Capt Deb, is the "head disconnect" one may feel (much like taking cold meds) with a hint of dizziness/vertigo tossed in.

Don, hoping things calm down for you soon! Be well!

Phyl
Don,

Phyl described it perfectly!   To tell the truth it is quite a sensation, surreal to be exact!  I do hope you get to feeling better though :)
Diagnosed Nov 08  w/ 14x13x14mm left AN. Translab on 9/30/10 w/ Dr's Mattox & Olson at Emory University Hosp. in Atlanta.  Post surgery complications were meningitis & pneumonia. Hospitalized for 12 days, zero memory for the first 5.