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« Last post by babilarson on April 13, 2024, 08:33:48 am »
Hello my friend, I am aware this is a scary time for you. Hopefully you have had your surgery by now and everything is going as well as expected. That being said I know this is a whole new world for you and much adjusting to your new life and normal if indeed it has resulted in the right sided facial paralysis as expected. I also had a large/aggressive AN that resulted in right sided facial paralysis and right sided deafness. Long story short, in the end I had to have had to have: 1 original surgery, followed by a 2nd because of aggressive regrowth, followed by 28 rounds of max dose radiation, unfortunately that did not do it as what was originally thought to be the normal “swelling process/dying” of remaining tumor tissue ended up being regrown once again requiring a 3rd surgery. Although this is an extremely rare event and I do wish you all the best, I completely understand there will be new normals for you. Some things I have learned that may be helpful to you knowing sooner than I did was 1- eye care: lacrilube type stuff, punctal plugs, eye weight ect all unfortunately did not work for me personally but what is called a “ mini scleral lense” was a game changer. In combination with other things in regards to eye care but the mini scleral was an important one! If there is anything I could possibly answer for you or any issues I could help with I am more than happy to help if I can. Just an fyi, this journey started in 2014, it has been 10 yrs, I am an LPN by trade and have gotten myself back to work part time(because of chouce options at my particular hospital) with minor adjustments, a little bit more difficulty than I realized but not too an extent of being undoable👍🏻I am also from Canada, this site just seemed to have more information options than the Canadian version. All the best to you my friend, you’ve got this 🙌