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Author Topic: Hi there, another newbie here.  (Read 4330 times)

cin605

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Re: Hi there, another newbie here.
« Reply #15 on: September 22, 2008, 07:08:41 pm »
Hi Andrea=Welcome.I am fairly new here too.Thank God for this site though.I am 42.
I was also mis diagnosed for 10 years.First it was inner ear infections then it was meniers.i even had an audiology testdone that was abnormal but everything except an MRI.
I am on the road to recovery now but at least w/ all the friends here i know i am far from alone. :)
all the best ,cindy
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2cm removed retrosig 6/26/08
DartmouthHitchcock medical center lebanon,N.H.
43yrs old

msmaggie

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Re: Hi there, another newbie here.
« Reply #16 on: September 22, 2008, 08:49:10 pm »
Another TX welcome to you, Andrea,

There are so many people who can help you here.  I myself have to admire your tastes...champagne and chocolate!You have every right to get angry, and then you can figure out what to do next.  I was diagnosed with an AN in Aug., but the House clinic said it was a meningioma.  I'm going to get one more opinion and then I'm going to boot this hitchhiker out of my head.  Keep us posted on how you are doing.  I haven't seen anyone ask about something that someone hasn't been able to address.  Good luck!

Maggie
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Diagnosed  left AN 8/07/08, 1.9 CM
Surgery 12/10/08 at Methodist Hospital w/Vrabec and Trask for what turned out to be a cpa meningioma.

Rivergirl

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Re: Hi there, another newbie here.
« Reply #17 on: September 23, 2008, 06:02:44 am »
Hi Andrea,
What a nightmare to go through with the misdiagnosis.  The more I hear of these stories the more common they become. I was misdiagnosed for 2 years and needless to say I have changed primary care doctors because I need one that can take my complaints seriously.  This site is part of my daily life now, reading stories, gathering more information, I can't imagine what I would have done without it. I am sorry you had to join but be thankful this group is here for support.
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Diagnosed 6/2008
Right AN 2cmx8x9
Sub-Occipital at Mass General with Martusa and McKenna on 5/31/11
Right SSD, very little taste
I think I will make it!

andrea in slc

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Re: Hi there, another newbie here.
« Reply #18 on: September 23, 2008, 06:36:03 am »
Wow, thanks for all the welcomes! This place is awesome! Just from reading and looking around, I have like 3 pages of questions to ask the doc next week, so thank you all so much.

I think I can work this AN thing for quite a bit of chocolate from my dear husband, LOL. Godiva extra-dark chocolate truffles come to mind. Just kidding! He keeps my supplied with those anyway.

I'm sorry we all had to "meet" this way, with this "thing," but I am very glad to meet all of you. Trust me, I'll be posting and asking a lot, I'm sure.

Off to the zoo today with my kindergartener and her class, the bus ride should be interesting  :o and I"m bringing my walking stick "just in case." Hope everyone has a great day!
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lori67

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Re: Hi there, another newbie here.
« Reply #19 on: September 23, 2008, 06:48:34 am »
Andrea -

I've been to the zoo with a bus load of 5 year olds - the "walking stick" might come in handy for more than walking!   ;)

Just kidding!  Definitely work the AN for all the chocolate it's worth!  And be sure to share it with your new forum family!

Have fun today and enjoy yourself!!

Lori
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Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

cindyj

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Re: Hi there, another newbie here.
« Reply #20 on: September 23, 2008, 06:50:12 am »
I'm late w/ this, but Hi and Welcome! 

Chocolate is my favorite way to resolve problems! 

Glad you found us - we'll be watching for your questions, concerns and updates!

Enjoy your day at the zoo! 

cindy
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rt side 1.5 cm - Translab on 11/07/08 Dr. Friedman & Dr. Schwartz of House Ear Institute,
feeling great!

"Life consists not in holding good cards, but in playing well those you do hold."  Josh Billings

fbarbera

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Re: Hi there, another newbie here.
« Reply #21 on: September 23, 2008, 08:28:09 am »
Hi Andrea, Glad you are on your way to recovery.  In case you are interested in learning more about radiotherapy as an alternative, I have described my own process deciding on a treatment for my 2.6 cm AN -- and also my experience post-treatment -- in the website below (in my signature line).  Sounds like you've made great progress with your research.  Please check in here often and keep us posted on your progress.  Regards, Francesco
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mimoore

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Re: Hi there, another newbie here.
« Reply #22 on: September 23, 2008, 08:52:33 am »
Great site FB. VERY well written and extremely helpful for newly diagnosed. I chose surgery and have no regrets, I needed it out! I am suffering some residual effects but am confident all will be well. I feel it is important to arm yourself with information and make the right decsion for you.
Take care.
Michelle  ;D
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Retrosigmond surgery on June 4th, 2008 for an AN. 100% hearing loss and facial paralysis (was not prepared for facial paralysis). Size: 2.3 cm, 2.1 cm, 1.8 cm. some tumour remains along facial nerve. Pray for no regrowth. Misdiagnosed for 10 yrs.
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