Author Topic: 1 year CK anniversary  (Read 2019 times)

sher

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1 year CK anniversary
« on: September 30, 2009, 01:58:36 pm »
Tomorrow is my 1 year post CK anniversary. Happy to be at this point. Thanks to all who have given me such good advice and support. I am not a regular here, but if I can help anyone PLEASE feel free to email me or call... I will put my number on the call list. I don't have my next MRI until January, but the July one showed slight shrinkage and some necrosis. I am definitely CELEBRATING!!!!!
Hugs to you all,
Sher
1.2cm x 0.6 cm extracanicular component (7 mm) 05/08/08
MRI in AUG 08  showed 30 % growth
Having CK 9/30, 10/1 and 10/2/08
1/12/08 MRI shows swelling

Jim Scott

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Re: 1 year CK anniversary
« Reply #1 on: September 30, 2009, 02:01:05 pm »
Hi, Sher ~

Congratulations on achieving your one-year ANniversary!  Necrosis and shrinkage are definitely worth celebrating!  :)

Jim

4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

ppearl214

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Re: 1 year CK anniversary
« Reply #2 on: September 30, 2009, 02:01:26 pm »
what do or can I say? :)   MAJOR congrats! I know its been an extremely long haul for you.. .and may my CK good fortune lay the way for you as well (since you are on the same path, m'dear!)

Congrats! continued wellness wishes, Sher! :)

xo
Phyl
"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

Tumbleweed

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Re: 1 year CK anniversary
« Reply #3 on: October 01, 2009, 02:11:27 pm »
Congratulations, Sher!!!

Shrinkage and necrosis, what's not to like?   :)

Best wishes,
TW
L. AN 18x12x9 mm @ diagnosis, 11/07
21x13x11 mm @ CK treatment 7/11/08 (Drs. Chang & Gibbs, Stanford)
21x15x13 mm in 12/08 (5 months post-CK), widespread necrosis, swelling
12x9x6 mm, Nov. 2017; shrank ~78% since treatment!
W&W on stable 6mm hypoglossal tumor found 12/08