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Author Topic: My blog  (Read 6565 times)

Sue

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My blog
« on: February 10, 2010, 08:41:08 pm »
If you want to read my adventures with Acoustic Neuroma and my Gamma Knife, you can now see it on My Blog.  Thanks!!

http://suecollins-blog.blogspot.com/

Sue in Vancouver, USA
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Sue in Vancouver, USA
 2 cm Left side
Diagnosed 3/13/06 GK 4-18-06
Gamma Knife Center of Oregon
My Blog, where you can read my story.


http://suecollins-blog.blogspot.com/2010/02/hello.html


The only good tumor be a dead tumor. Which it's becoming. Necrosis!
Poet Lorry-ate of Goode

Vivian B.

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Re: My blog
« Reply #1 on: February 10, 2010, 09:37:55 pm »
Hi Sue,


I  really enjoyed your story. I have been feeling a little anxious in the past two weeks and haven't been on the forum much, but you brought my spirits up. I want to thank you for that. It's great to have people like yourself to share with. Everything you described sounds way too familiar to me and I am sure to the rest as well. It's funny how most of us can now relate to so many experiences that we have had in the past such as a quick dizzy spell that you don't think twice about. I am on W and W and have decided on gammaknife myself. Although I read a lot about the procedure, you captured it in a very human way. I am glad that you did well with your treatment. All the best!

Vivian from Canada
                                   
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CPA AN(most likely meningioma) 1.6cm by 1.5cm by 1.9cm diagnosed early March 09. Watch and Wait.

ppearl214

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Re: My blog
« Reply #2 on: February 11, 2010, 06:48:09 am »
Sue, well done! What a fabulous AN journey you share (and LOVED the stories of you living in Hawaii... great pics btw!).  Thanks for sharing this with everyone so they can learn from your journey. You may want to add your blog link to your sig line here (as many have done) in case anyone wants ease of reference to find it.

Great job!
Phyl
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"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

rupert

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Re: My blog
« Reply #3 on: February 11, 2010, 08:06:59 am »

  Sue,   you are a great writer,   and the photo's were also great.  I would like to travel to all of those places sometime.    Thanks for sharing.      Bryan
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pjb

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Re: My blog
« Reply #4 on: February 11, 2010, 08:40:42 am »
Beautiful words and beautiful pictures thank you for sharing this.  I was told by someone to start a journal of our lives there may be a time when we might not remember them...

Best Wishes,

Pat
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Diagnosed with a 1 cm. AN had Retrosigmoid
Approach surgery July of 2009, several problems after surgery.

leapyrtwins

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Re: My blog
« Reply #5 on: February 11, 2010, 03:40:06 pm »
Sue -

I had no idea you had a blog.

Very nicely done  ;D

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Sue

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Re: My blog
« Reply #6 on: February 11, 2010, 06:54:27 pm »
Thanks everyone!!

Just started it.  Thanks for the tip, Phyl.

I think the blog will be fun.  The ads will show up maybe.  Click on them, make me rich!!  ;D ;D

Sue in Vancouver, USA
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Sue in Vancouver, USA
 2 cm Left side
Diagnosed 3/13/06 GK 4-18-06
Gamma Knife Center of Oregon
My Blog, where you can read my story.


http://suecollins-blog.blogspot.com/2010/02/hello.html


The only good tumor be a dead tumor. Which it's becoming. Necrosis!
Poet Lorry-ate of Goode

Larry

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Re: My blog
« Reply #7 on: February 11, 2010, 07:07:07 pm »
Sue,

Wow,

great blog. I did speed read it and will come back to it in detail later. the pics are great and you - wow - Bo Derek eat your heart out - I could see you in slow motion on the beach running to Dudley Moore wearing.... ooops, wrong forum for that! ;D ;D ;D

You need to add a few of your poems.


Laz

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2.0cm AN removed Nov 2002.
Dr Chang St Vincents, Sydney
Australia. Regrowth discovered
Nov 2005. Watch and wait until 2010 when I had radiotherapy. 20% shrinkage and no change since - You beauty
Chronologer of the PBW
http://www.frappr.com/laz

Sue

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Re: My blog
« Reply #8 on: February 11, 2010, 07:23:51 pm »
Yeah, right!!   Well, THAT ought to get people to check it out. HA.   :D

Sorry that my story is LONG.  But, yeah...speed read it....skip around.  Whatever.  It was good to write it all out, which I did when AKKKK, can't remember his name right now....this guy was going to compile stories into a book. 

Sue in Vancouver, USA
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Sue in Vancouver, USA
 2 cm Left side
Diagnosed 3/13/06 GK 4-18-06
Gamma Knife Center of Oregon
My Blog, where you can read my story.


http://suecollins-blog.blogspot.com/2010/02/hello.html


The only good tumor be a dead tumor. Which it's becoming. Necrosis!
Poet Lorry-ate of Goode

leapyrtwins

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Re: My blog
« Reply #9 on: February 11, 2010, 10:40:02 pm »
I think the "book guy" was MS Scottie ?

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

ppearl214

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Re: My blog
« Reply #10 on: February 12, 2010, 06:03:46 am »
Quote from: leapyrtwins on February 11, 2010, 10:40:02 pm
I think the "book guy" was MS Scottie ?

Jan

Jan, I also believe it was Scottie as well.  I think JimScott also contributed a chapter for Scott's book.
Phyl
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"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

Kaybo

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Re: My blog
« Reply #11 on: February 12, 2010, 07:38:10 am »
Sue~
I think I commented on your blog but not on here - LOVE it!  Good job!

K   ;D
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Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

JerseyGirl2

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Re: My blog
« Reply #12 on: February 12, 2010, 08:48:22 am »
Sue,

Great job on your blog! Thanks for sharing.

Catherine (jerseyGirl 2)
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Translab surgery and BAHA implant: House Ear Institute, Los Angeles, 1/2008
Drs. J. House, Schwartz, Wilkinson, and Stefan
BAHA Intenso, 6/2008
no facial, balance, or vision problems either before or after surgery ... just hearing loss
Monmouth County, NJ

Sue

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Re: My blog
« Reply #13 on: February 12, 2010, 03:24:09 pm »
Right!  MSScottie!  I remember now. :D :D

Sue in Vancouver, USA
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Sue in Vancouver, USA
 2 cm Left side
Diagnosed 3/13/06 GK 4-18-06
Gamma Knife Center of Oregon
My Blog, where you can read my story.


http://suecollins-blog.blogspot.com/2010/02/hello.html


The only good tumor be a dead tumor. Which it's becoming. Necrosis!
Poet Lorry-ate of Goode

leapyrtwins

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Re: My blog
« Reply #14 on: February 12, 2010, 10:23:36 pm »
Quote from: Sue on February 12, 2010, 03:24:09 pm
Right!  MSScottie!  I remember now. :D :D

Wonder what ever happened to the book idea.  As I recall, Scottie kind of disappeared from the Forum.

Damn shame, that.  Maybe he'll rejoin us at some point.

Jan
« Last Edit: February 16, 2010, 12:38:16 pm by leapyrtwins »
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways
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