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Author Topic: Finally received the ANA newsletter!  (Read 10052 times)

Jim Scott

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Finally received the ANA newsletter!
« on: September 23, 2008, 02:07:07 pm »
I'm pleased to report that I've finally received 'Notes' - the quarterly newsletter for ANA members.  As usual, it's full of interesting information as well as the much praised piece from our own David Douglas Shannon (aka 'LADavid'), recounting his AN journey from diagnosis to where he is today. 

I can state, without reservation, that the praise was well-deserved.  David's account is concise and compelling.  I commend his writing skills and highly recommend those who have access to it, read David's story.  I enjoyed reading it and, of course, I wish him well as he continues his journey toward full recovery.  :)

Jim



   
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

Tamara

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Re: Finally received the ANA newsletter!
« Reply #1 on: September 23, 2008, 03:45:45 pm »
I also saw David's piece.  Unfortunately, half the pages of the back had been ripped off.  I literally had to "read between the lines", but I also want to commend you for your work, David.  Well done!

Tammy
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7 mm AN left side
translab 6-12-08
postop issues including CSF leak, eye issues, and facial palsy.  All issues resolved at 9 mos. except slight facial palsy & weakness.  Continuing to improve...

mindyandy

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Re: Finally received the ANA newsletter!
« Reply #2 on: September 23, 2008, 04:00:05 pm »
Newsletter? I must have missed that boat....where do I sign up? ;D
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14mm dx 9/07. CK done Seattle  1 year MRI showed some shrinkage. 4 year MRI 2mm growth nothing conclusive. Trigminal nerve involvment Retrosigmoid Friedmand/Schwartz HEI March 7,2012

Jim Scott

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Re: Finally received the ANA newsletter!
« Reply #3 on: September 23, 2008, 04:12:15 pm »
Quote from: mindyandy on September 23, 2008, 04:00:05 pm
Newsletter? I must have missed that boat....where do I sign up? ;D

Right here: https://secure.baxinternet.com/~anausa/membership_donate.html.

Annual membership dues for the Acoustic Neuroma Association: $40. and includes the quarterly newsletter.

I noted your 'wink', but thought it might be a good idea to put this information out there for those who may be interested in receiving 'Notes' and the benefits of ANA membership. 

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

lori67

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Re: Finally received the ANA newsletter!
« Reply #4 on: September 23, 2008, 04:24:12 pm »
I have come to the conclusion that I'm going to have to hold my mail man hostage until I get my newsletter.  I'm beginning to think he's got it, he's just not done reading it yet.

If there wasn't a gas shortage here in Nashville, I'd drive to Canada and read Anne Marie's!  I'm sure she's done with it by now.

Lori
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Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

Brendalu

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Re: Finally received the ANA newsletter!
« Reply #5 on: September 23, 2008, 04:45:00 pm »
I decided that Ike must have blown my copy of the newsletter away!  Haven't seen it yet, but did get the packet for the fall ANA Houston Support Group!  We are meeting in my neck of the woods....d***inson, TX in the community room at Amegy Bank on Termini Drive.  It is on November 1 from 1-3.  I hope to see lots of folks from this area there.
Brenda
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Brenda Oberholtzer
AN surgery 7/28/05
Peyman Pakzaban, NS
Chester Strunk, ENT

leapyrtwins

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Re: Finally received the ANA newsletter!
« Reply #6 on: September 23, 2008, 10:16:27 pm »
Lori & Brenda -

glad to see I'm not the only one waiting  :(

Misery loves company  ;)

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Kaybo

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Re: Finally received the ANA newsletter!
« Reply #7 on: September 24, 2008, 06:56:59 am »
i'M STILL WAITING TOO...

K   :-\
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Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

tenai98

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Re: Finally received the ANA newsletter!
« Reply #8 on: September 24, 2008, 07:04:58 am »
I received mine on Monday past.  Great artcle on David.  Loved it.  It is my first newsletter and I'm signing up as a member.  ;D
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14mmX11mmX11mm left ear
TRANSLAB 04/07/09 2cms at time of surgery
Dr. Benoit and Schramm, Ottawa Civic Campus
SSD ,some facial numbness
Baha surgery sept 22/09
residual tumor 13mmX7mmX8mm
2016 new growth.  25mmX21mmX22mm
cyberknife on June 7

LADavid

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Re: Finally received the ANA newsletter!
« Reply #9 on: September 24, 2008, 08:58:52 am »
Thank you, Jim.  I appreciate your comments.  And thank you Jo and Tammy.  I do have a confession about the concise part.  That was actually a 5,000 word story that I had to edit down to 1600 words for the newsletter.  It was painful but it seems like it worked out.  And by the way, while I haven't seen the newsletter yet, I think Lainie has a letter to the editor.  She's a regular participant on this Forum -- who Nancy (NL) and I will be meeting for coffee tomorrow.

Thanks again
David
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Right ear tinnitus w/80% hearing loss 1985.
Left ear 40% hearing loss 8/07.
1.5 CM Translab Rt ear.
Sort of quiet around here.
http://my.calendars.net/AN_Treatments

Cheryl R

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Re: Finally received the ANA newsletter!
« Reply #10 on: September 24, 2008, 09:49:30 am »
Would the 5000 word article work to be put in a magazine?              I am a magazine nut and have seen many other health conditions written about.                Even seen ANs briefly mentioned in hearing loss articles.             Good Housekeeping or Ladies Home Journal or others, here you come!
                                       Cheryl R
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Right mid fossa 11-01-01
  left tumor found 5-03,so have NF2
  trans lab for right facial nerve tumor
  with nerve graft 3-23-06
   CSF leak revision surgery 4-07-06
   left mid fossa 4-17-08
   near deaf on left before surgery
   with hearing much improved .
    Univ of Iowa for all care

lori67

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Re: Finally received the ANA newsletter!
« Reply #11 on: September 24, 2008, 11:17:11 am »
I guess that's the price you pay for being a hero!   :D
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Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

Kaybo

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Re: Finally received the ANA newsletter!
« Reply #12 on: September 24, 2008, 12:27:28 pm »
David~
I still have not received mine, but was able to read your article.  As I knew, you are a wonderful author and it was a great piece!  ;D
It is strange that a lot of the "heros" don't have theirs!  Maybe we are really "sidekicks" (watched "SkyHigh" with the girlies yesterday!)!!

K
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Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

lori67

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Re: Finally received the ANA newsletter!
« Reply #13 on: September 24, 2008, 02:44:13 pm »
Hey, wait a minute... how did you get to read David's article if you didn't get your newsletter?  You must know people in high places....

Lori
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Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

leapyrtwins

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Re: Finally received the ANA newsletter!
« Reply #14 on: September 24, 2008, 02:47:59 pm »
Maybe she's just a "FOD" - friend of David - and got her own personal copy of the article  ;D
Logged
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways
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