Author Topic: NY/NJ Area ANers Lunch Event - JULY 19 in NYC  (Read 21988 times)

leapyrtwins

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Re: NY/NJ Area ANers Lunch Event
« Reply #15 on: June 14, 2008, 10:00:56 am »
Wendy -

I'll let Lori answer for herself.  It might be a day or two, I believe she's in NJ right now with her mom who had surgery.

I will be in NJ at the shore from 7/10-7/15 and in Summit on 7/17 - we fly out of Newark on the morning of the 18th.  I'm planning on a very laid back vacation, but would be more than happy to get together at a beach or a pizza place or at the house we are renting if that fits into your schedule.  That way the kids can kind of run wild and I can hold a grownup conversation  ;)

If you'd like my cell phone number, please PM me.  Maybe we can connect.

Jan

Forgot to say that this same thing goes for anyone else who might have an interest in coming to the shore and meeting up.  I am sharing the house with my brother and his girlfriend - it belongs to a friend of theirs - so I really can't offer anyone overnight accomodations, but if anyone wants to hang out call me.
« Last Edit: June 14, 2008, 10:02:57 am by leapyrtwins »
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

lori67

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Re: NY/NJ Area ANers Lunch Event
« Reply #16 on: June 16, 2008, 09:08:06 am »
Ok, back from NJ.... again.... I feel like I'm living there again...

Anyway, I've got family/friends/total strangers scheduled to be in and out the whole week, so I can't make it to NY this trip.  I'm only about 15 miles from where Jan will be though, so if anyone's up for some good pizza and a day on the beach, that'll work for me!

NY crew - make sure you take pictures! 

Lori
Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

leapyrtwins

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Re: NY/NJ Area ANers Lunch Event
« Reply #17 on: June 16, 2008, 09:11:40 am »
Yes! Pictures would be great!  Wonderful idea, Lori  ;D

If Lori and I meet up at the shore, we'll take pictures also - although don't expect any of me in a bathing suit  ::)

Trust me; you'll all be thankful  ;D

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Debbi

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Re: NY/NJ Area ANers Lunch Event
« Reply #18 on: June 16, 2008, 10:06:54 am »
Okay, so it is sounding like either Sat the 21st or Sun the 22nd would work for most.  We'll have to bring little pictures of Jan and Loir and set them at the table so they can be with in at least that small way. 

So, can we start to pin down either the Sat or Sun date?  Who's in???
Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

jerseygirl

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Re: NY/NJ Area ANers Lunch Event
« Reply #19 on: June 16, 2008, 02:29:24 pm »
Debbi,

July 21 or 22 will work for me. Glad you are not having an infection and hope you will be PICCless real soon!

                    Eve

Right side AN (6x3x3 cm) removed in 1988 by Drs. Benjamin & Cohen at NYU (16 hrs); nerves involved III - XII.
Regrowth at the brainstem 2.5 cm removed by Dr.Shahinian in 4 hrs at SBI (hopefully, this time forever); nerves involved IV - X with VIII missing. No facial or swallowing issues.

leapyrtwins

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Re: NY/NJ Area ANers Lunch Event
« Reply #20 on: June 16, 2008, 08:48:52 pm »
We'll have to bring little pictures of Jan and Lori and set them at the table so they can be with in at least that small way. 

Debbi -

that is SO sweet!

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

jtd71465

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Re: NY/NJ Area ANers Lunch Event
« Reply #21 on: June 17, 2008, 04:08:18 am »
I had to check with the boss first but I'm in....if we do the Sunday I need to be back for a 6:30PM meeting...


Joe-
Right side AN removed 1/10/07 @ NYU Medical Center
Dr's Roland and Golfinos

wendysig

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Re: NY/NJ Area ANers Lunch Event
« Reply #22 on: June 17, 2008, 08:34:58 am »
Hi Debbi -
Just a point of clarification, Saturday and Sunday are July 19 and 20.    You must have been looking at June's calendar if we are talking about meeting for lunch in July because June 21 and 22 are Saturday and Sunday.  Anyway, it looks like I should be able to make it on either day.  I pinned Dr. Choe down and he is now saying Friday, July 25 for my surgery date.   This seems pretty certain as the date was changed to accomodate Dr. Chen's schedule.  I'm not ready to put it on the calendar yet because it could still change.  I'm trying to remember to breathe since I found this to be good advice.  Hoping you are feeling good today.

Wendy
1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

lori67

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Re: NY/NJ Area ANers Lunch Event
« Reply #23 on: June 17, 2008, 09:18:51 am »
Wendy - yes, breathing is good advice!  I'd keep it up if I were you!   :D

And I don't think I have any recent pictures of myself to put on the table, but I look just like a supermodel, so just cut one out of a magazine and we'll pretend it's me - okay?  And try not to be too disappointed when we actually do meet in person...   :-\

Lori
Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

Debbi

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Re: NY/NJ Area ANers Lunch Event
« Reply #24 on: June 17, 2008, 09:33:21 am »
Okay, supermodel pictures at the ready!

Wendy, thanks for noticing my date snafu - you're right, I was looking at June.  And, GREAT news about having a sorta definite date!  Wahoo!!

So, can we agree on Saturday, July 19??  (Joe, does that still work for you?)

Spouses/blokes/wenches welcome of course!

Debbi - I'll be the one with a scarred belly and a crooked smile...   ;D
Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

leapyrtwins

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Re: NY/NJ Area ANers Lunch Event
« Reply #25 on: June 17, 2008, 10:25:02 am »
Ohh, Debbi's going to show her belly scar  :o

Lori, maybe we should change our plans - we don't want to miss that one  ;)

Wendy -

hope you get a definite date soon.

Jan

BTW, I'm not blonde, but can I be Christie Brinkley?
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Debbi

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Re: NY/NJ Area ANers Lunch Event
« Reply #26 on: June 17, 2008, 12:29:57 pm »
Trust me, Jan, NO ONE wants to see that!!  (Belly scar, that is!)

Yes, you definitely get to be Christie Brinkley - in fact, I can see the resemblance!  Now, who wants to be Heidi Klum? 

Debbi -watch out - spitting stitch coming at you!
Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

Kaybo

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Re: NY/NJ Area ANers Lunch Event
« Reply #27 on: June 17, 2008, 12:57:48 pm »
I'll take Heidi Klum - I mean it is only fair - she's had some kids, I've had some kids - I bet our bodies are about in the same shape... ;D

K
Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

lori67

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Re: NY/NJ Area ANers Lunch Event
« Reply #28 on: June 17, 2008, 01:02:35 pm »
Well, as long as Debbi is showing off her scar, then there's no reason for me to show mine.

I'll take Cindy Crawford (without the mole).  Not too many dark haired super models out there, are there?

Oh, and Wendy, I will be checking into the beach house on the 12th of July and checking out on the 19th.  I forgot to answer you last post.  Sorry! 

Lori
Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

jtd71465

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Re: NY/NJ Area ANers Lunch Event
« Reply #29 on: June 17, 2008, 01:58:48 pm »
The 19th works for me....as far as bringing the wife, I was looking to have fun.....

Joe-
Right side AN removed 1/10/07 @ NYU Medical Center
Dr's Roland and Golfinos