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Author Topic: Miss Molly surgery updates  (Read 13732 times)

MissMolly

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Miss Molly surgery updates
« on: June 22, 2009, 05:56:53 am »
Hi folks...
The nurses just rolled Molly in...She is keeping a good "game face" going...
She is definately looking foward to getting thru this...
As you all know...All one can do is just wait...
I will post updates...
Cheers all...
Steve

ps...I saw something in this thread about moving the discussion to another area...
I'm a rookie so just let me know if I should...
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Diagnosed 3/09 1.1cm tumor - 4/17/09 - had grown to 1.2
Age 61 - married with three adult kids
MidFossa surgery completed June 22nd
Mass General/Mass Eye and Ear - Martuza and McKenna
The tumor has grown back.  Now working with Mass General.  Dr. Loeffler feels I am not a candidate for proton beam.

Lilan

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Re: Miss Molly surgery updates
« Reply #1 on: June 22, 2009, 06:48:59 am »
Prayers for Miss Molly and loved ones today!
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Facial nerve hemangioma. Probable dx 7/2008 confirmed 4/2009. Combo middle fossa and translab to remove the blood vessel malformation and snip ruined hearing and balance nerves by Drs. House and Brackmann @ House 6/2009. Doing great!

NancyMc

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Re: Miss Molly surgery updates
« Reply #2 on: June 22, 2009, 08:13:47 am »
I say just leave it here, so us junkies can find the updates, but then I'm not in any position of authority.
Did the muffin basket go in with her?  If not, get them to the Grey surgical desk where the team take their breaks.
Good luck.
Nancy
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Watch and Wait since 9/19/01
Increased from 1.1 x 1.9 to 1.9 x 1.9 cm as of 10/27/08
Right SSD, tinnitus, compensating balance
Dr. McKenna at Mass Eye and Ear and Dr. Barker at MGH
Translab April 8, 9 hours, 18 mm Tumor all gone SSD some facial weakness

ppearl214

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Re: Miss Molly surgery updates
« Reply #3 on: June 22, 2009, 09:54:57 am »
Quote from: MissMolly on June 22, 2009, 05:56:53 am
Hi folks...
The nurses just rolled Molly in...She is keeping a good "game face" going...
She is definately looking foward to getting thru this...
As you all know...All one can do is just wait...
I will post updates...
Cheers all...
Steve

ps...I saw something in this thread about moving the discussion to another area...
I'm a rookie so just let me know if I should...

Hi Steve and thank you for keeping us updated on Molly. The wishes still coming through from the N. Shore towards MGH.  Since you are a "rookie", will give you a break since today is a wee bit stressful, but yes, we should continue this in "Post Treatment", hoping that the next time you post, Molly will be an official "postie"... I know she's been waiting to be called that! :)

Hang in there... and hoping next time you check in, it will be terrific post-surgery news. 

Phyl
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MissMolly

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Re: Miss Molly surgery updates
« Reply #4 on: June 22, 2009, 11:47:01 am »
The Muffins got wheeled in with Molly...
She saw to it...
Right now just waiting...
Will post over in "Post Treatment" with any more news...
Cheers all...
Steve
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Diagnosed 3/09 1.1cm tumor - 4/17/09 - had grown to 1.2
Age 61 - married with three adult kids
MidFossa surgery completed June 22nd
Mass General/Mass Eye and Ear - Martuza and McKenna
The tumor has grown back.  Now working with Mass General.  Dr. Loeffler feels I am not a candidate for proton beam.

jadeneonsiren

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Re: Miss Molly surgery updates
« Reply #5 on: June 22, 2009, 12:48:32 pm »
Hey Steve!  I've got my train tickets and all that and I'm heading up on the 26th to Worchester.  No worries, I've got a ride all set up so I don't need a pick up or anything.  Give me a call and let me know how mom's doing when you can OK?  Please?  ^_^  I left a message at home, but I wasn't sure how often you'll be checking them.

Mom, I love you and I hope your surgeons are more polite then my urologist was ha ha!

Love
Adrienne
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CHD63

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Re: Miss Molly surgery updates
« Reply #6 on: June 22, 2009, 02:48:38 pm »
Molly .....

My thoughts and prayers have been with you and Steve and Adrienne today!  I am anxious to hear that you are out of surgery and doing well.

Clarice
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Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

MissMolly

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Re: Miss Molly surgery updates
« Reply #7 on: June 22, 2009, 03:00:58 pm »
Just chatted with Dr. Martuza...Looks like the muffins did the trick!!!
Molly seems to have come through OK...Doc says the facial and auditory nerves
appear to be intact...We shall see...but it looks good so far...
Cheers all...
Steve
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Diagnosed 3/09 1.1cm tumor - 4/17/09 - had grown to 1.2
Age 61 - married with three adult kids
MidFossa surgery completed June 22nd
Mass General/Mass Eye and Ear - Martuza and McKenna
The tumor has grown back.  Now working with Mass General.  Dr. Loeffler feels I am not a candidate for proton beam.

cin605

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Re: Miss Molly surgery updates
« Reply #8 on: June 22, 2009, 03:11:50 pm »
Woo-hoo! ;DI am so glad the surgery went well.wishing a happy,speedy recoup.
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2cm removed retrosig 6/26/08
DartmouthHitchcock medical center lebanon,N.H.
43yrs old

stoneaxe

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Re: Miss Molly surgery updates
« Reply #9 on: June 22, 2009, 03:25:38 pm »
Great news!....all our best.
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Bob - Official Member of the Postie/Toasty Club
6mm AN treated with Proton Beam Radiosurgery in March 2004
at Mass General Hospital, Dr's Loeffler and Chapman
Cut the little bugger out the second time around in 2009..translab at MGH with Dr's McKenna and Barker.
http://www.capecodbaychallenge.org

NancyMc

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Re: Miss Molly surgery updates
« Reply #10 on: June 22, 2009, 05:08:25 pm »
Yippee!  Another MGH/MEEI success story . . .
Tell her I hope she gets a window seat on the 12th floor and enjoys the great view for as long as necessary.
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Watch and Wait since 9/19/01
Increased from 1.1 x 1.9 to 1.9 x 1.9 cm as of 10/27/08
Right SSD, tinnitus, compensating balance
Dr. McKenna at Mass Eye and Ear and Dr. Barker at MGH
Translab April 8, 9 hours, 18 mm Tumor all gone SSD some facial weakness

tenai98

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Re: Miss Molly surgery updates
« Reply #11 on: June 22, 2009, 05:17:23 pm »
Great news...
JO ;D
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14mmX11mmX11mm left ear
TRANSLAB 04/07/09 2cms at time of surgery
Dr. Benoit and Schramm, Ottawa Civic Campus
SSD ,some facial numbness
Baha surgery sept 22/09
residual tumor 13mmX7mmX8mm
2016 new growth.  25mmX21mmX22mm
cyberknife on June 7

Jim Scott

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Re: Miss Molly surgery updates
« Reply #12 on: June 22, 2009, 05:34:57 pm »
Great news, Steve - and just what everyone was hoping for! 

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

moe

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Re: Miss Molly surgery updates
« Reply #13 on: June 22, 2009, 06:43:07 pm »
Congratulations!
Another successful surgery.
Will stay tuned.  Now Steve and Adrienne get some rest ya hear?
Maureen
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06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty

SML

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Re: Miss Molly surgery updates
« Reply #14 on: June 22, 2009, 06:50:53 pm »
That's wonderful news! A new postie is born! :D

Best wishes for Molly's recovery, and a big thank you Steve and Adrienne for keeping us updated.

Scarlett and Rich
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SML(Scarlett)-Massachusetts
1.5 cm x 2.5 cm Cystic AN - Right side
Retrosigmoid 3/18/09 at MGH in Boston,MA.
Dr. Barker - Neurosurgeon, MGH - Dr. Lee - Neuro-Otology, MEEI
no facial issues, SSD right side, balance issues to work on.
Outstanding Surgeons, I'm very happy with the results.
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