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Author Topic: Possible regrowth?  (Read 1073 times)

mlouise073

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Possible regrowth?
« on: May 10, 2009, 11:13:29 am »
I had surgery in March 07 for a tumor 8mm by 13mm and thought it was a done deal but about 3 monthes ago I started having weird symptoms again like facial numbness, fullness in ear, tenderness on crown and back of head, left ear hurts in canal, weak, left arm numbish and feels like atrophy in hand,can't use it too much, chills all the time, balance off more than usual.  I was diagnosed by my neurologist 2 monthes ago with b-12 deficiency so he started me on shots.   a few days ago he did an EEG, thought maybe I was having seizures in my brain, and also ordered an MRI which I will get the results of tomorrow (Monday).  Oh, I do hope its good news...I sure could use it!  We all can!
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8mm by 13mm located in left cerebellopontine angle extending into internal auditory canal growing toward brainstem. Surgery in March 07 with Dr. David M. Kaylie at Baptist Hospital in Nashville

Jackie

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Re: Possible regrowth?
« Reply #1 on: May 10, 2009, 11:20:18 am »
Mlouise073,

Prayers are going out to you for good results of your MRI and for your peace of mind. Please let us know how you are doing. We are here to help!
Jackie
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9mm x 11mm Right Side AN mild Tinnitis, and 60% hearing loss
Diagnosed 02/04/2007
Nov.13th, diagnosed with 5mm Meningioma
9/24/08 diagnosed with Aneurysm
Wait and watch per ENT's advice and researching my options!!! What's next???

CHD63

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Re: Possible regrowth?
« Reply #2 on: May 10, 2009, 01:06:37 pm »
I think regrowth is something we all fear.  I pray that your MRI is negative .... and furthermore that you find relief from your troubling symptoms!

Clarice
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Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

EJTampa

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Re: Possible regrowth?
« Reply #3 on: May 10, 2009, 01:29:26 pm »
Mlouise073,
 
I'm praying that your MRI shows nothing serious, including NO REGROWTH!  You are 2 years post op already, did you have an MRI at 1 year?  If so, was it completely clear?
 
I hope your symptoms turn out to be related to something simple and easily treated.
 
Ernie
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-1.3 X 0.8 cm AN in the right cerebellopontine angle extending into the internal auditory canal.
-Retrosigmoid Surgery with Dr. Bartels and Dr. Danner at Tampa General 3/5/2009.
-Had to cut hearing nerve to get "sticky" tumor, so SSD right side.

Jim Scott

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Re: Possible regrowth?
« Reply #4 on: May 10, 2009, 01:41:52 pm »
Hi, Mary ~

I wanted to welcome you again -  but also express my regret that you're having AN-like symptoms and are, naturally, concerned.  A re-growth rapid and large enough to generate the type and severity of symptoms you describe would be relatively rare - but not out of the range of possibility. Of course, the upcoming MRI scan should answer your question definitely.  I join many others in praying that it renders good news.  Please let us know - either way.  Thanks.  :)

Jim 
« Last Edit: May 10, 2009, 03:08:27 pm by Jim Scott »
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.
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