Brief poll on conditions post-treatment

[GRACE1]

. size of tumor pre-treatment - see signature
2. treatment type (radio-surgery or surgery) GK
3. delivery method or surgical approach taken

4. balance pre-treatment (1-10) 9
5. balance post-treatment short term (3 months) (1-10) 9
6. balance post-treatment long term (1-10) 8

7. hearing pre-treatment (1-10) 6 - AN side
8. hearing post-treatment short term (3 months) (1-10) 5 - AN side
9. hearing post-treatment long term (1-10) 2 - AN side

10. headache pre-treatment (1-10) 7
11. headache post-treatment short term (3 months) (1-10) 7
12. headache post-treatment long term (1-10) 9

13. Facial pre-treatment (1-10) 10
14. facial post-treatment short term (3 months) (1-10) 10
15. facial post-treatment long term (1-10) 10

16. cognitive pre-treatment (1-10) 9
17. cognitive post-treatment short term (3 months) (1-10) 9
18. cognitive post-treatment long term (1-10) 9

19. would you deem your treatment a success (1-10) 10 is very successful 1 not successful     10!
20. Comments - clarifications -
21. where was your treatment performed, Drs?   Wake Forest - Winston Salem NC; Drs McMullen & Tatter

[ppearl214]

The ANA-sponsored 2008 survey has just been published on the ANA website:

http://www.anausa.org/patient_survey.html

Many of the questions noted in Bob's survey here are also answered in the ANA survey. Definately a good read.

Phyl

[ppearl214]

ok, I'll play

1. size of tumor pre-treatment:  1cm
2. treatment type (radio-surgery or surgery): Radiosurgery
3. delivery method or surgical approach taken:  Cyberknife Fractionated

4. balance pre-treatment (1-10)  7
5. balance post-treatment short term (3 months) (1-10) 7
6. balance post-treatment long term (1-10)  7

7. hearing pre-treatment (1-10)  9
8. hearing post-treatment short term (3 months) (1-10)  7
9. hearing post-treatment long term (1-10)  9

10. headache pre-treatment (1-10)  7
11. headache post-treatment short term (3 months) (1-10) 6
12. headache post-treatment long term (1-10)  7

13. Facial pre-treatment (1-10)  9
14. facial post-treatment short term (3 months) (1-10)  9
15. facial post-treatment long term (1-10)  9

16. cognitive pre-treatment (1-10)  7
17. cognitive post-treatment short term (3 months) (1-10)  7
18. cognitive post-treatment long term (1-10)  7

19. would you deem your treatment a success (1-10) 10 is very successful 1 not successful   10
20. Comments - clarifications -  None
21. where was your treatment performed, Drs?  Beth Israel Boston, Drs Mahadaven, Wong

[leapyrtwins]

Well, I had brain surgery a year ago and can't figure out how to fill out this survey (obviously other brain surgery survivors have figured it out, so maybe it's just me). Should I select one of the responses, delete those numbers and fill in my own? Or is there another method?

Thanks!

Catherine (JerseyGirl 2)

Catherine -

I don't know how everyone else did it, but I copied Steve's response.  Then I basically responded to Bob's post and just pasted and edited.

There may be a more scientific way, but that worked for me.

Jan

[Jim Scott]

1. size of tumor pre-treatment:  - 4.5 cm
2. treatment type (radio-surgery or surgery): - both
3. delivery method or surgical approach taken: - Retro/FSR

4. balance pre-treatment (1-10) - 4
5. balance post-treatment short term (3 months) (1-10) - 8
6. balance post-treatment long term (1-10) - 9

7. hearing pre-treatment (1-10) - 1
8. hearing post-treatment short term (3 months) (1-10) - 1
9. hearing post-treatment long term (1-10) - 1

10. headache pre-treatment (1-10) 9
11. headache post-treatment short term (3 months) (1-10) - 10
12. headache post-treatment long term (1-10) - 10

13. Facial pre-treatment (1-10) - 8
14. facial post-treatment short term (3 months) (1-10 ) - 9
15. facial post-treatment long term (1-10)  - 9

16. cognitive pre-treatment (1-10) - 7
17. cognitive post-treatment short term (3 months) (1-10) - 8
18. cognitive post-treatment long term (1-10) - 9

19. would you deem your treatment a success (1-10) 10 is very successful 1 not successful    - 10

20. Comments - clarifications -  The surgery/radiation procedure is advantageous for preserving the facial nerves.

21. where was your treatment performed, Drs?  - Hospital of Saint Raphael, New Haven, CT   Dr. Issac Goodrich, Dr. Judith Gorelick - neurosurgeons.  Dr. Johnathan Haas - radiation oncologist.

[JerseyGirl2]

Jan,

Thanks for the instructions -- I'll give that a try!

Catherine

[wwalker]

1. size of tumor pre-treatment -1.5 cm
2. treatment type (radio-surgery or surgery) - surgery
3. delivery method or surgical approach taken - retrosigmoid

4. balance pre-treatment (1-10) -10
5. balance post-treatment short term (3 months) (1-10) -3
6. balance post-treatment long term (1-10) -7

7. hearing pre-treatment (1-10) -8
8. hearing post-treatment short term (3 months) (1-10) - 0, SSD
9. hearing post-treatment long term (1-10) 0, SSD

10. headache pre-treatment (1-10) -1
11. headache post-treatment short term (3 months) (1-10) -8
12. headache post-treatment long term (1-10) -1

13. Facial pre-treatment (1-10) -10
14. facial post-treatment short term (3 months) (1-10) -3
15. facial post-treatment long term (1-10) -7

16. cognitive pre-treatment (1-10) -10
17. cognitive post-treatment short term (3 months) (1-10) -10
18. cognitive post-treatment long term (1-10) -10

19. would you deem your treatment a success (1-10) 10 is very successful 1 not successful  - 8
20. Comments - clarifications - its been a long slow process returning to near normal from pre-surgery
21. where was your treatment performed, Drs? Presbyterian Hospital, Albuquerque, NM, Drs. Karl Horn & Andrew Mezger

[nteeman]

I may be wrong but it appears to me that some are answering the Headache section of this poll differently. Some appear to be rating 1 to 10 as 10 being normal (no headache) and 1 being bad. Others seem to be responding with 1 as no headache and 10 as bad head aches.  Does anyone else see these as inconsistent?

Neil -

If you were referring to me, I did mistakenly post low numbers (for headache) when I meant to make them high.  I corrected that.  Thanks for noticing because, obviously, I didn't. 

Jim

[mk]

1. size of tumor pre-treatment -2.8 cm (10 ccs)
2. treatment type (radio-surgery or surgery) - radiosurgery
3. delivery method or surgical approach taken - GK

4. balance pre-treatment (1-10) -10
5. balance post-treatment short term (3 months) (1-10) -10
6. balance post-treatment long term (1-10) -10

7. hearing pre-treatment (1-10) -9
8. hearing post-treatment short term (3 months) (1-10) - 9
9. hearing post-treatment long term (1-10) - 9

10. headache pre-treatment (1-10) -10
11. headache post-treatment short term (3 months) (1-10) -10
12. headache post-treatment long term (1-10) -10

13. Facial pre-treatment (1-10) -10
14. facial post-treatment short term (3 months) (1-10) -10
15. facial post-treatment long term (1-10) -10

16. cognitive pre-treatment (1-10) -10
17. cognitive post-treatment short term (3 months) (1-10) -10
18. cognitive post-treatment long term (1-10) -10

19. would you deem your treatment a success (1-10) 10 is very successful 1 not successful  - 10
20. Comments - clarifications: My presenting symptom, which was mild facial numbness (reduced sensation), still persists. No issues other than that.
21. where was your treatment performed, Drs? Toronto Western Hospital, Canada.

Marianna

[Dog Lover]

1. size of tumor pre-treatment: 9 mm x 3mm
2. treatment type (radio-surgery or surgery): surgery
3. delivery method or surgical approach taken: Mid-Fossa

4. balance pre-treatment (1-10): 10
5. balance post-treatment short term (3 months) (1-10): 8
6. balance post-treatment long term (1-10): 9

7. hearing pre-treatment (1-10): 9
8. hearing post-treatment short term (3 months) (1-10): 6
9. hearing post-treatment long term (1-10): 7

10. headache pre-treatment (1-10): 10
11. headache post-treatment short term (3 months) (1-10): 10
12. headache post-treatment long term (1-10): 10

13. Facial pre-treatment (1-10): 10
14. facial post-treatment short term (3 months) (1-10): 10
15. facial post-treatment long term (1-10): 10

16. cognitive pre-treatment (1-10): 10
17. cognitive post-treatment short term (3 months) (1-10): 7
18. cognitive post-treatment long term (1-10): 10

19. would you deem your treatment a success (1-10) 10 is very successful 1 not successful: 10+
20. Comments - clarifications : treatment was 8 months ago. Fatigue and just taking a bit longer to think things out was the cognitive issue.
21. where was your treatment performed, Drs? Drs. Gantz and Woodson, University of IA Hospitals & Clinics

[cindyj]

1. size of tumor pre-treatment - 1.5cm
2. treatment type (radio-surgery or surgery) - surgery
3. delivery method or surgical approach taken - translab

4. balance pre-treatment (1-10) - 7
5. balance post-treatment short term (3 months) (1-10) - 4
6. balance post-treatment long term (1-10) - 8, but I'm only 5 mos post-op

7. hearing pre-treatment (1-10) - 9+
8. hearing post-treatment short term (3 months) (1-10) - 1 SSD
9. hearing post-treatment long term (1-10) SSD

10. headache pre-treatment (1-10) - 5
11. headache post-treatment short term (3 months) (1-10) - 9
12. headache post-treatment long term (1-10) - 9

13. facial pre-treatment (1-10) - 10
14. facial post-treatment short term (3 months) (1-10) - 4
15. facial post-treatment long term (1-10) - 9+

16. cognitive pre-treatment (1-10) - 10
17. cognitive post-treatment short term (3 months) (1-10) - 10
18. cognitive post-treatment long term (1-10) - 10

19. would you deem your treatment a success (1-10) 10 is very successful 1 not successful - 10
20. comments - clarifications - For the balance question, I answered more as it related to dizziness/vertigo.  My balance seemed pretty good pre-surgery - not wobbly, etc
21. where was your treatment performed, Drs? House Ear Clinic, Drs Friedman and Schwartz

[MAlegant]

1. size of tumor pre-treatment: 3cm (3x4x?)
2. treatment type (radio-surgery or surgery): surgery
3. delivery method or surgical approach taken: retrosigmoid

4. balance pre-treatment (1-10): 9
5. balance post-treatment short term (3 months) (1-10): 5
6. balance post-treatment long term (1-10): 9

7. hearing pre-treatment (1-10): 10
8. hearing post-treatment short term (3 months) (1-10): 9
9. hearing post-treatment long term (1-10): 10

10. headache pre-treatment (1-10): 5
11. headache post-treatment short term (3 months) (1-10): 3
12. headache post-treatment long term (1-10): 9

13. Facial pre-treatment (1-10): 10
14. facial post-treatment short term (3 months) (1-10): 8
15. facial post-treatment long term (1-10): 9

16. cognitive pre-treatment (1-10): 10
17. cognitive post-treatment short term (3 months) (1-10): 7
18. cognitive post-treatment long term (1-10): 9

19. would you deem your treatment a success (1-10) 10 (very successful)
20. Comments - clarifications : treatment was 8+ months ago.  Was a trigeminal tumor, not an AN, but involved the same cranial nerves.  Was completely removed.
21. where was your treatment performed, Drs?  University Hospitals Cleveland, Drs. Megerian and Bambikidis

[Sonja]

1. size of tumor pre-treatment:  - 2.2 cm
2. treatment type (radio-surgery or surgery): - surgery
3. delivery method or surgical approach taken: - translab

4. balance pre-treatment (1-10) - 9
5. balance post-treatment short term (3 months) (1-10) - 8
6. balance post-treatment long term (1-10) - TBD

7. hearing pre-treatment (1-10) - 1 (profound)
8. hearing post-treatment short term (3 months) (1-10) - 0 (SSD)
9. hearing post-treatment long term (1-10) - not there but 0 (SSD)

10. headache pre-treatment (1-10) 10
11. headache post-treatment short term (3 months) (1-10) - 10
12. headache post-treatment long term (1-10) - not there but don't expect a change

13. Facial pre-treatment (1-10) - 10
14. facial post-treatment short term (3 months) (1-10 ) - 9 (10 with-in 2 weeks post)
15. facial post-treatment long term (1-10)  - not there but don't expect a change

16. cognitive pre-treatment (1-10) - 10
17. cognitive post-treatment short term (3 months) (1-10) - 10
18. cognitive post-treatment long term (1-10) - not there but don't expect a change

19. would you deem your treatment a success (1-10) 10 is very successful 1 not successful    - 10

20. Comments - clarifications -  My balance was extremely good, noticed slight change prior to surgery. Believe I started compensating before surgery. I did have facial twitching Oct/Nov 2008 then it stopped surgery was Feb 18th, 2009

21. where was your treatment performed, Drs?  - St. Vincent Medical Ctr - Los Angeles, CA - Dr.s House, Schwartz and Stefan (my heros)

[stoneaxe]

Jan,

Thanks for the instructions -- I'll give that a try!

Catherine

Catherine...Jan has you on the right track, copy and paste from someone elses and then just write over their response.

Phyl...thanks for the survey link.


Thanks for the responses all.

[cindyj]

I changed my answer for the balance question, after thinking about it in the middle of the night...my first answer was based purely on "balance," which I think of as being able to stand up straight, no fear of falling, etc.  However, I later thought you might have been asking the broader question of dizziness/vertigo, so I changed my answer.  Perhaps I'm splitting hairs

Cindy