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Author Topic: We're off to see the wizards...  (Read 3960 times)

DLM4me

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We're off to see the wizards...
« on: April 07, 2009, 09:07:27 pm »
...the wonderful wizards of AN surgery!  Tomorrow's my day, and I'm ready for it.

We spent the better part of today over at House, first meeting with three of the doctors who will be there tomorrow and also having several tests.  We reviewed the approach that will be used, middle fossa, and agreed that they would do everything possible to preserve hearing on that side.  Dr Schwartz thought I was making the wrong decision on that, but--luckily--Dr Brackmann totally agreed with me that it's worth trying to save whatever hearing is left.  So middle fossa with hearing preservation if at all possible it is.

I'm so glad I found this forum.  What a source of information, comfort, and understanding.

Good luck to the others who are having surgery tomorrow or soon afterwards.

I'll see you on the other side...
« Last Edit: April 07, 2009, 10:33:46 pm by DLM4me »
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Middle fossa craniotomy 04/08/09, Drs Brackmann, Schwartz, et al, St Vincent/HEI in Los Angeles.

Darlene

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Re: We're off to see the wizards...
« Reply #1 on: April 08, 2009, 05:21:22 am »
Good Luck!  I will keep you in my prayers and thoughts. 

Darlene
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DX: 12/6/08
1.4cm intracanicular -Middle Fossa Surgery on 7/1/09 @ NYU. Hearing preserved and speech discrimination has actually gotten better!!   Temporary Facial Paralysis- showing improvement.  1yr post-op hearing test- same 96% speech recognition- yeah!

joebloggs

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Re: We're off to see the wizards...
« Reply #2 on: April 08, 2009, 05:48:23 am »
Good luck Whoop whoop!!! I'll be thinking of you! xx
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Right sided AN 2.7cm at last MRI.  Hearing loss/facial numbness.  Translab scheduled March 11th 2009.  Translab at Royal Melbourne Hospital, Australia successful!  Total tumour removed, SSD, no facial issues, numbness has left the building, balance issues but they'll get better and I'm loving life!

EJTampa

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Re: We're off to see the wizards...
« Reply #3 on: April 08, 2009, 06:55:57 am »
Praying for a super duper outcome for you!
 
Ernie
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-1.3 X 0.8 cm AN in the right cerebellopontine angle extending into the internal auditory canal.
-Retrosigmoid Surgery with Dr. Bartels and Dr. Danner at Tampa General 3/5/2009.
-Had to cut hearing nerve to get "sticky" tumor, so SSD right side.

Lilan

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Re: We're off to see the wizards...
« Reply #4 on: April 08, 2009, 07:18:01 am »
Great wishes today!

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Facial nerve hemangioma. Probable dx 7/2008 confirmed 4/2009. Combo middle fossa and translab to remove the blood vessel malformation and snip ruined hearing and balance nerves by Drs. House and Brackmann @ House 6/2009. Doing great!

nteeman

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Re: We're off to see the wizards...
« Reply #5 on: April 08, 2009, 07:51:24 am »
Best whishes. I hope you have a successful and easy outcome.

Neal
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Diagnosed 12/16/2008
AN 2.4 X 2.0 X 1.6 CM
surgery performed on 1/27/2009 Mt. Sinai Hospital, NYC
Dr.Bederson & Dr. Smouha
9:30am thru 5:50pm
http://www.facebook.com/neal.teeman

anissa

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    • My Journey
Re: We're off to see the wizards...
« Reply #6 on: April 08, 2009, 09:04:21 am »
Praying for you, Godspeed.
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Anissa
2/11/09 Diagnosed AN 2.1cm
2/26/09 Consult with Dr. Clough Shelton, U of Utah
4/1/09 Translab with Shelton & Couldwell
--little teensy bit of tumor or cells on facial nerve, stuck! No facial weakness, Rt side SSD
4/8/10 1-yr MRI, "Looks great!"

Kaybo

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Re: We're off to see the wizards...
« Reply #7 on: April 08, 2009, 01:32:10 pm »
...Just sent another prayer up for you...

K
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Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

SML

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Re: We're off to see the wizards...
« Reply #8 on: April 08, 2009, 04:13:34 pm »
Adding to the list of those thinking of you and sending prayers your way.

Scarlett & Richie
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SML(Scarlett)-Massachusetts
1.5 cm x 2.5 cm Cystic AN - Right side
Retrosigmoid 3/18/09 at MGH in Boston,MA.
Dr. Barker - Neurosurgeon, MGH - Dr. Lee - Neuro-Otology, MEEI
no facial issues, SSD right side, balance issues to work on.
Outstanding Surgeons, I'm very happy with the results.

Sonja

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Re: We're off to see the wizards...
« Reply #9 on: April 13, 2009, 05:31:12 pm »
Sending many blessings your way. You are in good hands!!

Sonja
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Symptoms 2005
AN diagnosed January 2007
Watch & Wait until now
Surgery (Translab) scheduled February 18, 2009 HEI (Dr. House, Dr. Schwartz, Dr. Stefan)
No servicable hearing in affected ear

sgerrard

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Re: We're off to see the wizards...
« Reply #10 on: April 17, 2009, 11:01:48 pm »
Donnalynn,

DLM4me is home from surgery. Her latest post is here: http://anausa.org/forum/index.php?topic=9321.0

Steve
Logged
8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.
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