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Author Topic: home  (Read 3716 times)

tenai98

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home
« on: April 14, 2009, 03:02:37 pm »
I'm guessing it was my son's g/f who posted for me
Surgery was seven hours. left a little behind to save facial nerve. Had a very hard time coming out of anestetic ( sorry for spelling errors) I felt like a lead weight but on thurs they got me up walikin and I havent looked back since..no paralysis, no eye problem, no paiin, some liquids tasted like soap.  I am so happy...now for the road to recovry..long ans slow....i'm weak and wobbly but alive...time for a nap
jo ;D
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14mmX11mmX11mm left ear
TRANSLAB 04/07/09 2cms at time of surgery
Dr. Benoit and Schramm, Ottawa Civic Campus
SSD ,some facial numbness
Baha surgery sept 22/09
residual tumor 13mmX7mmX8mm
2016 new growth.  25mmX21mmX22mm
cyberknife on June 7

ppearl214

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Re: home
« Reply #1 on: April 14, 2009, 03:07:27 pm »
Jo! Welcome back, you Postie! Please please take it easy... rest... and thank you for the update

continued wellness wishes to you.... hang in there!
Phyl
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"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

Jim Scott

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Re: home
« Reply #2 on: April 14, 2009, 03:59:45 pm »
Hi, Jo ~

Thanks for making the effort to post.  It's much appreciated.  I'm so pleased to read that you're doing so well!  When it comes to good outcomes for AN surgical patients, it seems as if prayers are being answered all over the place.  You'll be 'weak and wobbly' for awhile but that will slowly pass.  I think you're headed for a fine recovery if you're this good so soon after surgery.  Rest all you need to and update us when you can.  We''ll wait.  :)

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

NancyMc

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Re: home
« Reply #3 on: April 14, 2009, 04:30:15 pm »
Thank you, Jo.  I had the same struggle digging my way out of the fog.  I had had anaesthesia several times before and found this to be the most difficult, but those were all orthopedic lightweight ops.
Glad to welcome you to PostieLand!
Nancy
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Watch and Wait since 9/19/01
Increased from 1.1 x 1.9 to 1.9 x 1.9 cm as of 10/27/08
Right SSD, tinnitus, compensating balance
Dr. McKenna at Mass Eye and Ear and Dr. Barker at MGH
Translab April 8, 9 hours, 18 mm Tumor all gone SSD some facial weakness

tenai98

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Re: home
« Reply #4 on: April 14, 2009, 05:38:55 pm »
Nancy, glad your treatment went well.  I was thinking of you in that heavy fog I was in. It was horrrible. But once they got me up and walking it was great. I could have come home sat but the extra few days were ego boosterd, plus fpreveryday in i get a hundred bucks. So it was worth it.  I feel so much better at home.
jo ;D
Logged
14mmX11mmX11mm left ear
TRANSLAB 04/07/09 2cms at time of surgery
Dr. Benoit and Schramm, Ottawa Civic Campus
SSD ,some facial numbness
Baha surgery sept 22/09
residual tumor 13mmX7mmX8mm
2016 new growth.  25mmX21mmX22mm
cyberknife on June 7

cindyj

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Re: home
« Reply #5 on: April 14, 2009, 07:25:06 pm »
Hey, Jo!  Welcome home and congrats on being a postie now!  Look forward to talking with you more when you're feeling up to it!  Just take it easy and keep resting...walk a bit, but rest a lot!  So glad things went well for you!

Cindy
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rt side 1.5 cm - Translab on 11/07/08 Dr. Friedman & Dr. Schwartz of House Ear Institute,
feeling great!

"Life consists not in holding good cards, but in playing well those you do hold."  Josh Billings

stoneaxe

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Re: home
« Reply #6 on: April 14, 2009, 07:51:14 pm »
Good to hear it went well...welcome home!
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Bob - Official Member of the Postie/Toasty Club
6mm AN treated with Proton Beam Radiosurgery in March 2004
at Mass General Hospital, Dr's Loeffler and Chapman
Cut the little bugger out the second time around in 2009..translab at MGH with Dr's McKenna and Barker.
http://www.capecodbaychallenge.org

leapyrtwins

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Re: home
« Reply #7 on: April 14, 2009, 07:53:39 pm »
Jo -

glad to hear you're home  ;D

At this point in time, weak and wobbly are par for the course.

You'll see improvement over time - it may be slow going sometimes, but you'll get there.

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

msmaggie

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Re: home
« Reply #8 on: April 14, 2009, 08:14:58 pm »
Yay!  The deed is done!  Welcome to postieland.  The price of admission is pretty steep, but you will find the inhabitants to be friendly and giving of their time.  We hope you continue to do well.

Priscilla
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Diagnosed  left AN 8/07/08, 1.9 CM
Surgery 12/10/08 at Methodist Hospital w/Vrabec and Trask for what turned out to be a cpa meningioma.

tenai98

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Re: home
« Reply #9 on: April 14, 2009, 10:49:37 pm »
Its 1am and I cant sleep. Making a tea and picked up my knitting. Stitches are a little loose but its just a dishcloth so who cares...Its therapy...which btw they said I didn t need any...I was lifting a pop bottle in my bed to practice..One has to be on watch for themselves...Tea and back to bed
Jo ;D
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14mmX11mmX11mm left ear
TRANSLAB 04/07/09 2cms at time of surgery
Dr. Benoit and Schramm, Ottawa Civic Campus
SSD ,some facial numbness
Baha surgery sept 22/09
residual tumor 13mmX7mmX8mm
2016 new growth.  25mmX21mmX22mm
cyberknife on June 7

sgerrard

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Re: home
« Reply #10 on: April 14, 2009, 11:04:04 pm »
Quote from: tenai98 on April 14, 2009, 10:49:37 pm
Making a tea and picked up my knitting.

Well you must be all better then. :)

Steve
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8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

EJTampa

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Re: home
« Reply #11 on: April 14, 2009, 11:06:48 pm »
You sound like you're doing great Jo!  It's so nice to see updates from new posties.  I hope that's decaf tea you are drinking before trying to go back to sleep :)
 
Ernie
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-1.3 X 0.8 cm AN in the right cerebellopontine angle extending into the internal auditory canal.
-Retrosigmoid Surgery with Dr. Bartels and Dr. Danner at Tampa General 3/5/2009.
-Had to cut hearing nerve to get "sticky" tumor, so SSD right side.

suboo73

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Re: home
« Reply #12 on: April 15, 2009, 03:22:59 am »
Congratulations Jo!  You sound great! 

Knitting and tea sounds lovely - my 24 year old daughter loves to knit!

My thoughts and prayers to you and your family for continued healing.
Sincerely,

Sue
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suboo73
Little sister to Bigsister!
9mm X 6mm X 5mm
Misdiagnosed 12+ years?
Diagnosed Sept. 2008/MRI 4/09/MRI 12/09/MRI 1/21/11
Continued W & W

Rivergirl

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Re: home
« Reply #13 on: April 15, 2009, 06:32:20 pm »
Jo and Nancy, congrats on having it all behind you and to be back on the computer, I think you are both amazing!!
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Diagnosed 6/2008
Right AN 2cmx8x9
Sub-Occipital at Mass General with Martusa and McKenna on 5/31/11
Right SSD, very little taste
I think I will make it!

mk

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Re: home
« Reply #14 on: April 15, 2009, 07:07:08 pm »
Jo,

glad to hear that you are feeling well and your surgery was a success. Wishing you a speedy recovery!

Marianna
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GK on April 23rd 2008 for 2.9 cm AN at Toronto Western Hospital. Subsequent MRIs showed darkening initially, then growth. Retrosigmoid surgery on April 26th, 2011 with Drs. Akagami and Westerberg at Vancouver General Hospital. Graduallly lost hearing after GK and now SSD but no other issues.
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