Author Topic: Anissa's Updates  (Read 27018 times)

wendysig

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Re: Anissa's Updates
« Reply #135 on: April 13, 2010, 04:55:10 am »
Hi Anissa!

Congratulations on getting good news regarding your MRI -- I'm sure that's a load off your mind.   ;D  I'm sending best wishes for good health for the future.  Hopefully you will always be asymptomatic for the Chiari Malformation.  As for the wonky balance, our ANs are the gift that keeps on giving and many of of have that problem.  I hope you have more good days than bad ones.

Wendy
1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

tenai98

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Re: Anissa's Updates
« Reply #136 on: April 13, 2010, 05:25:01 am »
Congrats
JO
14mmX11mmX11mm left ear
TRANSLAB 04/07/09 2cms at time of surgery
Dr. Benoit and Schramm, Ottawa Civic Campus
SSD ,some facial numbness
Baha surgery sept 22/09
residual tumor 13mmX7mmX8mm
2016 new growth.  25mmX21mmX22mm
cyberknife on June 7

Kaybo

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Re: Anissa's Updates
« Reply #137 on: April 13, 2010, 06:15:07 am »
Yipee Skipee!!   :) :) :)

K   ;D
Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

moe

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Re: Anissa's Updates
« Reply #138 on: April 13, 2010, 08:06:31 am »
Thanks for the year update. Great news :)
Keep pluggn!
Maureen
06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty

anissa

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    • My Journey
Re: Anissa's Updates
« Reply #139 on: April 13, 2010, 08:59:47 am »
I also have those mind hiccups, you know like yesterday when I went to find the cereal after the girls went to school and when I didn't find it in the pantry I immediately when to the fridge and of course it was in there.  Oh yeah, and I keep putting my two-year-old's shoes on the wrong feet.  I don't know if its because I'm just tired or what but I'll blame the AN because its just a darned good reason ;)
Anissa
2/11/09 Diagnosed AN 2.1cm
2/26/09 Consult with Dr. Clough Shelton, U of Utah
4/1/09 Translab with Shelton & Couldwell
--little teensy bit of tumor or cells on facial nerve, stuck! No facial weakness, Rt side SSD
4/8/10 1-yr MRI, "Looks great!"

moe

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Re: Anissa's Updates
« Reply #140 on: April 14, 2010, 09:41:02 am »
  I don't know if its because I'm just tired or what but I'll blame the AN because its just a darned good reason ;)

I blame whatever I can on the AN.  :D Really! Brain Trauma, you know? I have heard that it takes 5 years to recuperate from brain trauma, and brain surgery is considered brain trauma.
I have 1.2 years left to blame it on the brain trauma, then I'll blame everything on something else.  :D
Maureen
06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty

Keri

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Re: Anissa's Updates
« Reply #141 on: April 15, 2010, 03:05:18 pm »
that explains a lot with me; thanks maureen!

Anissa - glad all went well. Hard to believe it's been a year. How are your kids?

Keri
1.5 left side; hearing loss; translab scheduled for 1/29/09 at Univ of MD at Baltimore
My head feels weird!!

Jim Scott

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Re: Anissa's Updates
« Reply #142 on: April 15, 2010, 03:17:43 pm »
Anissa ~

I applaud your successful (no-growth) one-year MRI results!  Definitely a portent of things to come, I'm sure.  :)

Jim
4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

anissa

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Re: Anissa's Updates
« Reply #143 on: April 15, 2010, 04:15:08 pm »
Keri, thanks for asking about my little ones!  They are doing great and growing oh too fast.  My oldest girls are in first grade, just about out for summer already.  Jackson is contemplating kindergarten in the fall and Addison just turned two.  We're going to have a great summer!

Thanks for all your kind words.  I had about worried myself sick about the whole check-up process and was fairly certain in my own mind that I'd be looking at a big re-growth.  Even after my appointment I wasn't 100% sure but I got the MRI report in the mail yesterday and as I suspected they can see what they left.  According to the report: 

"Status post right transmastoid resection of right acoustic neuroma with fat packing extending into the IAC.  There is a nodular enhancement along the right CP angle at the site of prior surgery.  These finding most likely representing granulation tissue however recurrence in this area is not excluded."

So, I am taking that as - so far so good.  They didn't measure it so it must just be barely noticeable.  Next year they probably won't even be able to see it.   ;D
Anissa
2/11/09 Diagnosed AN 2.1cm
2/26/09 Consult with Dr. Clough Shelton, U of Utah
4/1/09 Translab with Shelton & Couldwell
--little teensy bit of tumor or cells on facial nerve, stuck! No facial weakness, Rt side SSD
4/8/10 1-yr MRI, "Looks great!"

Patti UT

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Re: Anissa's Updates
« Reply #144 on: April 20, 2010, 09:47:02 pm »
Great to hear Anissa,   sorry I was basking on the beach in maui when you were in Slat lake for your check up. Wish I could ahve seen you when you were down.  I'll PM you with the latest  Ever since I got back things have been crazy. 

patti UT
2cm Rt side  middle fossa  at University of Utah 9/29/04.
rt side deafness, dry eye, no taste, balance & congintive issues, headaches galore
7/9/09 diganosed with recurrent AN. Translab Jan 13 2010  Happy New Year