Author Topic: menopause question  (Read 5015 times)

ORIT

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menopause question
« on: March 31, 2009, 05:53:25 am »
I am 49 years old, was diagnosed 4 years ago with acoustic neuroma which is very small (0.3 mm).  I decided to be 'wait and scan' and that MRI results are thankfully showing that the tumor has not grown.  Lately I have been going through various menopause symptoms (weight gain, hot flashes, irritability, etc).  When I asked my gynecologist for estrogen, he was hesitant to prescribe due to the neuroma.  What should I do?

Thank you in advance for your advice

 
Orit :( >:(

EJTampa

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Re: menopause question
« Reply #1 on: March 31, 2009, 07:25:46 am »
Hi Orit,
 
I'm not really the right person to answer your question, but I at least wanted to welcome you to our group.  Congratulations on being member number 3,500, although there is no prize, and I'm sure you'd rather not have the acoustic neuroma.
 
Did your doctor offer you alternative ways of dealing with the symptoms?  I think he/she is concerned about the possibility of increased growth rate with hormones.  Studies have shown that the tumors grow faster when certain hormone levels are higher in the body, such as when a woman is with child.
 
I guess in the end, if nothing else can help your symptoms, it would have to be looked at with a risk versus reward point of view.  Are the menopausal symptoms so bad that it would be worth the risk of jump starting the growth of the tumor?  49 years old is quite young in todays world, so you have decades left to live with the AN.
 
Hopefully others will chime in here, maybe we have someone who has been or still is in your shoes. 
 
Ernie
-1.3 X 0.8 cm AN in the right cerebellopontine angle extending into the internal auditory canal.
-Retrosigmoid Surgery with Dr. Bartels and Dr. Danner at Tampa General 3/5/2009.
-Had to cut hearing nerve to get "sticky" tumor, so SSD right side.

NancyMc

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Re: menopause question
« Reply #2 on: March 31, 2009, 07:46:06 am »
Sorry, but first I had to laugh when I saw that the first responder to the menopause question was Ernie.
However, if I were in your situation, I would try all the alternative therapies shown to be effective before using estrogen.
I did not have symptoms with menopause, so I can not empathize.
I am glad you have a doctor who is concerned with your entire health history and not simply the one in his/her specialty.  That's impressive.
You may never have to have AN treatment if you can avoid growth by not encouraging it.
Best of luck with this new health issue,
Nancy
Watch and Wait since 9/19/01
Increased from 1.1 x 1.9 to 1.9 x 1.9 cm as of 10/27/08
Right SSD, tinnitus, compensating balance
Dr. McKenna at Mass Eye and Ear and Dr. Barker at MGH
Translab April 8, 9 hours, 18 mm Tumor all gone SSD some facial weakness

EJTampa

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Re: menopause question
« Reply #3 on: March 31, 2009, 07:57:20 am »
Sorry, but first I had to laugh when I saw that the first responder to the menopause question was Ernie.

Men suffer just as much as women as they go through menopause, maybe more :)  (I better hide now).
 
Ernie
-1.3 X 0.8 cm AN in the right cerebellopontine angle extending into the internal auditory canal.
-Retrosigmoid Surgery with Dr. Bartels and Dr. Danner at Tampa General 3/5/2009.
-Had to cut hearing nerve to get "sticky" tumor, so SSD right side.

Cheryl R

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Re: menopause question
« Reply #4 on: March 31, 2009, 08:32:14 am »
I have asked my surgeon about the hormone theory and he said he doesn't agree with it, that hormones cause growth.               I do know I was early menopause and was on hormones when my AN experience got going.           I do not believe though that it caused the NF2.    I was off of them by sometime in 2003 and it was then the NF2 was found.                  I did not take Prempro.
                                   Cheryl R
Right mid fossa 11-01-01
  left tumor found 5-03,so have NF2
  trans lab for right facial nerve tumor
  with nerve graft 3-23-06
   CSF leak revision surgery 4-07-06
   left mid fossa 4-17-08
   near deaf on left before surgery
   with hearing much improved .
    Univ of Iowa for all care

Jackie

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Re: menopause question
« Reply #5 on: March 31, 2009, 06:03:08 pm »
Hello Orit,

I was on estrogen for 18 years, right after my Hysterectomy, got off estrogen on doctors advice, dealt with hot flashes for about 4 years, now, they are gone. I would NOT chance being on hormones and maybe giving your AN a growth spirt. Just my opinion. Good luck on your decision.
Jackie
9mm x 11mm Right Side AN mild Tinnitis, and 60% hearing loss
Diagnosed 02/04/2007
Nov.13th, diagnosed with 5mm Meningioma
9/24/08 diagnosed with Aneurysm
Wait and watch per ENT's advice and researching my options!!! What's next???

ppearl214

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Re: menopause question
« Reply #6 on: April 01, 2009, 08:31:44 am »
there have been many discussions here over the past many years about the possibility of estrogen receptors and the connection with AN's/tumors.  I just did a search option and there is much.

Please go to the forum home page, then, do a 'search' for "estrogen". You will see much.

Hope this helps.
Phyl
"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

lori67

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Re: menopause question
« Reply #7 on: April 01, 2009, 09:15:33 am »
Well, we all know Ernie is in touch with his feminine side....menopause answers, pink laptop, leopard print scarf.... ;D

I agree with avoiding the hormones with an AN.  They say that can make the AN grow faster.  There are a lot of alternative therapies out there though - I know of soy being one of the more popular ones.  I'm sure if you go to a health food store, there's probably a whole wall full of stuff for menopause, because so many women are reluctant to take hormones these days.

And back to Dr. Phil again (I swear I don't sit on the couch all day and watch Dr. Phil, I just happen to remember the ones I have seen!), when his wife was going through "the change", she took all herbal remedies to help with her symptoms and had very good luck with it.  I guess the key is finding out which ones will help alleviate your symptoms.

Good luck!
Lori
Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

Glenda

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Re: menopause question
« Reply #8 on: April 01, 2009, 02:35:48 pm »
Hi Orit,

I am in the same boat as you.  I am 50 and am going through menopause too.  My AN was found about a year and a half ago, and I am also in wait and watch.  I have elected to go the "natural" route.  I take an over the counter tablet that has soy, black cohash and some other ingredients.  I am at work now but will look when I go home and give you the name.  It is "women's something" I buy it at Walmart.  It may take a few days to a week or two to get in your system before you see results but it does seem to help lessen hot flashes and effects of menopause.  My doctor also prescribed ambian to help me sleep at night.  I don't take it regularly because I don't want to become dependent on it but if I go several nights and do not rest I take one so that I can get a good nights rest, that makes a world of difference in how you feel.  I sympathize with you and I hope that for both of us menopause doesn't linger for too much longer :)

Glenda
Diagnosed 5 mm AN  Jan 2008
Deep in IAC
June 2010 7 mm
July 2011 8.5 mm
July 2012 1.1 cm
Nov 28, 2012 Mid Fossa Surgery Wake Forest Baptist Hospital-Winston-Salem NC, Dr John Wilson and Dr Eric Oliver


SSD tinnitus dizziness

suz

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Re: menopause question
« Reply #9 on: April 03, 2009, 09:26:26 pm »
Thanks for bringing up this topic. I am a Watch and Wait-er with a 1.5cm unchanging AN; 48 years old and experiencing all of those lovely symptoms of hot flashes, etc. I never considerred a connection with estrogen and the growth of the tumor.  So maybe it's a blessing that my estrogen level is naturally declining! None of my specialists even questioned prescribing Premarin creme for me. Oddly, it seemed to increase my dizziness so I have been hardly using it.  What has helped me is "Black Cohosh Pro" a pharmeceutical grade herb, and mindful meditation. I have read that women who are more sensitive or prone to anxiety have worse menopausal symptoms, and I have noticed that when I am stressed I get more flashes. Meditation has been really helpful overall in decreasing stress and hotflashes.
I am learning so much from this forum and all of you!
Tumor 1.8cms x 1.5 cms x .5 cm;partially removed 7/14/10 by Drs. Friedman & Schwartz of House Ear Clinic in LA. Moderate SS hearing loss.
Re-growth approximate 3 mm per year; GK planned for 12/2017.
Philadelphia, PA area

suboo73

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Re: menopause question
« Reply #10 on: April 07, 2009, 03:47:35 am »
Hello Orit!  Thank you for bringing up this topic.  I have no major menopause symptoms, but horrible, irregular periods.  Right BEFORE my AN diagnosis, my GYN wanted me to take low does hormones.  I said no.  -  Now i don't know if hormones contribute to growth or not, but my next visit to the GYN should be more interesting, whether or not she agrees with me. (And i am glad i did not take the hormones for now.)

I agree with Nancy MacD - isn't it WONDERFUl that your doc is considering your total health?

I think i will do some more research on this one.
My thoughts and prayers are with you.
Sincerely,
Sue
suboo73
Little sister to Bigsister!
9mm X 6mm X 5mm
Misdiagnosed 12+ years?
Diagnosed Sept. 2008/MRI 4/09/MRI 12/09/MRI 1/21/11
Continued W & W

moe

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Re: menopause question
« Reply #11 on: April 07, 2009, 09:08:20 am »
Dear Orit, Ernie, Suz, and Glenda
We help you, you help us! Agree with staying away from estrogen, Orit.

I'm almost 48 and not yet menopausal but DREAD that time of life, what with my history of emotional labile personality , and all my AN nuances.
On the side, what does PMS mean, Ernie since you are very well rounded on women 's issues...... :-\

That's right, Ernie, it means "putting up with men's #@*!"
Honestly, you sound like a great guy, but hey women are from mars and men are from venus (we are very different)

I am on assortive meds and they help with the mood swings and tinnnitus.

Will try that BLACK COHASH  PRO when the time comes- thanks Suz and Glenda ;)
06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty

EJTampa

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Re: menopause question
« Reply #12 on: April 07, 2009, 09:20:22 am »
That's right, Ernie, it means "putting up with men's #@*!"
Honestly, you sound like a great guy, but hey women are from mars and men are from venus (we are very different)


Well, it's no secret that in general, women get along better with women and men get along better with men.  It's just the way of it.  My earlier comment was, of course, a joke...and a reply to Nancy because she was laughing at me for replying :).
 
But...I do agree with the mars and venus thing.  My wife and I are two very different people.  We love each other very much and do lots of things together, but we would have never been matched up on one of those online dating gigs :).
 
And yes, I am a "nice guy".  I am very supportive and would never intentionally down play the emotions and physical ailments that come with menopause.  Thanks for keeping me on my toes!
 
Ernie
-1.3 X 0.8 cm AN in the right cerebellopontine angle extending into the internal auditory canal.
-Retrosigmoid Surgery with Dr. Bartels and Dr. Danner at Tampa General 3/5/2009.
-Had to cut hearing nerve to get "sticky" tumor, so SSD right side.

 


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